The 20 Best EEC Syndrome Doctors in Netherlands

Find the Top EEC Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 5 doctor with experience in EEC Syndrome near Netherlands. Of these, 4 are Advanced and 1 are Distinguished.

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5 providers found
    Distinguished in EEC Syndrome
    Distinguished in EEC Syndrome
    Referral may be required
    Nijmegen, GE, NL 

    Simon Van Heeringen practices practicing medicine in Nijmegen, Netherlands. Mr. Van Heeringen is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses EEC Syndrome, Split Hand Foot Malformation, Ectodermal Dysplasias, and Clouston Syndrome.

    Advanced in EEC Syndrome
    Advanced in EEC Syndrome
    Referral may be required
    Nijmegen, GE, NL 

    Jieqiong Qu practices practicing medicine in Nijmegen, Netherlands. Qu is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Split Hand Foot Malformation, EEC Syndrome, Clouston Syndrome, and Ectodermal Dysplasias.

    Advanced in EEC Syndrome
    Advanced in EEC Syndrome
    Referral may be required
    Leiden, ZH, NL 

    Karina Brandao practices practicing medicine in Leiden, Netherlands. Ms. Brandao is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses EEC Syndrome, Long QT Syndrome 2, Split Hand Foot Malformation, and Long QT Syndrome.

    Learn about our expert tiers
    Advanced in EEC Syndrome
    Advanced in EEC Syndrome
    Referral may be required
    Nijmegen, GE, NL 

    Hans Van Bokhoven practices practicing medicine in Nijmegen, Netherlands. Mr. Van Bokhoven is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Crouzon Syndrome, X-Linked Retinal Dysplasia, Lissencephaly, and Walker-Warburg Syndrome.

    Advanced in EEC Syndrome
    Advanced in EEC Syndrome
    Referral may be required
    Bilthoven, UT, NL 

    Willem Van Den Akker practices practicing medicine in Bilthoven, Netherlands. Mr. Van Den Akker is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses EEC Syndrome, Split Hand Foot Malformation, Western Equine Encephalitis, and Ectodermal Dysplasias.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-5 of 5

    Last Updated: 11/08/2026

    What is the definition of EEC Syndrome?

    EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

    When should I see an EEC Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an EEC Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best EEC Syndrome doctor in Netherlands?

    You can find an EEC Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank EEC Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by EEC Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an EEC Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different EEC Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an EEC Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my EEC Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female EEC Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an EEC Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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