International Primary Ciliary Dyskinesia Cohort
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The iPCD Cohort is an international cohort that assembles available retrospective datasets and prospectively newly collected clinical and diagnostic data from patients suffering from primary ciliary dyskinesia (PCD) worldwide, to answer pertinent questions on clinical phenotype, disease severity, prognosis and effect of treatments in patients with this rare multiorgan disease.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Patients diagnosed with primary ciliary dyskinesia
Locations
Other Locations
Switzerland
University of Bern
RECRUITING
Bern
Contact Information
Primary
Claudia E Kuehni, Prof
claudia.kuehni@unibe.ch
0041 316313507
Backup
Myrofora Goutaki, MD-PhD
myrofora.goutaki@unibe.ch
0041 316315973
Time Frame
Start Date: 2013-01
Estimated Completion Date: 2080-12
Participants
Target number of participants: 5000
Related Therapeutic Areas
Sponsors
Leads: University of Bern
Collaborators: Institute of Tuberculosis and Lung Disorders, Rabka Poland, University of Leicester, Royal Brompton & Harefield NHS Foundation Trust, Amsterdam UMC, location VUmc, Pierre and Marie Curie University, Hospital de Niños R. Gutierrez de Buenos Aires, Medical Centre Dr Dragisa Misovic, Hannover Medical School, Ruhr University of Bochum, Genetic Disorders of Mucociliary Clearance Consortium, Hacettepe University, Clinica de neumologia pediatrica Compensar, Attikon Hospital, University of Padova, Bar-Ilan University, Israel, Swiss National Science Foundation, University of Cyprus, Marmara University, University Hospital Muenster, University Hospital, Gasthuisberg, Oslo University Hospital, University of Sydney, University Hospital, Motol, Copenhagen University Hospital, Denmark, European Commission, University of Southampton