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    Last Updated: 01/09/2026

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    MediFind found 444 doctor with experience in Acrodysostosis near The United States. Of these, 367 are Experienced, 75 are Advanced and 2 are Distinguished.

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    LocationClose
    444 providers found
      Thomas J. Gampper MD FACS
      Experienced in Acrodysostosis
      Experienced in Acrodysostosis

      University Of Virginia Plastic Surgery

      1300 Jefferson Park Ave, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thomas Gampper MD FACS is a Plastic Surgeon in Charlottesville, Virginia. Dr. Gampper MD FACS is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Congenital Generalized Lipodystrophy, Familial Partial Lipodystrophy, Treacher Collins Syndrome, and Acrofacial Dysostosis Rodriguez Type. Dr. Gampper MD FACS is currently accepting new patients.

      Experienced in Acrodysostosis
      Plastic Surgery | General Surgery
      Experienced in Acrodysostosis
      Plastic Surgery | General Surgery

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Willson is a Plastic Surgeon and a General Surgeon in Columbia, Missouri. Dr. Willson has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Acrodysostosis, Acrofacial Dysostosis Nager Type, Acrofacial Dysostosis Weyers Type, and Osteotomy. Dr. Willson is currently accepting new patients.

      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      Lehigh Valley Physician Group

      1210 S Cedar Crest Blvd, 
      Allentown, PA 
      Languages Spoken:
      English

      Sri Chennupati is a Pediatric Otolaryngologist and a Pediatrics provider in Allentown, Pennsylvania. Dr. Chennupati is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Crouzon Syndrome, Gorlin-Chaudhry-Moss Syndrome, Acrofrontofacionasal Dysostosis Syndrome, Stridor, and Adenoidectomy.

      Learn about our expert tiers
      Experienced in Acrodysostosis
      Pediatric Pulmonology | Pediatrics
      Experienced in Acrodysostosis
      Pediatric Pulmonology | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Gary Mcphail is a Pediatric Pulmonologist and a Pediatrics provider in Cincinnati, Ohio. Dr. Mcphail is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Cystic Fibrosis, Sleepwalking (Somnambulism), Congenital Unilateral Pulmonary Hypoplasia, and Exocrine Pancreatic Insufficiency. Dr. Mcphail is currently accepting new patients.

      Experienced in Acrodysostosis
      Otolaryngology
      Experienced in Acrodysostosis
      Otolaryngology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Maroun Semaan is an Otolaryngologist in Cleveland, Ohio. Dr. Semaan is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Cholesteatoma, Meniere Disease, Schwannoma, Tissue Biopsy, and Myringotomy. Dr. Semaan is currently accepting new patients.

      Experienced in Acrodysostosis
      Plastic Surgery | Otolaryngology
      Experienced in Acrodysostosis
      Plastic Surgery | Otolaryngology

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Krishna Patel is a Plastic Surgeon and an Otolaryngologist in Charleston, South Carolina. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Recurrent Peripheral Facial Palsy, Facial Paralysis, Bell's Palsy, Tissue Biopsy, and Myringotomy. Dr. Patel is currently accepting new patients.

      Experienced in Acrodysostosis
      Plastic Surgery
      Experienced in Acrodysostosis
      Plastic Surgery

      University Of Vermont Medical Center Inc

      111 Colchester Ave, 
      Burlington, VT 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Nesbit is a Plastic Surgeon in Burlington, Vermont. Dr. Nesbit is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Breast Enlargement In Males, Head and Neck Squamous Cell Carcinoma (HNSCC), Acrofacial Dysostosis Rodriguez Type, Treacher Collins Syndrome, and Lymphadenectomy. Dr. Nesbit is currently accepting new patients.

      Experienced in Acrodysostosis
      Otolaryngology
      Experienced in Acrodysostosis
      Otolaryngology

      Lehigh Valley Physician Group

      3701 Corriere Rd, Fl 2, 
      Easton, PA 
      Languages Spoken:
      English

      Thomas Pollock is an Otolaryngologist in Easton, Pennsylvania. Dr. Pollock is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Nonallergic Rhinopathy, Palatal Myoclonus, Ozena, Gastrostomy, and Endoscopy.

      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      676 N Saint Clair St, Suite 1325, 
      Chicago, IL 
      Languages Spoken:
      English

      Jennifer Lavin is a Pediatric Otolaryngologist and an Otolaryngologist in Chicago, Illinois. Dr. Lavin is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Enlarged Adenoids, Tracheobronchomalacia, Laryngomalacia, Adenoidectomy, and Endoscopy.

      Experienced in Acrodysostosis
      Otolaryngology
      Experienced in Acrodysostosis
      Otolaryngology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarah Mowry is an Otolaryngologist in Cleveland, Ohio. Dr. Mowry is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Cholesteatoma, Acoustic Neuroma, Schwannoma, Mastoidectomy, and Myringotomy. Dr. Mowry is currently accepting new patients.

      Experienced in Acrodysostosis
      Oral and Maxillofacial Surgery | Plastic Surgery | General Surgery
      Experienced in Acrodysostosis
      Oral and Maxillofacial Surgery | Plastic Surgery | General Surgery

      Wk Oral And Maxillofacial Surgery Institute

      2508 Bert Kouns Industrial Loop, Suite 410, 
      Shreveport, LA 
      Languages Spoken:
      English, Arabic, Filipino, German, Spanish
      Accepting New Patients

      Ghali Ghali is an Oral and Maxillofacial Surgeon and a Plastic Surgeon in Shreveport, Louisiana. Dr. Ghali is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Osteochondroma, Mouth Sores, Mouth Ulcers, Tongue Cancer, and Gastrostomy. Dr. Ghali is currently accepting new patients.

      Distinguished in Acrodysostosis
      Pediatrics | Nephrology | Pediatric Endocrinology
      Distinguished in Acrodysostosis
      Pediatrics | Nephrology | Pediatric Endocrinology
      55 Fruit Street Yaw 6, Pediatric Medicine, 
      Boston, MA 
      Languages Spoken:
      English

      Harald Jueppner is a Pediatrics specialist and a Nephrologist in Boston, Massachusetts. Dr. Jueppner is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Pseudohypoparathyroidism, Albright's Hereditary Osteodystrophy, Nephrocalcinosis, and Milk-Alkali Syndrome.

      Distinguished in Acrodysostosis
      Pediatric Endocrinology | Pediatrics | Endocrinology
      Distinguished in Acrodysostosis
      Pediatric Endocrinology | Pediatrics | Endocrinology
      200 N Wolfe St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Emily Germain-Lee is a Pediatric Endocrinologist and a Pediatrics provider in Baltimore, Maryland. Dr. Germain-Lee is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Albright's Hereditary Osteodystrophy, Pseudohypoparathyroidism, Acrodysostosis, and Dysostosis Peripheral.

      Jonathan N. Young
      Experienced in Acrodysostosis
      Pediatric Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology

      Sutter Capitol Pavilion

      2725 Capitol Avenue, Suite 404, 
      Sacramento, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Jonathan Young is a Pediatric Otolaryngologist in Sacramento, California. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Laryngomalacia, Stridor, and Acrodysostosis. Dr. Young is currently accepting new patients.

      John A. Girotto
      Advanced in Acrodysostosis
      General Surgery | Plastic Surgery
      Advanced in Acrodysostosis
      General Surgery | Plastic Surgery

      Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5201, 
      Grand Rapids, MI 
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Girotto is a General Surgeon and a Plastic Surgeon in Grand Rapids, Michigan. Dr. Girotto has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Autosomal Cleft Palate, Goldenhar Disease, Cleft Lip and Palate, Osteotomy, and Bone Graft. Dr. Girotto is currently accepting new patients.

      Scott M. Rickert
      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology

      New York University

      111 Broadway, Fl 2, 
      New York, NY 
      Languages Spoken:
      English

      Scott Rickert is a Pediatric Otolaryngologist and an Otolaryngologist in New York, New York. Dr. Rickert is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Micrognathia, Tracheal Agenesis, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Adenoidectomy.

      Experienced in Acrodysostosis
      Otolaryngology
      Experienced in Acrodysostosis
      Otolaryngology

      Ascentist Management

      4880 NE Goodview Circle, 
      Lee's Summit, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Cullen is an Otolaryngologist in Lee's Summit, Missouri. Dr. Cullen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Infant Hearing Loss, Jones Syndrome, DFNB1, and Cholesteatoma. Dr. Cullen is currently accepting new patients.

      Experienced in Acrodysostosis
      Experienced in Acrodysostosis

      Cumming Pediatric Group

      1800 Northside Forsyth Dr #460, 
      Cumming, GA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Joanna Morris is a Pediatrics provider in Cumming, Georgia. Dr. Morris is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Obesity in Children, Herpangina, Croup, and Scarlet Fever. Dr. Morris is currently accepting new patients.

      Advanced in Acrodysostosis
      Oral and Maxillofacial Surgery
      Advanced in Acrodysostosis
      Oral and Maxillofacial Surgery

      Boston Plastic And Oral Surgery

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Cory Resnick is an Oral and Maxillofacial Surgeon in Boston, Massachusetts. Dr. Resnick is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Acrofacial Dysostosis Nager Type, Temporomandibular Ankylosis, Acrodysostosis, Osteotomy, and Gastrostomy. Dr. Resnick is currently accepting new patients.

      Advanced in Acrodysostosis
      Family Medicine | Obstetrics and Gynecology
      Advanced in Acrodysostosis
      Family Medicine | Obstetrics and Gynecology

      Ccm Health

      824 N 11th St, 
      Montevideo, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Patrick Hanna is an Obstetrics and Gynecologist in Montevideo, Minnesota. Dr. Hanna is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Acrodysostosis, Dysostosis Peripheral, Painful Menstrual Periods, and Postmenopausal Osteoporosis. Dr. Hanna is currently accepting new patients.

      Showing 1-20 of 444

      Last Updated: 01/09/2026

      What is the definition of Acrodysostosis?

      Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

      When should I see an Acrodysostosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Acrodysostosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Acrodysostosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Acrodysostosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Acrodysostosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrodysostosis doctor search results page. 

      Why is it important to get a second opinion from a different Acrodysostosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Acrodysostosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Acrodysostosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Acrodysostosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Acrodysostosis doctors in The United States?

      Look for the filter feature on the left side of the Acrodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Acrodysostosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Acrodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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