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    Last Updated: 10/30/2025

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    MediFind found 38 doctor with experience in Rett Syndrome near Illinois, US. Of these, 34 are Experienced, 2 are Distinguished, 1 are Advanced and 1 are Elite.

    Location
    LocationClose
    38 providers found
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Heydemann is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy. Dr. Heydemann is currently accepting new patients in some locations.

      Alexis P. Dunne
      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine

      Advocate Medical Group Internal Medicine

      80 Templeton Dr, 
      Oswego, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Alexis Dunne is a primary care provider, practicing in Internal Medicine in Oswego, Illinois. Dr. Dunne is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Hypothyroidism, and Obesity in Children.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics
      1725 W Harrison St, Suite 710, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Colleen Buhrfiend is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Aphantasia, Seizures, and Autism Spectrum Disorder. Dr. Buhrfiend is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Psychiatry
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Psychiatry

      Rush University Medical Group

      1725 W Harrison St, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Berry-Kravis is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Berry-Kravis is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome. Dr. Berry-Kravis is currently accepting new patients.

      Christopher Mcgraw
      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      11+ years
      Languages Spoken:
      English
      Offers Telehealth

      Christopher Mcgraw is a Neurologist in Chicago, Illinois. Dr. Mcgraw has been practicing medicine for over 11 years and is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Rett Syndrome, Generalized Tonic-Clonic Seizure, and Epilepsy.

      Mohamed A. Katerji
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Katerji Pediatric Neurology & Associates, SC

      1220 Iroquois Ave, 
      Naperville, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Mohamed Katerji is a Neurologist in Naperville, Illinois. Dr. Katerji is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Athetosis, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

      Paul L. Grindstaff
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Northwestern Medical Group

      360 E Station Dr Ste 300, Suite 300, 
      Crystal Lake, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Paul Grindstaff is a Neurologist in Crystal Lake, Illinois. Dr. Grindstaff is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Peripheral Neuropathy, Vitamin B12 Deficiency Anemia, and Memory Loss. Dr. Grindstaff is currently accepting new patients.

      Stephen A. Vanhaerents
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Stephen Vanhaerents is a Neurologist in Chicago, Illinois. Dr. Vanhaerents has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Encephalitis, Seizures, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      355 E Erie St, 
      Chicago, IL 
      Languages Spoken:
      English

      Sheng Tang is a Neurologist in Chicago, Illinois. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are West Syndrome, Spasmus Nutans, Rett Syndrome, and Epilepsy.

      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Tracy Gertler is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Gertler is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Athetosis, Myoclonic Epilepsy, and Epilepsy in Children.

      Experienced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      1725 W Harrison St Ste 718, Department Of Pediatrics, Section Of Child Neurology, 
      Chicago, IL 
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Lubov Romantseva is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, CLN2 Disease, CLN3 Disease, and CLN4 Disease. Dr. Romantseva is currently accepting new patients.

      Experienced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, Box 118, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Charles Marcuccilli is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Marcuccilli is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Epilepsy, Susac Syndrome, and Fetal Thalidomide Syndrome. Dr. Marcuccilli is currently accepting new patients.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      2211 N Oak Park Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Maria Martinez is a Physiatrist in Chicago, Illinois. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Alternating Hemiplegia of Childhood, Cerebral Palsy, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Martinez is currently accepting new patients.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      1241 W Jackson Blvd Unit 213, 
      Chicago, IL 
      Languages Spoken:
      English

      Divya Nagabushana is a Neurologist in Chicago, Illinois. Dr. Nagabushana is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, West Syndrome, Rett Syndrome, and Hypotonia.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Memorial Physician Services

      101 E Plummer Blvd, 
      Chatham, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Rivera is a primary care provider, practicing in Family Medicine in Chatham, Illinois. Dr. Rivera is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Maturity Onset Diabetes of the Young. Dr. Rivera is currently accepting new patients.

      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Kamala Cotts is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Cotts is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Emphysema, Osteoarthritis, Enlarged Liver, and Memory Loss.

      Experienced in Rett Syndrome
      Pediatric Neurology | Child and Adolescent Psychiatry | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Child and Adolescent Psychiatry | Neurology
      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English, Polish, Spanish
      Accepting New Patients
      Offers Telehealth

      Haidar Kabbani is a Pediatric Neurologist and a Child and Adolescent Psychiatrist in Maywood, Illinois. Dr. Kabbani is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy. Dr. Kabbani is currently accepting new patients.

      Experienced in Rett Syndrome
      Sleep Medicine | Pediatrics | Neurology
      Experienced in Rett Syndrome
      Sleep Medicine | Pediatrics | Neurology

      Carle Health Care Incorporated

      611 W Park St, 
      Urbana, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Daniel Picchietti is a Sleep Medicine specialist and a Pediatrics provider in Urbana, Illinois. Dr. Picchietti is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Restless Legs Syndrome, Periodic Limb Movement Disorder, Narcolepsy, and Obstructive Sleep Apnea.

      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine
      240 E Huron St Ste 1-200, 
      Chicago, IL 
      Languages Spoken:
      English

      Samantha Duarte is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Duarte is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Rett Syndrome.

      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Divya Desai is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Athetosis, Photosensitive Epilepsy, Landau-Kleffner Syndrome, and Partial Seizure.

      Showing 1-20 of 38

      Last Updated: 10/30/2025

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors in Illinois, US?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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