The 20 Best Dysferlinopathy Doctors Near Me in boston, MA

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 34 doctor with experience in Dysferlinopathy near boston, MA. Of these, 30 are Experienced and 4 are Advanced.

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34 providers found
    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    Brigham And Womens Hospital

    75 Francis St, 
    Boston, MA 
     (2.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Anthony Amato is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Amato is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is board certified in Neurology, 1991 and Neuromuscular Medicine, 2008. Dr. Amato is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
     (2.7 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Aimee Boegle is a Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Boegle is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Boegle is board certified in American Board Of Psychiatry And Neurology. Dr. Boegle is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English, Hindi, Tamil
    Accepting New Patients
    Offers Telehealth

    Pushpa Narayanaswami is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Narayanaswami is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Limb-Girdle Muscular Dystrophy, Polymyositis, Primary Lateral Sclerosis, and Thymectomy. Dr. Narayanaswami is board certified in American Board Of Psychiatry And Neurology. Dr. Narayanaswami is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elizabeth Raynor is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Raynor is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Post Polio Syndrome, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Raynor is board certified in American Board Of Psychiatry And Neurology and American Board Of Clinical Neurophysiology. Dr. Raynor is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Seward Rutkove is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Rutkove is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Orchiectomy. Dr. Rutkove is board certified in American Board Of Psychiatry And Neurology. Dr. Rutkove is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
     (2.7 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Courtney Mcilduff is a Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Mcilduff is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Peripheral Neuropathy, and Herpes Simplex Encephalitis. Dr. Mcilduff is board certified in American Board Of Psychiatry And Neurology and American Board Of Clinical Neurophysiology. Dr. Mcilduff is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Partha Ghosh is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ghosh is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Congenital Myasthenic Syndrome, Becker Muscular Dystrophy, and Amyotonia Congenita. Dr. Ghosh is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Beth Israel Deaconess Medical Center

    One Brookline Place, 
    Brookline, MA 
     (3.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Suzanne Salamon is a primary care provider, practicing in Internal Medicine in Brookline, Massachusetts. Dr. Salamon is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Primary Intestinal Lymphangiectasia, Meige Disease, and Heart Failure. Dr. Salamon is board certified in American Board Of Internal Medicine. Dr. Salamon is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
     (0.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Elisabeth Wilder is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Wilder is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Lung Metastases, Gallstones, Gallbladder Disease, and Nemaline Myopathy. Dr. Wilder is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    55 Fruit St Ste 835, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Doreen Ho is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Cramp-Fasciculation Syndrome, Myasthenia Gravis, and Gastrostomy. Dr. Ho is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Medical Infusion Center In Charles River Plaza

    165 Cambridge St Fl 8, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Paloma Gonzalez-Perez is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Gonzalez-Perez is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Gonzalez-Perez is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Carlos Fernandez-Del Castillo MD

    15 Parkman St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Leigh Simmons is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Simmons is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Necrotizing Vasculitis, Trigeminal Neuralgia, Sciatica, Colonoscopy, and Endoscopy. Dr. Simmons is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Tufts Medical Center Neurology + Cerebrovascular Diseases

    260 Tremont St Bldg 12TH Fl 12, 
    Boston, MA 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mithila Vullaganti is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Vullaganti is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Stroke, Stent Placement, and Transmyocardial Revascularization. Dr. Vullaganti is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology
    Referral may be required

    Tufts Medical Center Neurology + Cerebrovascular Diseases

    260 Tremont St Bldg 12TH Fl 12, 
    Boston, MA 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Taha Bali is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Bali is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Transmyocardial Revascularization, and Stent Placement. Dr. Bali is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    East Boston Neighborhd Health

    10 Gove St, 
    East Boston, MA 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    James Mccann-Iii is a primary care provider, practicing in Internal Medicine in East Boston, Massachusetts. Dr. Mccann-Iii is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Emery-Dreifuss Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and Miyoshi Myopathy. Dr. Mccann-Iii is currently accepting new patients.

    Experienced in Dysferlinopathy
    Geriatrics | Internal Medicine
    Experienced in Dysferlinopathy
    Geriatrics | Internal Medicine
    Referral may be required

    Evans Medical Foundation Inc

    1 Boston Medical Ctr Pl, 
    Boston, MA 
     (1.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Irina Vovnoboy is a primary care provider, practicing in Geriatrics and Internal Medicine in Boston, Massachusetts. Dr. Vovnoboy is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her clinical expertise encompasses Vascular Dementia, Thrush, Painful Swallowing, and Swallowing Difficulty.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Atrius Health Inc.

    133 Brookline Ave, 
    Boston, MA 
     (2.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kathy Chuang is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Chuang is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Brachial Plexopathy, Thoracic Outlet Syndrome, Distal Median Nerve Dysfunction, and Foot Drop. Dr. Chuang is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Brigham And Womens Physicians Organization Inc

    75 Francis St, 
    Boston, MA 
     (2.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vijay Ganesh is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ganesh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Polymicrogyria, Cortical Dysplasia, Pontocerebellar Hypoplasia, and Gastrostomy. Dr. Ganesh is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology
    Referral may be required

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Yoon Cho is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Cho is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Opsoclonus-Myoclonus Syndrome, Migraine with Brainstem Aura, Foot Drop, and Migraine. Dr. Cho is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    General Hospital Corp

    300 Ocean Ave, 
    Revere, MA 
     (4.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marie Pasinski is a Neurologist practicing medicine in Revere, Massachusetts. Dr. Pasinski is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Memory Loss, Seizures, and Dementia. Dr. Pasinski is currently accepting new patients.

    Showing 1-20 of 34

    Last Updated: 09/26/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near boston, MA?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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