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    Last Updated: 10/30/2025

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    MediFind found 7 doctor with experience in Dysferlinopathy near Worcester, MA. Of these, 4 are Experienced and 3 are Advanced.

    Location
    LocationClose
    7 providers found
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
       (2.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lawrence Hayward is a Neurologist in Worcester, Massachusetts. Dr. Hayward is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hyperkalemic Periodic Paralysis, Familial Periodic Paralysis, Facioscapulohumeral Muscular Dystrophy (FSHD), and Dysferlinopathy. Dr. Hayward is currently accepting new patients.

      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
       (2.5 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Brenda Wong is a Pediatric Neurologist and a Pediatrics provider in Worcester, Massachusetts. Dr. Wong is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Dysferlinopathy, and Limb-Girdle Muscular Dystrophy. Dr. Wong is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Worcester Internal Medicine, Inc.

      416 Belmont St, Suite 1, 
      Worcester, MA 
       (2.3 miles away)
      Languages Spoken:
      English

      Bogdan Nedelescu is a primary care provider, practicing in Internal Medicine in Worcester, Massachusetts. Dr. Nedelescu is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dementia, Pneumonia, Necrosis, Endoscopy, and Hip Replacement.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
       (2.5 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Margaret Owegi is a Neurologist in Worcester, Massachusetts. Dr. Owegi has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Paramyotonia Congenita. Dr. Owegi is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
       (2.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lan Qin is a Neurologist in Worcester, Massachusetts. Dr. Qin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Familial Dysautonomia, Myasthenia Gravis, Peripheral Neuropathy, and Adrenoleukodystrophy (ALD). Dr. Qin is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Umass Memorial Medical Group Inc

      55 Lake Ave N, 
      Worcester, MA 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Bruce Rosen is a primary care provider, practicing in Internal Medicine in Worcester, Massachusetts. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Type 2 Diabetes (T2D), Chronic Cough, Maturity Onset Diabetes of the Young, and Familial Hypertension.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Umass Memorial Medical Group Inc

      157 Union St, 
      Marlborough, MA 
       (14.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kate Daniello is a Neurologist in Marlborough, Massachusetts. Dr. Daniello is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Horizontal Gaze Palsy with Progressive Scoliosis, Progressive External Ophthalmoplegia, Glycogen Storage Disease Type 5, and Myasthenia Gravis. Dr. Daniello is currently accepting new patients.

      Showing 1-7 of 7

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Worcester, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Worcester, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Worcester, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Worcester, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Worcester, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Worcester, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Worcester, MA?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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