The 20 Best Acrodysostosis Doctors in The United States

Find the Top Acrodysostosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 454 doctor with experience in Acrodysostosis near The United States. Of these, 374 are Experienced, 76 are Advanced and 4 are Distinguished.

Location
LocationClose
454 providers found
    Distinguished in Acrodysostosis
    Pediatric Endocrinology
    Distinguished in Acrodysostosis
    Pediatric Endocrinology

    Connecticut Children's Specialty Care Center-Farmington

    505 Farmington Ave Fl 2, 
    Farmington, CT 
    Languages Spoken:
    English

    Emily Germain is a Pediatric Endocrinologist practicing medicine in Farmington, Connecticut. Dr. Germain is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Albright's Hereditary Osteodystrophy, Pseudohypoparathyroidism, Acrodysostosis, and Dysostosis Peripheral.

    Advanced in Acrodysostosis
    General Surgery | Plastic Surgery
    Advanced in Acrodysostosis
    General Surgery | Plastic Surgery

    Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Girotto is a General Surgeon and a Plastic Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Girotto is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Autosomal Cleft Palate, Goldenhar Disease, Cleft Lip and Palate, Osteotomy, and Bone Graft. Dr. Girotto is board certified in American Board Of Plastic Surgery. Dr. Girotto is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatrics | Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatrics | Pediatric Pulmonology

    Children's - Pulmonology Clinic

    333 N. Santa Rosa St., 2nd Floor, Floor 2, 
    San Antonio, TX 
    Languages Spoken:
    English

    Tarak Patel is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in San Antonio, Texas. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Acrodysostosis, Acrofacial Dysostosis Weyers Type, Acrofacial Dysostosis Nager Type, and Cerebral Hypoxia. Dr. Patel is board certified in American Board Of Pediatrics.

    Learn about our expert tiers
    Advanced in Acrodysostosis
    Otolaryngology
    Advanced in Acrodysostosis
    Otolaryngology

    PCH Surgery

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients

    Nathan Page is an Otolaryngologist practicing medicine in Phoenix, Arizona. Dr. Page is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Wolf-Hirschhorn Syndrome, Acrofacial Dysostosis Nager Type, Treacher Collins Syndrome, Myringotomy, and Adenoidectomy. Dr. Page is board certified in Otolaryngology. Dr. Page is currently accepting new patients.

    Distinguished in Acrodysostosis
    Endocrinology
    Distinguished in Acrodysostosis
    Endocrinology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Michael Levine is an Endocrinologist practicing medicine in Philadelphia, Pennsylvania. Dr. Levine is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Hypercalcemia, Milk-Alkali Syndrome, Hypoparathyroidism, Hormone Replacement Therapy (HRT), and Parathyroidectomy.

    Distinguished in Acrodysostosis
    Distinguished in Acrodysostosis

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Harald Jueppner is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Jueppner is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Pseudohypoparathyroidism, Albright's Hereditary Osteodystrophy, Nephrocalcinosis, and Milk-Alkali Syndrome.

    Distinguished in Acrodysostosis
    Holistic Medicine
    Distinguished in Acrodysostosis
    Holistic Medicine

    Office

    229 E King St Fl 2, 
    Malvern, PA 
    Languages Spoken:
    English

    Mei Li is a Holistic Medicine provider practicing medicine in Malvern, Pennsylvania. Ms. Li is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Camurati-Engelmann Disease, Fractured Spine, Acrodysostosis, Osteotomy, and Orchiectomy.

    Advanced in Acrodysostosis
    Plastic Surgery
    Advanced in Acrodysostosis
    Plastic Surgery

    Children's Health Dallas - Plastic Surgery

    1935 Medical District Dr, 
    Dallas, TX 
    Languages Spoken:
    English

    James Seaward is a Plastic Surgeon practicing medicine in Dallas, Texas. Dr. Seaward is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Craniosynostosis, Metopic Ridge, Cleft Lip and Palate, Craniectomy, and Osteotomy.

    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jay Bhatt is a Pediatric Otolaryngologist practicing medicine in Orange, California. Dr. Bhatt is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Deafness Craniofacial Syndrome, Pierre Robin Sequence, Microtia, and Adenoidectomy. Dr. Bhatt is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    1010 West La Veta Avenue, Suite 640, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Nguyen Pham is a Pediatric Otolaryngologist practicing medicine in Orange, California. Dr. Pham is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Velopharyngeal Insufficiency, Syngnathia Cleft Palate, Autosomal Cleft Palate, and Deafness Craniofacial Syndrome. Dr. Pham is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Katherine Lewinter is a Pediatric Pulmonologist practicing medicine in Orange, California. Dr. Lewinter is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), Asthma, Asthma in Children, and Adenoidectomy. Dr. Lewinter is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Syed Naqvi is a Pediatric Pulmonologist practicing medicine in Dallas, Texas. Dr. Naqvi is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Hypochondroplasia, Acrofacial Dysostosis Nager Type, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Adenoidectomy.

    Advanced in Acrodysostosis
    Palliative Medicine
    Advanced in Acrodysostosis
    Palliative Medicine
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Keating is a primary care provider, practicing in Palliative Medicine in Orange, California. Dr. Keating is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 88 other conditions, according to our data. Her clinical expertise encompasses Acrofacial Dysostosis Nager Type, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Toriello-Carey Syndrome. Dr. Keating is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Pornchai Tirakitsoontorn is a Pediatric Pulmonologist practicing medicine in Orange, California. Dr. Tirakitsoontorn is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Hypochondrogenesis, Cystic Fibrosis, Congenital Unilateral Pulmonary Hypoplasia, and Asthma. Dr. Tirakitsoontorn is currently accepting new patients.

    Advanced in Acrodysostosis
    Otolaryngology
    Advanced in Acrodysostosis
    Otolaryngology

    Children's Health Dallas - ENT Clinic

    2350 N Stemmons Frwy, F5.300, 
    Dallas, TX 
    Languages Spoken:
    English

    Stephen Chorney is an Otolaryngologist practicing medicine in Dallas, Texas. Dr. Chorney is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Swallowing Difficulty, Tonsillitis, Laryngeal Cleft, Adenoidectomy, and Myringotomy.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Sunil Kamath is a Pediatric Pulmonologist practicing medicine in Orange, California. Dr. Kamath is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Hypochondrogenesis, Pectus Excavatum, Asthma, and Koolen De Vries Syndrome.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Hanna Hong is a Pediatric Pulmonologist practicing medicine in Orange, California. Dr. Hong is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, Multiple Epiphyseal Dysplasia, Duchenne Muscular Dystrophy, Gallbladder Removal, and Thyroidectomy. Dr. Hong is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatric Pulmonology
    Advanced in Acrodysostosis
    Pediatric Pulmonology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Chana Chin is a Pediatric Pulmonologist practicing medicine in Orange, California. Dr. Chin is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Primary Ciliary Dyskinesia (PCD), Multiple Epiphyseal Dysplasia, Asthma in Children, and Micrognathia. Dr. Chin is currently accepting new patients.

    Advanced in Acrodysostosis
    Advanced in Acrodysostosis

    Mass Eye And Ear, Pediatric Ear, Nose, And Throat Care

    243 Charles Street, 
    Boston, MA 
    Languages Spoken:
    English

    Andrew Scott is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Scott is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Micrognathia, Pierre Robin Sequence, Bifid Nose, Septoplasty, and Myringotomy. Dr. Scott is board certified in Otolaryngology-Head And Neck Surgery.

    Advanced in Acrodysostosis
    Otolaryngology | Pediatric Otolaryngology
    Advanced in Acrodysostosis
    Otolaryngology | Pediatric Otolaryngology

    Children's Health Dallas - ENT Clinic

    2350 N Stemmons Frwy, F5.300, 
    Dallas, TX 
    Languages Spoken:
    English

    Yann Kou is an Otolaryngologist and a Pediatric Otolaryngologist practicing medicine in Dallas, Texas. Dr. Kou is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Laryngeal Cleft, Congenital Tracheomalacia, Enlarged Adenoids, Adenoidectomy, and Endoscopy.

    Showing 1-20 of 454

    Last Updated: 04/28/2026

    What is the definition of Acrodysostosis?

    Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

    When should I see an Acrodysostosis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acrodysostosis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acrodysostosis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acrodysostosis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acrodysostosis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrodysostosis doctor search results page. 

    Why is it important to get a second opinion from a different Acrodysostosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acrodysostosis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acrodysostosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acrodysostosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acrodysostosis doctors in The United States?

    Look for the filter feature on the left side of the Acrodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acrodysostosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Acrodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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