University of Pennsylvania Centralized Observational Research Repository on Neurodegenerative Disease (UNICORN)

Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY

The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: t
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⁃ This protocol will include 3 groups of people:

• People with a clinical diagnosis of a neurodegenerative disease. such as frontotemporal degeneration(FTD), primary progressive aphasia(PPA), Lewy body disease(LBD), amyotrophic lateral sclerosis(ALS), progressive supranuclear palsy(PSP), corticobasal syndrome(CBS), posterior cortical atrophy(PCA), Alzheimer's disease(AD), Parkinson's disease(PD)

• People with a family history of neurodegenerative disease who may or may not be symptomatic, and may or may not be mutation carriers such as familial frontotemporal lobar degeneration (fFTLD) or familial ALS,

• People with no known neurological disease who will provide control data.

Locations
United States
Pennsylvania
University of Pennsylvania
RECRUITING
Philadelphia
Contact Information
Primary
Emily Xie
emily.xie@pennmedicine.upenn.edu
215-746-2781
Backup
Dahlia Kamel
kamel.dahlia@pennmedicine.upenn.edu
Time Frame
Start Date: 2020-05-29
Estimated Completion Date: 2070-05-30
Participants
Target number of participants: 1000
Treatments
Cross-sectional
Longitudinal
Authors
Murray Grossman
Sponsors
Collaborators: Alzheimer's Association, United States Department of Defense, National Institute on Aging (NIA), National Institutes of Health (NIH)
Leads: University of Pennsylvania

This content was sourced from clinicaltrials.gov