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    Last Updated: 10/30/2025

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    MediFind found 29 doctor with experience in Dysferlinopathy near Cleveland, OH. Of these, 27 are Experienced and 2 are Advanced.

    Location
    LocationClose
    29 providers found
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      The Metrohealth System

      2500 Metrohealth Dr, 
      Cleveland, OH 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Marc Winkelman is a Neurologist in Cleveland, Ohio. Dr. Winkelman is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Oculopharyngeal Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, Walker-Warburg Syndrome, and Emery-Dreifuss Muscular Dystrophy. Dr. Winkelman is currently accepting new patients.

      Advanced in Dysferlinopathy
      Child and Adolescent Psychiatry
      Advanced in Dysferlinopathy
      Child and Adolescent Psychiatry

      The MetroHealth System

      2500 Metrohealth Dr, 
      Cleveland, OH 
       (2.6 miles away)
      Languages Spoken:
      English

      Andre Prochoroff is a Child and Adolescent Psychiatrist in Cleveland, Ohio. Dr. Prochoroff is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Primary Lateral Sclerosis, and Spinal Muscular Atrophy Type 2.

      Danielle Richards
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine

      Cleveland Clinic Main Campus

      1950 East 89th Street, 
      Cleveland, OH 
       (3.6 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Offers Telehealth

      Danielle Richards is a Neuromusculoskeletal Medicine provider in Cleveland, Ohio. Dr. Richards has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Learn about our expert tiers
      Rebecca Kuenzler
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      32+ years
      Languages Spoken:
      English
      Offers Telehealth

      Rebecca Kuenzler is a Neuromusculoskeletal Medicine provider in Cleveland, Ohio. Dr. Kuenzler has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy.

      Gary Hsich
      Experienced in Dysferlinopathy
      Pediatric Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      35+ years
      Languages Spoken:
      English

      Gary Hsich is a Pediatric Neurologist in Cleveland, Ohio. Dr. Hsich has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Ruvalcaba Syndrome, Lhermitte-Duclos Disease, Tension Headache, and Stereotypic Movement Disorder.

      John Morren
      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John Morren is a Neurologist in Cleveland, Ohio. Dr. Morren is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Cramp-Fasciculation Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Peripheral Neuropathy, and Thymectomy.

      Kerry Levin
      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      53+ years
      Languages Spoken:
      English
      Offers Telehealth

      Kerry Levin is a Neurologist in Cleveland, Ohio. Dr. Levin has been practicing medicine for over 53 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Ptosis, Lambert-Eaton Syndrome, and Peripheral Neuropathy.

      David Polston
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English
      Offers Telehealth

      David Polston is a Neurologist in Cleveland, Ohio. Dr. Polston has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Guillain-Barre Syndrome.

      Benjamin Claytor
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Claytor is a Neuromusculoskeletal Medicine provider in Cleveland, Ohio. Dr. Claytor is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Miller-Fisher Syndrome.

      Robert Marquardt
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Robert Marquardt is a Neurologist in Cleveland, Ohio. Dr. Marquardt has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cramp-Fasciculation Syndrome, Foot Drop, Hereditary Sensory and Autonomic Neuropathy Type 2, Congenital Insensitivity to Pain with Anhidrosis, and Thrombectomy.

      Yuebing Li
      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English, Mandarin
      Offers Telehealth

      Yuebing Li is a Neurologist in Cleveland, Ohio. Dr. Li is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Familial Neurocardiogenic Syncope, and Potassium-Aggravated Myotonia.

      Erin Murdock
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic Children's Hospital For Rehabilitation

      2801 Martin Luther King Jr Drive, 
      Cleveland, OH 
       (4.6 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Erin Murdock is a Neurologist in Cleveland, Ohio. Dr. Murdock has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Myotonia Congenita.

      Lainie Holman
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic Children's Hospital For Rehabilitation

      2801 Martin Luther King Jr Drive, 
      Cleveland, OH 
       (4.6 miles away)
      Languages Spoken:
      English

      Lainie Holman is a Pediatrics provider in Cleveland, Ohio. Dr. Holman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Hemiplegia.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Metrohealth System

      2500 Metrohealth Dr, 
      Cleveland, OH 
       (2.6 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joelle Gabet is a Physiatrist in Cleveland, Ohio. Dr. Gabet has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Hereditary Neuralgic Amyotrophy, Phantom Limb Pain, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Gabet is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Metrohealth System

      2500 Metrohealth Dr, 
      Cleveland, OH 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      James Wilson is a Physiatrist in Cleveland, Ohio. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Paraplegia, Neurogenic Bowel, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Wilson is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      The Metrohealth System

      2500 Metrohealth Dr, A107, 
      Cleveland, OH 
       (2.6 miles away)
      Languages Spoken:
      English, French, German
      Accepting New Patients

      Emmanuel Boakye is a primary care provider, practicing in Pediatrics and Internal Medicine in Cleveland, Ohio. Dr. Boakye is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Autism Spectrum Disorder, and Down Syndrome. Dr. Boakye is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      The Metrohealth System

      2500 Metrohealth Dr, 
      Cleveland, OH 
       (2.6 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sean Downes is a primary care provider, practicing in Family Medicine in Cleveland, Ohio. Dr. Downes has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Small Cell Lung Cancer (SCLC), Squamous Cell Lung Carcinoma, Non-Small Cell Lung Cancer (NSCLC), and ALK-Positive Non-Small Cell Lung Cancer. Dr. Downes is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic

      9500 Euclid Ave, 
      Cleveland, OH 
       (3.8 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Nimish Thakore is a Neurologist in Cleveland, Ohio. Dr. Thakore is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, and Cervical Myelopathy. Dr. Thakore is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology | Nuclear Medicine
      Experienced in Dysferlinopathy
      Neurology | Nuclear Medicine

      Cleveland Clinic

      9500 Euclid Ave, 
      Cleveland, OH 
       (3.8 miles away)
      Languages Spoken:
      English

      Steven Shook is a Neurologist and a Nuclear Medicine provider in Cleveland, Ohio. Dr. Shook is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cramp-Fasciculation Syndrome, Mononeuritis Multiplex, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Cleveland Clinic

      9500 Euclid Ave, 
      Cleveland, OH 
       (3.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Shields is a Neurologist in Cleveland, Ohio. Dr. Shields is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Multiple System Atrophy, Low Blood Pressure, Chronic Inflammatory Demyelinating Polyneuropathy, and Peripheral Neuropathy. Dr. Shields is currently accepting new patients.

      Showing 1-20 of 29

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Cleveland, OH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Cleveland, OH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Cleveland, OH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Cleveland, OH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Cleveland, OH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Cleveland, OH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Cleveland, OH?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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