The 20 Best Dysferlinopathy Doctors Near Me in Seattle, WA

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Dysferlinopathy near Seattle, WA. Of these, 8 are Experienced, 2 are Advanced and 1 are Distinguished.

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11 providers found
    Distinguished in Dysferlinopathy
    Physiatry
    Distinguished in Dysferlinopathy
    Physiatry

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nassim Rad is a Physiatrist practicing medicine in Seattle, Washington. Dr. Rad is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, X-Linked Dominant Scapuloperoneal Myopathy, and Distal Myopathy 2.

    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Michael Weiss is a Neuromusculoskeletal Medicine provider practicing medicine in Seattle, Washington. Dr. Weiss is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 65 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Gallbladder Removal, and Endoscopy.

    Advanced in Dysferlinopathy
    Pediatrics
    Advanced in Dysferlinopathy
    Pediatrics

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jaclyn Omura is a Pediatrics provider practicing medicine in Seattle, Washington. Dr. Omura is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Dysferlinopathy, Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA).

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    Virginia Mason Medical Center

    1100 9th Ave, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English

    Anik Amin is a Neurologist practicing medicine in Seattle, Washington. Dr. Amin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Seizures, Partial Familial Epilepsy, Conversion Disorder, and Memory Loss.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Preston is a Neurologist practicing medicine in Seattle, Washington. Dr. Preston is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Inclusion Body Myositis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Leo Wang is a Neurologist practicing medicine in Seattle, Washington. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Inclusion Body Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Neurology Clinic At UW Medical Center - Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Barbara Distad is a Neurologist practicing medicine in Seattle, Washington. Dr. Distad is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy. Dr. Distad is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Suman Jayadev is a Neurologist practicing medicine in Seattle, Washington. Dr. Jayadev is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 55 other conditions, according to our data. Her clinical expertise encompasses Huntington Disease, Dementia, Alzheimer's Disease, and Mcleod Neuroacanthocytosis Syndrome.

    Experienced in Dysferlinopathy
    Pediatric Neurology
    Experienced in Dysferlinopathy
    Pediatric Neurology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alicia Henriquez is a Pediatric Neurologist practicing medicine in Seattle, Washington. Dr. Henriquez is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her clinical expertise encompasses Hypokalemic Periodic Paralysis, Duchenne Muscular Dystrophy, Friedreich Ataxia, and Dysferlinopathy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Molly Fuentes is a Pediatrics provider practicing medicine in Seattle, Washington. Dr. Fuentes is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her clinical expertise encompasses Traumatic Brain Injury, Primary Lateral Sclerosis, Cerebral Palsy, and Dysferlinopathy.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Pacific Medical Centers 65+ Health Center - Canyon Park

    1909 214th Street Southeast, Suite 211, 
    Bothell, WA 
     (12.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Living the best life with great care is our goal for older adults. Dr. Lee's medical interests include healthy habits, hypertension, diabetes, heart disease and palliative care with dignity. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Chronic Kidney Disease, Sturge-Weber Syndrome, Von Hippel-Lindau (VHL) Syndrome, and Linear Nevus Sebaceous Syndrome. Dr. Lee is board certified in American Board Of Internal Medicine.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Seattle, WA?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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