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    Last Updated: 10/30/2025

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    MediFind found 7 doctor with experience in Dysferlinopathy near Tucson, AZ. Of these, 5 are Experienced and 2 are Advanced.

    Location
    LocationClose
    7 providers found
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Banner-University Medical Group

      2800 E Ajo Way, 
      Tucson, AZ 
       (6.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Holli Horak is a Neurologist in Tucson, Arizona. Dr. Horak is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Multifocal Motor Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, and Spinal Muscular Atrophy (SMA). Dr. Horak is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Tucson Physician Group Holdings LLC

      6567 E Carondelet Dr, Suite 305, 
      Tucson, AZ 
       (7.3 miles away)
      Languages Spoken:
      English, Hungarian
      Accepting New Patients
      Offers Telehealth

      Katalin Scherer is a Neurologist in Tucson, Arizona. Dr. Scherer is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Chronic Inflammatory Demyelinating Polyneuropathy, and Spinal Muscular Atrophy Type 3. Dr. Scherer is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Children's Clinics For Rehabilitative Services

      2600 N Wayatt Dr, 
      Tucson, AZ 
       (5.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Crawford is a primary care provider, practicing in Pediatrics and Internal Medicine in Tucson, Arizona. Dr. Crawford is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Down Syndrome, Cerebral Palsy, Tethered Cord Syndrome, and Myelomeningocele. Dr. Crawford is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      2850 E Skyline Dr, Suite 130, 
      Tucson, AZ 
       (5.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mateja De Leonni Stanonik is a Neurologist in Tucson, Arizona. Dr. De Leonni Stanonik is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Benign Rolandic Epilepsy, Memory Loss, Seizures, and Partial Seizure.

      Experienced in Dysferlinopathy
      Family Medicine | Internal Medicine
      Experienced in Dysferlinopathy
      Family Medicine | Internal Medicine

      Pinnacle Health Care LLC

      5830 E Pima St, 
      Tucson, AZ 
       (6.3 miles away)
      Languages Spoken:
      English, Hindi, Punjabi, Urdu
      Accepting New Patients
      Offers Telehealth

      Harbir Singh is a primary care provider, practicing in Family Medicine and Internal Medicine in Tucson, Arizona. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cellulitis, Peptic Ulcer, Necrosis, Endoscopy, and Hip Replacement. Dr. Singh is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      4175 S Alamo Ave, 355 Amds, 
      Davis Monthan A F B, AZ 
       (8.7 miles away)
      Languages Spoken:
      English

      Lisa Firestone is a Physiatrist in Davis Monthan A F B, Arizona. Dr. Firestone is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Foot Drop, Paraplegia, and Myelomeningocele.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Arizona Community Physicians PC

      1866 E Innovation Park Dr, 
      Oro Valley, AZ 
       (12.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Christiane Sanburn is a primary care provider, practicing in Family Medicine in Oro Valley, Arizona. Dr. Sanburn is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), West Syndrome, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Showing 1-7 of 7

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Tucson, AZ?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Tucson, AZ?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Tucson, AZ?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Tucson, AZ?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Tucson, AZ?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Tucson, AZ?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Tucson, AZ?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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