The 20 Best Dysferlinopathy Doctors Near Me in Minnesota, US

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 41 doctor with experience in Dysferlinopathy near Minnesota, US. Of these, 33 are Experienced, 6 are Advanced and 2 are Distinguished.

Location
LocationClose
41 providers found
    Distinguished in Dysferlinopathy
    Distinguished in Dysferlinopathy
    Referral may be required

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jill Gettings is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 71 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Fukuyama Type Muscular Dystrophy, Walker-Warburg Syndrome, and Miyoshi Myopathy.

    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Randal Richardson is a Neuromusculoskeletal Medicine provider practicing medicine in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Distal Myopathy 2, and X-Linked Dominant Scapuloperoneal Myopathy.

    Advanced in Dysferlinopathy
    Family Medicine
    Advanced in Dysferlinopathy
    Family Medicine

    Essentia Health St. Joseph's-Baxter Clinic

    13060 Isle Dr, 
    Baxter, MN 
    Languages Spoken:
    English

    Jared Reese is a primary care provider, practicing in Family Medicine in Baxter, Minnesota. Dr. Reese is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Ankylosing Vertebral Hyperostosis with Tylosis, Diffuse Idiopathic Skeletal Hyperostosis, and WT1-Related Wilms Tumor Syndromes.

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral required

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Margherita Milone is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Milone is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Necrotizing Myopathy (NM), Nemaline Myopathy, Progressive External Ophthalmoplegia, and Tubular Aggregate Myopathy. Dr. Milone is board certified in MN State Medical License 2003-2023.

    Experienced in Dysferlinopathy
    Internal Medicine | Pediatrics
    Experienced in Dysferlinopathy
    Internal Medicine | Pediatrics

    HealthPartners Clinic St. Paul Como

    2500 Como Ave, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    I'm an internal medicine-pediatrics doctor practicing in primary care, which means I see people of all ages in the office for preventive care and treatment of common medical conditions like diabetes and high blood pressure. I enjoy establishing long-term relationships with my patients. My goal for each visit is to present my patients with multiple treatment options and help them make decisions tailored to their individual needs. Dr. Munck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her clinical expertise encompasses Fetal Alcohol Syndrome (FAS), Pachydermoperiostosis, and Dysferlinopathy. Dr. Munck is board certified in American Board Of Internal Medicine and American Board Of Pediatrics.

    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology | Pediatric Neurology
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology | Pediatric Neurology
    Referral may be required

    M Health Fairview Discovery Pediatric Specialty Clinic

    2512 South 7th Street, Floor 3, 
    Minneapolis, MN 
    Languages Spoken:
    English, Russian
    Accepting New Patients
    Offers Telehealth

    Peter Karachunski is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Karachunski is board certified in Neuromuscular Medicine: American Board Of Psychiatry And Neurology, 2008. Dr. Karachunski is currently accepting new patients.

    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Referral may be required

    M Health Fairview EMG Clinic Minneapolis

    909 Fulton Street Southeast, Floor 3, 
    Minneapolis, MN 
    Languages Spoken:
    English, Greek
    Accepting New Patients
    Offers Telehealth

    Georgios Manousakis is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Minneapolis, Minnesota. Dr. Manousakis is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Manousakis is board certified in Neuromuscular Medicine: American Board Of Psychiatry And Neurology, 2011 and Neurology: American Board Of Psychiatry And Neurology, 2010. Dr. Manousakis is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English, Hindi, Kanarese, Marathi
    Accepting New Patients

    Supreet Deshpande is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spasticity, Moebius Syndrome, CHARGE Syndrome, and Rhizotomy. Dr. Deshpande is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Jamie Eskuri is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Eskuri is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Duchenne Muscular Dystrophy, Myotonia Congenita, and Paramyotonia Congenita.

    Advanced in Dysferlinopathy
    Pediatrics
    Advanced in Dysferlinopathy
    Pediatrics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Mark Gormley is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Gormley is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Focal Dystonia.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics
    Referral may be required

    Sanford Bemidji Orthopedics &Amp; Sports Medicine Center

    1300 Anne St. NW., 
    Bemidji, MN 
    Languages Spoken:
    English

    Dr. Kevin Murphy specializes in physical medicine and rehabilitation services for children with physical disabilities and adults with childhood-onset conditions. Dr. Murphy is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Gorlin-Chaudhry-Moss Syndrome, Hemiplegia, and Spastic Diplegia Infantile Type. Dr. Murphy is board certified in American Board Of Physical Medicine And Rehabilitation: Pediatric Rehabilitation MedicineAmerican Board Of Physical Medicine And Rehabilitation.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Sanford Bemidji Main Clinic

    1233 34th St. NW., 
    Bemidji, MN 
    Languages Spoken:
    English

    William Muller, MD, is a family medicine doctor who is trained in all the major areas of family medicine. Dr. Muller is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Maturity Onset Diabetes of the Young. Dr. Muller is board certified in American Board Of Family Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    501 E Nicollet Blvd Ste 100, 
    Burnsville, MN 
    Languages Spoken:
    English

    Leland Scott is a Neurologist practicing medicine in Burnsville, Minnesota. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Polymyositis, Lambert-Eaton Syndrome, and Stiff Person Syndrome.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    400 E 3rd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Amber Erickson is a Neurologist practicing medicine in Duluth, Minnesota. Dr. Erickson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy with Arthrogryposis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Chromosome 6 Uniparental Disomy, and Mosaic Variegated Aneuploidy Syndrome.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology
    Referral may be required

    Essentia Health St. Joseph's-Brainerd Clinic

    2024 S 6th St, 
    Brainerd, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Anh Nguyen is a Neurologist practicing medicine in Brainerd, Minnesota. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Seizures, Peripheral Neuropathy, Epilepsy, and Memory Loss. Dr. Nguyen is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Essentia Health-Duluth Clinic 3rd Street (Building F)

    400 E 3rd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Forsman is a Pediatrics provider practicing medicine in Duluth, Minnesota. Dr. Forsman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Hemiplegia, and Spasticity. Dr. Forsman is currently accepting new patients.

    Experienced in Dysferlinopathy
    Physiatry
    Experienced in Dysferlinopathy
    Physiatry
    Referral may be required

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English

    John Fox is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Rett Syndrome.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Allina Health Heart Hospital Pharmacy

    920 E 28th St, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Tetzlaff is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Tetzlaff is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Lennox-Gastaut Syndrome (LGS), Endoscopy, and Pacemaker Implantation.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Hennepin Healthcare - Minneapolis

    715 South 8th Street, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Adam Loavenbruck is a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Loavenbruck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Dopamine Beta-Hydroxylase Deficiency, Familial Dysautonomia, Peripheral Neuropathy, and Cold-Induced Sweating Syndrome. Dr. Loavenbruck is currently accepting new patients.

    Showing 1-20 of 41

    Last Updated: 06/30/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors in Minnesota, US?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Dysferlinopathy Doctors by city