The 20 Best Dysferlinopathy Doctors Near Me in Wilmington, DE

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 13 doctor with experience in Dysferlinopathy near Wilmington, DE. Of these, 9 are Experienced and 4 are Advanced.

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13 providers found
    Experienced in Dysferlinopathy
    Pediatrics | Internal Medicine
    Experienced in Dysferlinopathy
    Pediatrics | Internal Medicine

    Transitional Care Practice Special Needs

    501 West 14th Tctrcr Street, Wilmington Hospital Health Center, 
    Wilmington, DE 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Neal Emery is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Emery is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Autism Spectrum Disorder, Down Syndrome, and Sickle Cell Disease.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (2.4 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English

    Andrew Mower is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 25 years. Dr. Mower is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Seizures, Absence Seizure, Generalized Tonic-Clonic Seizure, and West Syndrome. Dr. Mower is board certified in American Board Of Psychiatry & Neurology.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (2.4 miles away)
    Languages Spoken:
    English, Mandarin

    I find inspiration in the motivation and optimism of my patients. Most kids I treat have complex medical needs or physical disabilities. I see my role as helpingeach child function to the best of his or her ability, removing barriers, and opening up opportunities for socialization and personal fulfillment. I want my patients to be able to enjoy the same ordinary and extraordinary life experiences as other kids. I had planned to become a general pediatrician until I fell in love with pediatric physical medicine and rehabilitation (PM&R). My father, a PM&R doctor, encouraged me to rotate through his subspecialty as a medical school rotation. I never could have anticipated that this residency experience would lead me to change my career path. Now, as an attending physician in pediatric PM&R, I take every opportunity to introduce residents and medical students to the field and train them. Most arrive here intending to pursue a career working with adult patients. After spending two months training alongside my colleagues and me, many have changed their career paths to focus exclusively on caring for kids. I build relationships with my patients by showing an interest in their lives outside of their medical needs. I talk with them and ask questions about things that are important to them, like their favorite toys, TV shows or activities. I try to see them for the unique human beings they are and build a sense of trust. Building a strong relationship helps me to better understand my patients and what is most important to them. This allows me to give the right support and help each one work toward reaching his or her goals and dreams. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Concussion, Neurogenic Bowel, and Osteotomy. Dr. Shieh is board certified in American Board Of Physical Medicine & Rehabilitation.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (2.4 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Manish Kumar is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 12 years. Dr. Kumar is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Dysferlinopathy, Duchenne Muscular Dystrophy, Migraine, Miyoshi Myopathy, and Osteotomy. Dr. Kumar is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Christiana Care Health Services Inc

    501 W 14th St, 
    Wilmington, DE 
     (0.5 miles away)
    Languages Spoken:
    English

    Mark Trochimowicz is a primary care provider, practicing in Family Medicine in Wilmington, Delaware. Dr. Trochimowicz is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Transitional Care Practice Special Needs

    501 West 14th Tctrcr Street, Wilmington Hospital Health Center, 
    Wilmington, DE 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Tracey Petrides is a primary care provider, practicing in Family Medicine in Wilmington, Delaware. Dr. Petrides is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Moebius Syndrome, Down Syndrome, Cerebral Palsy, and Autism Spectrum Disorder.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Nemours Children's Hospital Delaware

    1600 Rockland Rd, 
    Wilmington, DE 
     (2.4 miles away)
    Languages Spoken:
    English

    Mena Scavina is a Neurologist practicing medicine in Wilmington, Delaware. Dr. Scavina is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Primary Lateral Sclerosis, and Dysferlinopathy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (2.4 miles away)
    Experience:
    45+ years
    Languages Spoken:
    English

    Brian White is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 45 years. Dr. White is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Papilledema, Agnosia, Strabismus, and Color Blindness. Dr. White is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Douglas B. Gersh MD. LLC

    774 Christiana Rd Ste 201, 
    Newark, DE 
     (10.1 miles away)
    Languages Spoken:
    English

    Yadira Velazquez is a Neurologist practicing medicine in Newark, Delaware. Dr. Velazquez is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Spasticity, Peripheral Neuropathy, and Chronic Inflammatory Demyelinating Polyneuropathy.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    Penn Neurology Kennett Square

    404 McFarlan Road, Suite 101, 
    Kennett Square, PA 
     (10.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Seth Haplea is a Neurologist practicing medicine in Kennett Square, Pennsylvania. Dr. Haplea is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Epilepsy, Seizures, and Essential Tremor. Dr. Haplea is board certified in Clinical Neurophysiology, 1999 and Neurology, 1998. Dr. Haplea is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Christiana Care Neurology Specialists

    200 Hygeia Dr Ste 1420, 
    Newark, DE 
     (10.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sandeep Devarapalli is a Neurologist practicing medicine in Newark, Delaware. Dr. Devarapalli is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Myasthenia Gravis, Cramp-Fasciculation Syndrome, and Sensorimotor Polyneuropathy.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Penn Primary Care Kennett Square

    402 McFarlan Road, Suite 102, 
    Kennett Square, PA 
     (10.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Martha Brinsfield is a primary care provider, practicing in Family Medicine in Kennett Square, Pennsylvania. Dr. Brinsfield is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, High Cholesterol, and Infant Hyperglycemia. Dr. Brinsfield is board certified in Family Medicine, 1999.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Penn Internal Medicine Westtown

    200 Willowbrook Lane, Suite 210, 
    West Chester, PA 
     (13.8 miles away)
    Languages Spoken:
    English

    John Walsh is a primary care provider, practicing in Internal Medicine in West Chester, Pennsylvania. Dr. Walsh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Sciatica, Familial Hypertension, and Hypertension. Dr. Walsh is board certified in Internal Medicine, 1992.

    Showing 1-13 of 13

    Last Updated: 04/28/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Wilmington, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Wilmington, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Wilmington, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Wilmington, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Wilmington, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Wilmington, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Wilmington, DE?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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