The 20 Best Dyskeratosis Congenita Doctors in The United States

Find the Top Dyskeratosis Congenita Experts and Specialists

The 20 Best Dyskeratosis Congenita Doctors in The United States

Last Updated: 02/22/2026

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MediFind found 2461 doctor with experience in Dyskeratosis Congenita near The United States. Of these, 2224 are Experienced, 171 are Advanced, 33 are Distinguished and 6 are Elite.

Location
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2,461 providers found
    Marina Bravin
    Advanced in Dyskeratosis Congenita
    Dermatology
    Advanced in Dyskeratosis Congenita
    Dermatology

    Bassett Oneonta Specialty Services

    1 Associate Drive, 
    Oneonta, NY 
    Languages Spoken:
    English

    . Dr. Bravin is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Actinic Keratosis, Melanoma, Warts, and Psoriasis.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    Office

    9609 Medical Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Sharon Savage is a Hematologist and an Oncologist in Bethesda, Maryland. Dr. Savage is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Aase Syndrome, Hormone Replacement Therapy (HRT), and Bone Marrow Transplant.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    Office

    9609 Medical Center Dr Rm 6E452, 
    Rockville, MD 
    Languages Spoken:
    English

    Blanche Alter is a Hematologist and an Oncologist in Rockville, Maryland. Dr. Alter is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Dyskeratosis Congenita, Aplastic Anemia, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

    Learn about our expert tiers
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    Children's Of Alabama

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Frederick Goldman is a Hematologist and an Oncologist in Birmingham, Alabama. Dr. Goldman is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Severe Combined Immunodeficiency (SCID), Aase Syndrome, Wiskott-Aldrich Syndrome, and Bone Marrow Transplant.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    St. Jude Children's Research Hospital

    262 Danny Thomas Pl, 
    Memphis, TN 
    Languages Spoken:
    English

    Marcin Wlodarski is a Hematologist and an Oncologist in Memphis, Tennessee. Dr. Wlodarski is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Dyskeratosis Congenita, Bone Marrow Transplant, and Splenectomy.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    Office

    9609 Medical Center Dr, 
    Rockville, MD 
    Languages Spoken:
    English

    Neelam Giri is a Hematologist and an Oncologist in Rockville, Maryland. Dr. Giri is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Aplastic Anemia, Fanconi Anemia, and Hormone Replacement Therapy (HRT).

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Suneet Agarwal is a Hematologist and an Oncologist in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

    Jessica W. Galvin
    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita

    Clear Dermatology LLC

    4906 Penn Ave, Ste 202, 
    Sinking Spring, PA 
    Languages Spoken:
    English

    . Dr. Galvin is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Pityriasis Lichenoides Et Varioliformis Acuta, Pityriasis Lichenoides, Actinic Keratosis, and Graham-Little-Piccardi-Lassueur Syndrome.

    Alix J. Charles
    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    2155 City Gate Lane, Suite 225, 
    Naperville, IL 
    Experience:
    26+ years
    Languages Spoken:
    English, French, Haitian Creole, Spanish
    Offers Telehealth

    Early in my training at the Mayo Clinic I was taught that the interest of the patient is the only interest to be considered. With that as my guiding principle, I strive to create a warm and trusting relationship with my patients so they may feel at ease discussing their skin care issues with me. I believe strongly in educating patients on how best they can be in control of their own outcomes; they are the ones who live day to day in their own skin and I need them to help with their care plan! Lastly, I try to administer a healthy dose of laughter with each prescription or procedure as I've found this helps my patients get better more quickly. Dr. Charles is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Psoriasis.

    Jana F. Parker
    Experienced in Dyskeratosis Congenita
    Dermatology
    Experienced in Dyskeratosis Congenita
    Dermatology

    Holladay Clinic - Dermatology

    6272 South Highland Drive, Suite 202, 
    Murray, UT 
    Experience:
    23+ years
    Languages Spoken:
    English

    Jana Parker is a Dermatologist in Murray, Utah. Dr. Parker has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Sunburn, Actinic Keratosis, Melanoma, and Universal Acquired Melanosis.

    Experienced in Dyskeratosis Congenita
    Hematology | Oncology
    Experienced in Dyskeratosis Congenita
    Hematology | Oncology

    ETSU Pediatrics- St. Jude's Clinic

    400 N State Of Franklin Rd, Fl 1, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Nichols is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hemophagocytic Lymphohistiocytosis, Non-Langerhans-Cell Histiocytosis, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Transplant.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita

    DermDox

    38 Keystone Ct, 
    Leola, PA 
    Languages Spoken:
    English

    . Dr. Mackey is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Actinic Keratosis, Plaque Psoriasis, Sunburn, and Psoriasis.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology

    Van Dyke Yun Dermatology

    12403 Ventura Ct Ste A, 
    Studio City, CA 
    Languages Spoken:
    English

    Jasmine Yun is a Dermatologist in Studio City, California. Dr. Yun is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Eccrine Porocarcinoma, Trichoepithelioma, Multiple Familial Trichoepithelioma, and Syringoma.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology

    Pariser Dermatology Specialists LTD.

    6160 Kempsville Cir Ste 200A, 
    Norfolk, VA 
    Languages Spoken:
    English

    Molly Smith is a Dermatologist in Norfolk, Virginia. Dr. Smith is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Actinic Keratosis, Basal Cell Skin Cancer, Seborrheic Keratosis, and Warts.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology

    Matthew J. Rowley M.D. P.A.

    107 Christie Dr, 
    Lufkin, TX 
    Languages Spoken:
    English

    Matthew Rowley is a Dermatologist in Lufkin, Texas. Dr. Rowley is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Actinic Keratosis, Warts, Contact Dermatitis, and Seborrheic Keratosis.

    Distinguished in Dyskeratosis Congenita
    Distinguished in Dyskeratosis Congenita

    Van Dyke Yun Medical Group Pacific Dermatopathology & Jasmine Yun MD A

    12409 Ventura Ct Ste C, 
    Studio City, CA 
    Languages Spoken:
    English

    Gregory Van Dyke is a Dermatologist in Studio City, California. Dr. Van Dyke is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Multiple Familial Trichoepithelioma, Trichoepithelioma, Sebaceous Adenoma, and Syringoma.

    Distinguished in Dyskeratosis Congenita
    Distinguished in Dyskeratosis Congenita

    Office

    3176 Holland Rd Ste 103, 
    Virginia Beach, VA 
    Languages Spoken:
    English

    Kimberly Soderberg is a Dermatologist in Virginia Beach, Virginia. Dr. Soderberg is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Melanoma, Actinic Keratosis, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Nevus.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology

    Office

    889 Castro St, 
    Mountain View, CA 
    Languages Spoken:
    English

    Duke Khuu is a Dermatologist in Mountain View, California. Dr. Khuu is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Impetigo, Keloids, Warts, and Lichen Simplex Chronicus.

    Distinguished in Dyskeratosis Congenita
    Distinguished in Dyskeratosis Congenita

    Office

    29 College Rd, 
    Monsey, NY 
    Languages Spoken:
    English

    Philip Strenger is a Dermatologist in Monsey, New York. Dr. Strenger is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Syringocystadenoma Papilliferum, Syringoma, Sebaceous Adenoma, and Plaque Psoriasis.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology

    Office

    1010 Carondelet Dr Ste 125, 
    Kansas City, MO 
    Languages Spoken:
    English

    John Rupp is a Dermatologist in Kansas City, Missouri. Dr. Rupp is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Seborrheic Keratosis, Actinic Keratosis, Rosacea, and Warts.

    Showing 1-20 of 2,461

    Last Updated: 02/22/2026

    What is the definition of Dyskeratosis Congenita?

    Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

    When should I see a Dyskeratosis Congenita doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dyskeratosis Congenita doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dyskeratosis Congenita doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dyskeratosis Congenita doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dyskeratosis Congenita doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

    Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dyskeratosis Congenita doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dyskeratosis Congenita doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dyskeratosis Congenita doctors in The United States?

    Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

    Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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