The 20 Best Dysferlinopathy Doctors Near Me in Portland, OR

Find the Top Dysferlinopathy Experts and Specialists

The 20 Best Dysferlinopathy Doctors near Portland, OR

Last Updated: 02/22/2026

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MediFind found 11 doctor with experience in Dysferlinopathy near Portland, OR. Of these, 9 are Experienced, 1 are Advanced and 1 are Distinguished.

Location
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11 providers found
    Distinguished in Dysferlinopathy
    Distinguished in Dysferlinopathy

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.

    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Erika Finanger is a Neuromusculoskeletal Medicine provider in Portland, Oregon. Dr. Finanger is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Monomelic Amyotrophy, and Dysferlinopathy.

    Experienced in Dysferlinopathy
    Palliative Medicine
    Experienced in Dysferlinopathy
    Palliative Medicine

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Yaowaree Leavell is a Palliative Medicine provider in Portland, Oregon. Dr. Leavell is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Inclusion Body Myositis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anson Wilks is a Neurologist in Portland, Oregon. Dr. Wilks is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Edward Cupler is a Neurologist in Portland, Oregon. Dr. Cupler is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Paraplegia, Spastic Paraplegia Type 7, Primary Lateral Sclerosis, and Spasticity.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nels Carlson is a Physiatrist in Portland, Oregon. Dr. Carlson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Foot Drop, Sciatica, Collagen VI-Related Myopathy, and Rigid Spine Syndrome.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Randall Children's Development And Rehabilitation-A Department Of Legacy Emanuel Medical Center

    2801 N Gantenbein Ave Ste 2223, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Carrie Jones is a Pediatrics provider in Portland, Oregon. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Moebius Syndrome, Cerebral Palsy, CHARGE Syndrome, and Koolen De Vries Syndrome.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Legacy Medical Group-Emanuel-A Department Of Legacy Emanuel Medical Center

    2800 N Vancouver Ave Ste 230, 
    Portland, OR 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Beers is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Beers is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myelitis, HIV/AIDS, AIDS Dementia Complex, and AIDS Dysmorphic Syndrome.

    Experienced in Dysferlinopathy
    Pediatric Neurology
    Experienced in Dysferlinopathy
    Pediatric Neurology

    Kaiser Permanente Interstate Specialty Pharmacy

    3550 N Interstate Ave, 
    Portland, OR 
     (2.3 miles away)
    Languages Spoken:
    English

    Sarah Copeland is a Pediatric Neurologist in Portland, Oregon. Dr. Copeland is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Epilepsy, Sandhoff Disease, Seizures, and Memory Loss.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Kaiser Sunnyside Medical Center

    10180 SE Sunnyside Rd, 
    Clackamas, OR 
     (8.1 miles away)
    Languages Spoken:
    English

    Vladislav Yurlov is a primary care provider, practicing in Family Medicine in Clackamas, Oregon. Dr. Yurlov is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Asthma, Asthma in Children, Acrospiroma, and Acne.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Providence Medical Group Oregon City General Surgery At Sunnyside

    9290 SE Sunnybrook Blvd Ste 120, 
    Clackamas, OR 
     (9.8 miles away)
    Languages Spoken:
    English

    Phillip Dove is a primary care provider, practicing in Internal Medicine in Clackamas, Oregon. Dr. Dove is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cavernous Sinus Thrombosis, X-Linked Dominant Scapuloperoneal Myopathy, Distal Myopathy 2, and Oculopharyngeal Muscular Dystrophy.

    Showing 1-11 of 11

    Last Updated: 02/22/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Portland, OR?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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