Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 14 doctor with experience in Dysferlinopathy near Durham, NC. Of these, 11 are Experienced and 3 are Advanced.

    Location
    LocationClose
    14 providers found
      Vern C. Juel
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel has been practicing medicine for over 37 years and is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Lisa D. Hobson
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      25+ years
      Languages Spoken:
      English
      Offers Telehealth

      Lisa Hobson is a Neurologist in Durham, North Carolina. Dr. Hobson has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Andersen-Tawil Syndrome.

      Karissa L. Gable
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Karissa Gable is a Neurologist in Durham, North Carolina. Dr. Gable has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, Chronic Polyradiculoneuritis, and Post Polio Syndrome.

      Learn about our expert tiers
      Jordan L. Mayberry
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Offers Telehealth

      I have dedicated my professional life to treating patients with neuromuscular disorders. These include neuropathy (GBS, CIDP), myopathy, Myasthenia Gravis, and ALS. I incorporate the use of electromyography (EMG), whenever appropriate, to help diagnosis my patients and start proper therapy. My greatest satisfaction as a doctor is helping patients improve and forming lasting relationships. I want my patients to feel like they are not alone navigating their disease and know I will be there for them every step of the way. Duke Health is truly a world-class institution. Dr. Mayberry is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Stiff Person Syndrome, Mitochondrial Complex 1 Deficiency, Coenzyme Q Cytochrome C Reductase Deficiency, and Mitochondrial Trifunctional Protein Deficiency.

      Janice M. Massey
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
       (2.1 miles away)
      Experience:
      48+ years
      Languages Spoken:
      English
      Offers Telehealth

      I am a neuromuscular medicine specialist with specific expertise in neuromuscular junction disorders, such as myasthenia gravis and Lambert-Eaton myasthenic syndrome. I also perform electrodiagnostic testing: EMG, Repetitive nerve stimulation studies, Single fiber electromyography, and EMG-guided chemo-denervation. Additionally, I teach neuromuscular fellows these techniques and lecture nationally and internationally on these diseases and techniques. Dr. Massey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Drug Induced Dyskinesia, Meige Syndrome, and Thymectomy.

      Natalie Katz
      Experienced in Dysferlinopathy
      Pediatrics
      Experienced in Dysferlinopathy
      Pediatrics

      Lenox Baker Children's Hospital

      3000 Erwin Rd, 
      Durham, NC 
       (2.9 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Offers Telehealth

      Natalie Katz is a Pediatrics provider in Durham, North Carolina. Dr. Katz has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Spinal Muscular Atrophy with Arthrogryposis, and Spinal Muscular Atrophy Type 2.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Trent Drive, Dumc 2095, 03101 Orange Zone, South Clinics, 
      Durham, NC 
       (2.1 miles away)
      Languages Spoken:
      English

      Jeffrey Guptill is a Neurologist in Durham, North Carolina. Dr. Guptill is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Chronic Polyradiculoneuritis, Chronic Inflammatory Demyelinating Polyneuropathy, and Thymectomy.

      Racheal Tushabe
      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Duke Primary Care Sage Road Internal Medicine

      201 Sage Rd, 
      Chapel Hill, NC 
       (7.1 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      I treat adult patients with a broad range of clinical ailments and obesity. I particularly enjoy disease prevention and geriatrics. My approach to care is holistic, respectful, patient-centered, and guided by science. I strongly believe in the prevention of disease whenever possible. I enjoy seeing patients, getting to know them well, and helping them to achieve their desired goals. Dr. Tushabe is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Endocarditis, Renovascular Hypertension, Atherosclerosis, and Coronary Heart Disease.

      Alexandre W. Huin
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Duke Primary Care Timberlyne

      77 Vilcom Center Dr, 
      Chapel Hill, NC 
       (8.7 miles away)
      Experience:
      27+ years
      Languages Spoken:
      English, French
      Offers Telehealth

      I’ve always enjoyed interacting with people, and I feel like it is a privilege to care for them at this level. I take pride in the fact that I can usually make people feel very comfortable. I also feel that as a physician I am able to empower my patients to take care of themselves. It’s a group effort. I really enjoy seeing children. I probably have one of the bigger pediatric populations in my practice. I enjoy seeing families and watching kids grow up. Before I started here, I was in private practice in Florida for more than five years. My wife and I moved back to the area when she was pregnant with our first child, because this is the area in which we wanted to raise a family. It’s a wonderful place for young families and children. Dr. Huin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Corse is a Neurologist in Chapel Hill, North Carolina. Dr. Corse is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Cytoplasmic Body Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Myositis. Dr. Corse is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Anahit Mehrabyan is a Neurologist in Chapel Hill, North Carolina. Dr. Mehrabyan is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, VEXAS Syndrome, Inclusion Body Myositis, and Dysferlinopathy. Dr. Mehrabyan is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rebecca Traub is a Neurologist in Chapel Hill, North Carolina. Dr. Traub is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Familial Transthyretin Amyloidosis, Sensorimotor Polyneuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Chronic Demyelinizing Neuropathy with IgM Monoclonal. Dr. Traub is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Medical Genetics | Neurology
      Experienced in Dysferlinopathy
      Pediatrics | Medical Genetics | Neurology

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Zheng Fan is a Pediatrics specialist and a Medical Genetics provider in Chapel Hill, North Carolina. Dr. Fan is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Angelman Syndrome, Obstructive Sleep Apnea, Central Sleep Apnea, and Primary Lateral Sclerosis. Dr. Fan is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vinay Chaudhry is a Neurologist in Chapel Hill, North Carolina. Dr. Chaudhry is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Advanced Bronchoscopy. Dr. Chaudhry is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Durham, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Durham, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Durham, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Durham, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Durham, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Durham, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Durham, NC?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Dysferlinopathy Doctors by city