The 20 Best Dysferlinopathy Doctors Near Me in North Carolina, US

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 35 doctor with experience in Dysferlinopathy near North Carolina, US. Of these, 27 are Experienced, 7 are Advanced and 1 are Distinguished.

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35 providers found
    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Levine Children's Hospital

    1000 Blythe Blvd., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dukjin Im is a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Im is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Walker-Warburg Syndrome. Dr. Im is board certified in American Board Of Physical Medicine And Rehabilitation and American Board Of Physical Medicine And Rehabilitation, Pediatric Rehabilitation Medicine. Dr. Im is currently accepting new patients.

    Distinguished in Dysferlinopathy
    Sleep Medicine | Neuromusculoskeletal Medicine
    Distinguished in Dysferlinopathy
    Sleep Medicine | Neuromusculoskeletal Medicine

    Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

    1010 Edgehill Road N., 
    Charlotte, NC 
    Languages Spoken:
    English, Gujarati , Hindi
    Accepting New Patients
    Offers Telehealth

    Urvi Desai is a Neuromusculoskeletal Medicine specialist and a Sleep Medicine provider practicing medicine in Charlotte, North Carolina. Dr. Desai is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Dysferlinopathy, and Facioscapulohumeral Muscular Dystrophy (FSHD). Dr. Desai is currently accepting new patients.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Atrium Health Primary Care One Health Family Medicine

    11530 Providence Road, Suite 2300, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jay Patel is a primary care provider, practicing in Family Medicine in Charlotte, North Carolina. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Patel is board certified in American Board Of Family Medicine. Dr. Patel is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine

    Novant Health Neurology - Doctors Circle (Building C)

    1509 Doctors Circle, Building C, 
    Wilmington, NC 
    Experience:
    16+ years
    Languages Spoken:
    English
    Offers Telehealth

    Alyson Hommel is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Wilmington, North Carolina. She has been practicing medicine for over 16 years. Dr. Hommel is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Dysferlinopathy, and Facioscapulohumeral Muscular Dystrophy (FSHD). Dr. Hommel is board certified in Neurology.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    37+ years
    Languages Spoken:
    English
    Offers Telehealth

    Vern Juel is a Neurologist practicing medicine in Durham, North Carolina. He has been practicing medicine for over 37 years. Dr. Juel is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 71 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy. Dr. Juel is board certified in American Board Of Psychiatry/Neurology, Clinical Neurophysiology , American Board Of Psychiatry/Neurology, Neurology , and American Board Of Psychiatry/Neurology, Neuromuscular Medicine.

    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine

    Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

    1010 Edgehill Road N., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Story is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Charlotte, North Carolina. Dr. Story is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Story is currently accepting new patients.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Natalie Katz is a Pediatrics provider practicing medicine in Durham, North Carolina. She has been practicing medicine for over 10 years. Dr. Katz is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Dysferlinopathy, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis. Dr. Katz is board certified in American Board Of Psychiatry/Neurology, Neurology With Special Qualifications In Child Neurology.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    25+ years
    Languages Spoken:
    English
    Offers Telehealth

    Lisa Hobson is a Neurologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 25 years. Dr. Hobson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Hypokalemic Periodic Paralysis. Dr. Hobson is board certified in American Board Of Psychiatry/Neurology, Neurology and American Board Of Psychiatry/Neurology, Neuromuscular Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Karissa Gable is a Neurologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 17 years. Dr. Gable is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, Chronic Polyradiculoneuritis, and Post Polio Syndrome. Dr. Gable is board certified in American Board Of Psychiatry/Neurology, Neurology and American Board Of Psychiatry/Neurology, Neuromuscular Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    11+ years
    Languages Spoken:
    English
    Offers Telehealth

    I have dedicated my professional life to treating patients with neuromuscular disorders. These include neuropathy (GBS, CIDP), myopathy, Myasthenia Gravis, and ALS. I incorporate the use of electromyography (EMG), whenever appropriate, to help diagnosis my patients and start proper therapy. My greatest satisfaction as a doctor is helping patients improve and forming lasting relationships. I want my patients to feel like they are not alone navigating their disease and know I will be there for them every step of the way. Duke Health is truly a world-class institution. Dr. Mayberry is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Stiff Person Syndrome, Coenzyme Q Cytochrome C Reductase Deficiency, Mitochondrial Complex 1 Deficiency, and Mitochondrial Trifunctional Protein Deficiency. Dr. Mayberry is board certified in American Board Of Psychiatry/Neurology, Neurology and American Board Of Psychiatry/Neurology, Neuromuscular Medicine.

    Experienced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Experienced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine

    Atrium Health Neurology Specialty Care, A Facility Of Carolinas Medical Center

    1010 Edgehill Road N., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Leo Mccluskey is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Charlotte, North Carolina. Dr. Mccluskey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Mccluskey is board certified in American Board Of Psychiatry And Neurology, Neuromuscular Medicine and American Board Of Electrodiagnostic Medicine. Dr. Mccluskey is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Carolinas Rehabilitation Charlotte

    1100 Blythe Blvd., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    William Bockenek is a Physiatrist practicing medicine in Charlotte, North Carolina. Dr. Bockenek is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Post Polio Syndrome, Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA). Dr. Bockenek is board certified in American Board Of Physical Medicine And Rehabilitation and American Board Of Physical Medicine And Rehabilitation, Spinal Cord Injury Medicine. Dr. Bockenek is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine
    Experienced in Dysferlinopathy
    Neurology | Neuromusculoskeletal Medicine

    Novant Health Neurology - Doctors Circle (Building C)

    1509 Doctors Circle, Building C, 
    Wilmington, NC 
    Experience:
    16+ years
    Languages Spoken:
    English
    Offers Telehealth

    Karrie Grear is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Wilmington, North Carolina. She has been practicing medicine for over 16 years. Dr. Grear is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Migraine, Multiple Sclerosis (MS), and Myasthenia Gravis. Dr. Grear is board certified in Neurology.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Duke Electromyography Laboratory - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    48+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a neuromuscular medicine specialist with specific expertise in neuromuscular junction disorders, such as myasthenia gravis and Lambert-Eaton myasthenic syndrome. I also perform electrodiagnostic testing: EMG, Repetitive nerve stimulation studies, Single fiber electromyography, and EMG-guided chemo-denervation. Additionally, I teach neuromuscular fellows these techniques and lecture nationally and internationally on these diseases and techniques. Dr. Massey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Lambert-Eaton Syndrome, Drug Induced Dyskinesia, Meige Syndrome, and Thymectomy. Dr. Massey is board certified in American Board Of Psychiatry/Neurology, Neuromuscular Medicine and American Board Of Psychiatry/Neurology, Neurology.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Atrium Health Wake Forest Baptist

    S Hawthorne Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English

    James Caress is a Neurologist practicing medicine in Winston Salem, North Carolina. Dr. Caress is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Atrium Health Wake Forest Baptist

    S Hawthorne Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Cartwright is a Neurologist practicing medicine in Winston Salem, North Carolina. Dr. Cartwright is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA).

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Office

    300 Meadowmont Village Cir, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Andrea Corse is a Neurologist practicing medicine in Chapel Hill, North Carolina. Dr. Corse is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 95 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Cytoplasmic Body Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Myositis.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Anahit Mehrabyan is a Neurologist practicing medicine in Chapel Hill, North Carolina. Dr. Mehrabyan is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, VEXAS Syndrome, Inclusion Body Myositis, and Dysferlinopathy.

    Advanced in Dysferlinopathy
    Internal Medicine
    Advanced in Dysferlinopathy
    Internal Medicine

    Carolinas Healthcare System

    1010 Edgehill Rd N, 
    Charlotte, NC 
    Languages Spoken:
    English

    Benjamin Brooks is an Internal Medicine provider practicing medicine in Charlotte, North Carolina. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, and Gastrostomy.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Duke Primary Care Timberlyne

    77 Vilcom Center Dr, 
    Chapel Hill, NC 
    Experience:
    27+ years
    Languages Spoken:
    English, French
    Offers Telehealth

    I’ve always enjoyed interacting with people, and I feel like it is a privilege to care for them at this level. I take pride in the fact that I can usually make people feel very comfortable. I also feel that as a physician I am able to empower my patients to take care of themselves. It’s a group effort. I really enjoy seeing children. I probably have one of the bigger pediatric populations in my practice. I enjoy seeing families and watching kids grow up. Before I started here, I was in private practice in Florida for more than five years. My wife and I moved back to the area when she was pregnant with our first child, because this is the area in which we wanted to raise a family. It’s a wonderful place for young families and children. Dr. Huin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Familial Hypertension, and Hypertension. Dr. Huin is board certified in American Board Of Family Medicine, Family Medicine.

    Showing 1-20 of 35

    Last Updated: 04/28/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors in North Carolina, US?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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