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    Last Updated: 10/30/2025

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    MediFind found 55 doctor with experience in Rett Syndrome near Boston, MA. Of these, 45 are Experienced, 8 are Advanced, 1 are Distinguished and 1 are Elite.

    Location
    LocationClose
    55 providers found
      Elite in Rett Syndrome
      Pediatric Neurology | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Lieberman is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Lieberman is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism. Dr. Lieberman is currently accepting new patients.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      15 Parkman Street, Neurology Associates Wac 835, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Jeffrey Macklis is a Neurologist in Boston, Massachusetts. Dr. Macklis is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Primary Lateral Sclerosis, Rett Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Autism Spectrum Disorder.

      Learn about our expert tiers
      Advanced in Rett Syndrome
      Advanced in Rett Syndrome

      Massachusetts General Physicians Organization Inc

      300 1st Ave, 
      Charlestown, MA 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jason Frankel is a Physiatrist in Charlestown, Massachusetts. Dr. Frankel is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Opisthotonos, and Muscle Spasms. Dr. Frankel is currently accepting new patients.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      300 Longwood Ave, Children's Hospital/dept. Of Neurology, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Omar Khwaja is a Neurologist in Boston, Massachusetts. Dr. Khwaja is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, Primary Lateral Sclerosis, and Rett Syndrome.

      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology
      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Children's Hospital Boston, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Annapurna Poduri is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Poduri is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are West Syndrome, Epilepsy, Spasmus Nutans, and Cortical Dysplasia. Dr. Poduri is currently accepting new patients.

      Advanced in Rett Syndrome
      Physiatry | Orthopedics
      Advanced in Rett Syndrome
      Physiatry | Orthopedics

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      David Fogelman is a Physiatrist and an Orthopedics provider in Boston, Massachusetts. Dr. Fogelman has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Spasticity, and Moebius Syndrome. Dr. Fogelman is currently accepting new patients.

      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology
      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jurriaan Peters is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Peters is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Seizures. Dr. Peters is currently accepting new patients.

      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology
      Advanced in Rett Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      April Levin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Levin is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Ruvalcaba Syndrome, Rett Syndrome, and Insomnia. Dr. Levin is currently accepting new patients.

      Advanced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Chellamani Harini is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Harini is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are West Syndrome, Spasmus Nutans, Epilepsy, and Epilepsy in Children. Dr. Harini is currently accepting new patients.

      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Ju Tang is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Memory Loss.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English, Spanish, Turkish
      Accepting New Patients

      Didem Inanoglu is a Physiatrist in Boston, Massachusetts. Dr. Inanoglu is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Focal Dystonia. Dr. Inanoglu is currently accepting new patients.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nutan Sharma is a Neurologist in Boston, Massachusetts. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Drug Induced Dyskinesia, Focal Dystonia, Dopa-Responsive Dystonia, X-Linked Dystonia-Parkinsonism, and Deep Brain Stimulation. Dr. Sharma is currently accepting new patients.

      Experienced in Rett Syndrome
      Medical Genetics | Pediatrics
      Experienced in Rett Syndrome
      Medical Genetics | Pediatrics
      850 Harrison Ave Fl 6, 
      Boston, MA 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Abu-El is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Stickler Syndrome, Coffin-Lowry Syndrome, Kabuki Syndrome, and 3MC Syndrome. Dr. Abu-El is currently accepting new patients.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Massachusetts General Physicians Organization Inc

      300 1st Ave, 
      Charlestown, MA 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Donna Nimec is a Physiatrist in Charlestown, Massachusetts. Dr. Nimec is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Hemiplegia. Dr. Nimec is currently accepting new patients.

      Experienced in Rett Syndrome
      Pediatric Neurology | Sleep Medicine | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Sleep Medicine | Neurology

      Child Health Foundation Of Boston Inc

      725 Albany St, 
      Boston, MA 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joshua August is a Pediatric Neurologist and a Sleep Medicine provider in Boston, Massachusetts. Dr. August is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Irregular Sleep-Wake Syndrome, Periodic Limb Movement Disorder, Idiopathic Hypersomnia, and Drowsiness. Dr. August is currently accepting new patients.

      Experienced in Rett Syndrome
      Family Medicine
      Experienced in Rett Syndrome
      Family Medicine
      850 Harrison Ave, Yacc 4, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English

      Huong Tran is a primary care provider, practicing in Family Medicine in Boston, Massachusetts. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Type 2 Diabetes (T2D), Ocular Hypertension (OHT), and Dehydration.

      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine
      801 Massachusetts Ave, Crosstown 6b, 
      Boston, MA 
       (1.8 miles away)
      Languages Spoken:
      English

      Thomas Barber is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Barber is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Scoliosis, Sciatica, Alcoholic Cirrhosis, and Enlarged Liver.

      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kelly Ford is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Ford is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Autoimmune Hepatitis. Dr. Ford is currently accepting new patients.

      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Christelle Moufawad-El is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Moufawad-El is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Photosensitive Epilepsy, Epilepsy in Children, Infant Epilepsy with Migrant Focal Crisis, and Seizures. Dr. Moufawad-El is currently accepting new patients.

      Showing 1-20 of 55

      Last Updated: 10/30/2025

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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