The 20 Best Rett Syndrome Doctors Near Me in Chicago, IL

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 39 doctor with experience in Rett Syndrome near Chicago, IL. Of these, 34 are Experienced, 2 are Advanced, 2 are Distinguished and 1 are Elite.

Location
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39 providers found
    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy.

    Advanced in Rett Syndrome
    Internal Medicine
    Advanced in Rett Syndrome
    Internal Medicine

    Select Outpatient Services Inc

    2600 Compass Rd, 
    Glenview, IL 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    Alain Lambert is a primary care provider, practicing in Internal Medicine in Glenview, Illinois. Dr. Lambert is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Chronic Kidney Disease. Dr. Lambert is currently accepting new patients.

    Experienced in Rett Syndrome
    Internal Medicine
    Experienced in Rett Syndrome
    Internal Medicine

    Advocate Medical Group Internal Medicine

    80 Templeton Dr, 
    Oswego, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Alexis Dunne is a primary care provider, practicing in Internal Medicine in Oswego, Illinois. Dr. Dunne is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her clinical expertise encompasses Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Hypothyroidism, and Obesity in Children. Dr. Dunne is board certified in American Board Of Internal Medicine.

    Learn about our expert tiers
    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Mcgraw is a Neurologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 12 years. Dr. Mcgraw is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure. Dr. Mcgraw is board certified in American Board Of Psychiatry And Neurology - Epilepsy (Certified).

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Colleen Buhrfiend is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Aphantasia, Seizures, and Myotonia Congenita.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Berry is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Berry is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Katerji Pediatric Neurology & Associates, SC

    1220 Iroquois Ave, 
    Naperville, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Mohamed Katerji is a Neurologist practicing medicine in Naperville, Illinois. Dr. Katerji is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Athetosis, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Katerji is board certified in American Board Of Psychiatry & Neurology, Neurology With Special Qualification In Child Neurology.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Northwestern Medical Group

    360 E Station Dr Ste 300, Suite 300, 
    Crystal Lake, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Paul Grindstaff is a Neurologist practicing medicine in Crystal Lake, Illinois. Dr. Grindstaff is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Seizures, Peripheral Neuropathy, Vitamin B12 Deficiency Anemia, and Memory Loss. Dr. Grindstaff is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Vanhaerents is a Neurologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 17 years. Dr. Vanhaerents is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Seizures, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis. Dr. Vanhaerents is board certified in American Board Of Psychiatry And Neurology - Clinical Neurophysiology (Certified).

    Experienced in Rett Syndrome
    Neurology
    Experienced in Rett Syndrome
    Neurology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Ewen is a Neurologist practicing medicine in Chicago, Illinois. Dr. Ewen is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Sturge-Weber Syndrome, Smith-Lemli-Opitz Syndrome, Epilepsy in Children, and Autism Spectrum Disorder.

    Experienced in Rett Syndrome
    Pediatric Neurology
    Experienced in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Lubov Romantseva is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Seizures, CLN2 Disease, CLN4 Disease, and CLN5 Disease.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sunita Misra is a Neurologist practicing medicine in Chicago, Illinois. Dr. Misra is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Absence Seizure.

    Experienced in Rett Syndrome
    Medical Genetics
    Experienced in Rett Syndrome
    Medical Genetics
    Referral may be required
    25 N Winfield Rd Ste 419, 
    Winfield, IL 
    Experience:
    35+ years
    Languages Spoken:
    English
    Offers Telehealth

    Carolyn Jones is a Medical Genetics provider practicing medicine in Winfield, Illinois. She has been practicing medicine for over 35 years. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 101 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Danon Disease. Dr. Jones is board certified in American Board Of Medical Genetics And Genomics - Clinical Genetics And Genomics (Certified).

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Goldstein is a Neurologist practicing medicine in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Landau-Kleffner Syndrome, Athetosis, Photosensitive Epilepsy, and Seizures.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Northwestern Medicine Central Dupage Hospital

    25 N Winfield Rd, 
    Winfield, IL 
    Languages Spoken:
    English

    Diana Sieciechowicz is a Neurologist practicing medicine in Winfield, Illinois. Dr. Sieciechowicz is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Absence Seizure.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    David Bieber is a Neurologist practicing medicine in Chicago, Illinois. Dr. Bieber is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Partial Seizure, Athetosis, and Seizures.

    Experienced in Rett Syndrome
    Internal Medicine
    Experienced in Rett Syndrome
    Internal Medicine

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Telugu
    Offers Telehealth

    Kamala Cotts is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Cotts is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Osteoarthritis, Enlarged Liver, and Memory Loss. Dr. Cotts is board certified in Internal Medicine, Practicing Since, and 1994.

    Experienced in Rett Syndrome
    Neurology
    Experienced in Rett Syndrome
    Neurology
    Referral may be required

    Office

    251 E Huron St Fl 13, 
    Chicago, IL 
    Languages Spoken:
    English

    Sheng Tang is a Neurologist practicing medicine in Chicago, Illinois. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, Rett Syndrome, and Epilepsy.

    Experienced in Rett Syndrome
    Pediatric Neurology
    Experienced in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Tracy Gertler is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Gertler is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 94 other conditions, according to our data. Her clinical expertise encompasses Seizures, Athetosis, Myoclonic Epilepsy, and Epilepsy in Children.

    Experienced in Rett Syndrome
    Family Medicine
    Experienced in Rett Syndrome
    Family Medicine

    Cass County Home Health Agency

    331 S Main St, 
    Virginia, IL 
    Languages Spoken:
    English

    Dirck Curry is a primary care provider, practicing in Family Medicine in Virginia, Illinois. Dr. Curry is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Showing 1-20 of 39

    Last Updated: 06/30/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor near Chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor near Chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Rett Syndrome doctors near Chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors near Chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor near Chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor near Chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors near Chicago, IL?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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