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    Last Updated: 10/30/2025

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    MediFind found 22 doctor with experience in Dysferlinopathy near Minneapolis, MN. Of these, 16 are Experienced, 4 are Advanced and 2 are Distinguished.

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    LocationClose
    22 providers found
      Advanced in Dysferlinopathy
      Child and Adolescent Psychiatry | Pediatrics | Neurology
      Advanced in Dysferlinopathy
      Child and Adolescent Psychiatry | Pediatrics | Neurology

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English, Russian
      Accepting New Patients

      Peter Karachunski is a Child and Adolescent Psychiatrist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Karachunski is currently accepting new patients.

      Distinguished in Dysferlinopathy
      Pediatric Neurology | Neurology
      Distinguished in Dysferlinopathy
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Walker-Warburg Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Richardson is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
       (9.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Oculopharyngeal Muscular Dystrophy. Dr. Gettings is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Hennepin Healthcare - Minneapolis

      715 South 8th Street, 
      Minneapolis, MN 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adam Loavenbruck is a Neurologist in Minneapolis, Minnesota. Dr. Loavenbruck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dopamine Beta-Hydroxylase Deficiency, Familial Dysautonomia, Peripheral Neuropathy, and Cold-Induced Sweating Syndrome. Dr. Loavenbruck is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Matthias Zinn is a Pediatric Neurologist and a Neurologist in Minneapolis, Minnesota. Dr. Zinn is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Zika Virus Disease, Microcephaly with Spastic Quadriplegia, Microcephaly, and Seizures.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Allina Health System

      800 E 28th St, Suite H2100, 
      Minneapolis, MN 
       (1.7 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Christopher Bowron is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Bowron is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Chromosome 11 Uniparental Disomy, Endoscopy, and Ureteroscopy. Dr. Bowron is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Allina Health System

      800 E 28th St, Suite 1750, 
      Minneapolis, MN 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Beck is a Physiatrist in Minneapolis, Minnesota. Dr. Beck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Troyer Syndrome, Spastic Paraplegia Type 11, L1 Syndrome, and Spastic Paraplegia Type 7. Dr. Beck is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Allina Health System

      2925 Chicago Ave, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Tetzlaff is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Tetzlaff is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Lennox-Gastaut Syndrome (LGS), Endoscopy, and Pacemaker Implantation. Dr. Tetzlaff is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Allina Health System

      2925 Chicago Ave, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angela Noble is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Noble is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Moebius Syndrome, Cerebral Palsy, Lennox-Gastaut Syndrome (LGS), Crohn's Disease, and Endoscopy. Dr. Noble is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      2635 University Ave W, Mail Stop 13901b Suite 160, 
      Saint Paul, MN 
       (3.0 miles away)
      Languages Spoken:
      English

      Sudha Chadalawada is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Chadalawada is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Chronic Cough, and Glucocorticoid-Remediable Aldosteronism.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Group Health Plan Inc

      2500 Como Ave, 
      Saint Paul, MN 
       (3.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Katherine Munck is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Munck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Fetal Alcohol Syndrome (FAS), Pachydermoperiostosis, and Dysferlinopathy. Dr. Munck is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English, Hindi, Kanarese, Marathi
      Accepting New Patients

      Supreet Deshpande is a Physiatrist in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Spasticity, Moebius Syndrome, and CHARGE Syndrome. Dr. Deshpande is currently accepting new patients.

      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jamie Eskuri is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Eskuri is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, Myotonia Congenita, and Paramyotonia Congenita. Dr. Eskuri is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mark Gormley is a Physiatrist in Saint Paul, Minnesota. Dr. Gormley is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Spasticity, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Gormley is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Tori Bahr is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Tetrasomy 9p, and Chromosome 6 Uniparental Disomy. Dr. Bahr is currently accepting new patients.

      Experienced in Dysferlinopathy
      Physiatry
      Experienced in Dysferlinopathy
      Physiatry

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      John Fox is a Physiatrist in Saint Paul, Minnesota. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Rett Syndrome. Dr. Fox is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English

      Carla Grosmann is a Neurologist in Saint Paul, Minnesota. Dr. Grosmann is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Horizontal Gaze Palsy with Progressive Scoliosis, Benign Autosomal Dominant Myopathy, and Duchenne Muscular Dystrophy.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Micah Niermann is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Niermann is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Necrotizing Granuloma, and Spinal Muscular Atrophy with Arthrogryposis. Dr. Niermann is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Peter Ladner is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Ladner is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Down Syndrome, and Chromosome 2 Uniparental Disomy. Dr. Ladner is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Peter Melchert is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Melchert is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Moebius Syndrome, Cerebral Palsy, Rett Syndrome, and Ablepharon Macrostomia Syndrome. Dr. Melchert is currently accepting new patients.

      Showing 1-20 of 22

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Minneapolis, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Minneapolis, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Minneapolis, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Minneapolis, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Minneapolis, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Minneapolis, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Minneapolis, MN?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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