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    Last Updated: 01/09/2026

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    MediFind found 6 doctor with experience in EEC Syndrome near Netherlands. Of these, 4 are Advanced and 2 are Distinguished.

    Location
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    6 providers found
      Distinguished in EEC Syndrome

      Huiqing F. Zhou
      Distinguished in EEC Syndrome

      Huiqing F. Zhou
      Nijmegen, GE, NL 

      Huiqing Zhou practices in Nijmegen, Netherlands. Zhou is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. Their top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, AEC Syndrome, and Ectodermal Dysplasias.

      Distinguished in EEC Syndrome

      Simon J. Van Heeringen
      Distinguished in EEC Syndrome

      Simon J. Van Heeringen
      Nijmegen, GE, NL 

      Simon Van Heeringen practices in Nijmegen, Netherlands. Mr. Van Heeringen is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, Ectodermal Dysplasias, and Clouston Syndrome.

      Advanced in EEC Syndrome

      Jieqiong Qu
      Advanced in EEC Syndrome

      Jieqiong Qu
      Nijmegen, GE, NL 

      Jieqiong Qu practices in Nijmegen, Netherlands. Qu is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. Their top areas of expertise are Split Hand Foot Malformation, EEC Syndrome, Ectodermal Dysplasias, and Clouston Syndrome.

      Learn about our expert tiers
      Advanced in EEC Syndrome

      Karina O. Brandao
      Advanced in EEC Syndrome

      Karina O. Brandao
      Leiden, ZH, NL 

      Karina Brandao practices in Leiden, Netherlands. Ms. Brandao is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are EEC Syndrome, Long QT Syndrome 2, Split Hand Foot Malformation, and Long QT Syndrome.

      Advanced in EEC Syndrome

      Willem R. Van Den Akker
      Advanced in EEC Syndrome

      Willem R. Van Den Akker
      Bilthoven, UT, NL 

      Willem Van Den Akker practices in Bilthoven, Netherlands. Mr. Van Den Akker is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, Western Equine Encephalitis, and Clouston Syndrome.

      Advanced in EEC Syndrome

      Hans Van Bokhoven
      Advanced in EEC Syndrome

      Hans Van Bokhoven
      Nijmegen, GE, NL 

      Hans Van Bokhoven practices in Nijmegen, Netherlands. Mr. Van Bokhoven is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Crouzon Syndrome, X-Linked Retinal Dysplasia, Split Hand Foot Malformation, and Lissencephaly.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-6 of 6

      Last Updated: 01/09/2026

      What is the definition of EEC Syndrome?

      EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

      When should I see an EEC Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an EEC Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best EEC Syndrome doctor in Netherlands?

      You can find an EEC Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank EEC Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by EEC Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an EEC Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different EEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an EEC Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my EEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female EEC Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an EEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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