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    Last Updated: 01/09/2026

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    MediFind found 255 doctor with experience in AEC Syndrome near The United States. Of these, 192 are Experienced and 63 are Advanced.

    Location
    LocationClose
    255 providers found
      Advanced in AEC Syndrome
      Advanced in AEC Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

      Advanced in AEC Syndrome
      Advanced in AEC Syndrome

      Osu Eye Physicians And Surgeons, LLC

      915 Olentangy River Rd, Fl 5, 
      Columbus, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Hendershot is an Ophthalmologist in Columbus, Ohio. Dr. Hendershot is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Keratoconus, Macular Corneal Dystrophy Type 1, Corneal Dystrophy and Perceptive Deafness, Fuchs Dystrophy, and Corneal Transplant. Dr. Hendershot is currently accepting new patients.

      Experienced in AEC Syndrome
      Dermatology | General Surgery
      Experienced in AEC Syndrome
      Dermatology | General Surgery

      Wk Dermatology Clinic

      2300 Hospital Dr, Suite 400, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Baker is a Dermatologist and a General Surgeon in Bossier City, Louisiana. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Rosacea, Atopic Dermatitis, Actinic Keratosis, and Plaque Psoriasis. Dr. Baker is currently accepting new patients.

      Learn about our expert tiers
      Rahat Saied
      Advanced in AEC Syndrome
      Pediatrics
      Advanced in AEC Syndrome
      Pediatrics
      9727 Elk Grove Florin Rd., Suite 250, 
      Elk Grove, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Rahat Saied is a Pediatrics provider in Elk Grove, California. Dr. Saied is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Viral Gastroenteritis, and Developmental Dysphasia Familial. Dr. Saied is currently accepting new patients.

      Benjamin Davidson
      Advanced in AEC Syndrome
      Advanced in AEC Syndrome

      MercyOne Waterloo Pediatrics Care

      2710 St. Francis Drive, Suite 510, 
      Waterloo, IA 
      Languages Spoken:
      English

      Benjamin Davidson is a Pediatrics provider in Waterloo, Iowa. Dr. Davidson is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Anorchia, Ectodermal Dysplasias, Zlotogora-Ogur Syndrome, and AEC Syndrome.

      Experienced in AEC Syndrome
      Experienced in AEC Syndrome

      Central Arkansas Pediatrics

      3010 Fountain Drive, 
      Conway, AR 
      Languages Spoken:
      English
      Accepting New Patients

      Adam Harrell is a Pediatrics provider in Conway, Arkansas. Dr. Harrell is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Obesity in Children, Delayed Growth, and Croup. Dr. Harrell is currently accepting new patients.

      Advanced in AEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery
      Advanced in AEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery

      New York Comprehensive Orthognathic And Maxillofacial Surgery PC

      2001 Marcus Ave, Suite N10, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Jay Neugarten is an Oral and Maxillofacial Surgeon and a General Surgeon in New Hyde Park, New York. Dr. Neugarten is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Zlotogora-Ogur Syndrome, and Osteotomy.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      2018 Clinch Avenue, South Tower 2nd Floor, 
      Knoxville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jared Hamm is a Medical Genetics specialist and a Pediatrics provider in Knoxville, Tennessee. Dr. Hamm is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, AEC Syndrome, Clouston Syndrome, and EEC Syndrome. Dr. Hamm is currently accepting new patients.

      Advanced in AEC Syndrome
      Ophthalmology
      Advanced in AEC Syndrome
      Ophthalmology

      Cei Physicians Psc, LLC

      580 S Loop Rd, Suite 200, 
      Edgewood, KY 
      Languages Spoken:
      English
      Accepting New Patients

      Edward Holland is an Ophthalmologist in Edgewood, Kentucky. Dr. Holland is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Cloudy Cornea, Cataract, Walker Dyson Syndrome, and Aniridia. Dr. Holland is currently accepting new patients.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Wilson is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome. Dr. Wilson is currently accepting new patients.

      Advanced in AEC Syndrome
      Advanced in AEC Syndrome
      676 N St Clair St Ste 1600, Arkes Pavilion, 
      Chicago, IL 
      Experience:
      48+ years
      Languages Spoken:
      English

      Amy Paller is a Pediatrics provider in Chicago, Illinois. Dr. Paller has been practicing medicine for over 48 years and is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Plaque Psoriasis, Discoid Lupus Erythematosus (DLE), and Gastrostomy.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics

      Our Lady Of The Lake Physician Group LLC

      8415 Goodwood Blvd, Suite 202b, 
      Baton Rouge, LA 
      Languages Spoken:
      English

      Duane Superneau is a Medical Genetics specialist and a Pediatrics provider in Baton Rouge, Louisiana. Dr. Superneau is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Ectodermal Dysplasias, and Naegeli-Franceschetti-Jadassohn Syndrome.

      Advanced in AEC Syndrome
      Plastic Surgery
      Advanced in AEC Syndrome
      Plastic Surgery

      Mount Sinai Community Foundation

      1401 S California Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lee Alkureishi is a Plastic Surgeon in Chicago, Illinois. Dr. Alkureishi is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Cleft Lip and Palate, Bifid Nose, Naegeli-Franceschetti-Jadassohn Syndrome, Osteotomy, and Bone Graft. Dr. Alkureishi is currently accepting new patients.

      Advanced in AEC Syndrome
      Plastic Surgery
      Advanced in AEC Syndrome
      Plastic Surgery
      555 S 18th St, First Floor, 
      Columbus, OH 
      Languages Spoken:
      English

      Gregory Pearson is a Plastic Surgeon in Columbus, Ohio. Dr. Pearson is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, EEC Syndrome, AEC Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

      Advanced in AEC Syndrome
      Dermatology
      Advanced in AEC Syndrome
      Dermatology

      Westchester Dermatology Center

      20 Old Mamaroneck Road, 
      White Plains, NY 
      Languages Spoken:
      English

      Philip Fried is a Dermatologist in White Plains, New York. Dr. Fried is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Acne, Rosacea, Membranous Nephropathy, and Melasma.

      Advanced in AEC Syndrome
      Advanced in AEC Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Mancuso is a Dermatologist in Ann Arbor, Michigan. Dr. Mancuso is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Linear Hamartoma Syndrome. Dr. Mancuso is currently accepting new patients.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and Clouston Syndrome. Dr. Tan is currently accepting new patients.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics

      Community Health Partners

      45 E River Park Pl W, Suite 507, 
      Fresno, CA 
      Languages Spoken:
      English

      Cynthia Curry is a Medical Genetics specialist and a Pediatrics provider in Fresno, California. Dr. Curry is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are AEC Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      3333 Burnet Ave, Ml 4006, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Howard Saal is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Saal is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Achondroplasia, Treacher Collins Syndrome, Acrofacial Dysostosis Rodriguez Type, and Acrofacial Dysostosis Catania Type.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics

      Iu Health Medical Group LLC

      1701 N Senate Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Conboy is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Conboy is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Hereditary Multiple Osteochondromas, Clouston Syndrome, Ectodermal Dysplasias, and Early Infantile Epileptic Encephalopathy. Dr. Conboy is currently accepting new patients.

      Showing 1-20 of 255

      Last Updated: 01/09/2026

      What is the definition of AEC Syndrome?

      Ankyloblepharon-ectodermal defects-cleft lip/palate syndrome (AEC syndrome) is a form of ectodermal dysplasia, a group of conditions characterized by abnormal development of ectodermal tissues including the skin, hair, nails, teeth, and sweat glands. The most common feature is missing patches of skin (erosions) on the scalp, neck, hands, and feet. The skin erosions can lead to infection, scarring, and hair loss. Other features include changes in skin coloring; misshapen or absent fingernails and toenails; malformed or missing teeth; increased sensitivity to heat; hearing loss; cleft lip and/or palate; and other facial abnormalities. This condition is caused by genetic changes in the TP63 gene and is inherited in an autosomal dominant fashion. Rapp-Hodgkin syndrome was classified as a separate disorder until it was discovered that it result from genetic changes in the same part of the TP63 gene. Rapp-Hodgkin syndrome and AEC syndrome are considered to be part of the same disease spectrum.

      When should I see an AEC Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an AEC Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank AEC Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by AEC Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an AEC Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the AEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different AEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an AEC Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my AEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my AEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female AEC Syndrome doctors in The United States?

      Look for the filter feature on the left side of the AEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an AEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the AEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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