Swiss Primary Ciliary Dyskinesia Registry
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Patients diagnosed with primary ciliary dyskinesia
• Signed informed consent or assent
Locations
Other Locations
Switzerland
University of Bern
RECRUITING
Bern
Contact Information
Primary
Claudia E Kuehni, Prof
spcdr@hin.ch
0041 316313507
Backup
Myrofora Goutaki, PD, MD-PhD
spcdr@hin.ch
0041 316315973
Time Frame
Start Date: 2013-01
Estimated Completion Date: 2080-12
Participants
Target number of participants: 800
Authors
Related Therapeutic Areas
Sponsors
Leads: University of Bern