The 20 Best Dyskeratosis Congenita Doctors in The United States

Find the Top Dyskeratosis Congenita Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 2471 doctor with experience in Dyskeratosis Congenita near The United States. Of these, 2227 are Experienced, 172 are Advanced, 32 are Distinguished and 6 are Elite.

Location
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2,471 providers found
    Advanced in Dyskeratosis Congenita
    Dermatology
    Advanced in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Bassett Oneonta Specialty Services

    1 Associate Drive, 
    Oneonta, NY 
    Languages Spoken:
    English

    Marina Bravin is a Dermatologist practicing medicine in Oneonta, New York. Dr. Bravin is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 59 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Melanoma, Warts, and Psoriasis. Dr. Bravin is board certified in Internal Medicine, American Board Of Internal Medicine.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    Office

    9609 Medical Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Sharon Savage is a Hematologist and an Oncologist practicing medicine in Bethesda, Maryland. Dr. Savage is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Dyskeratosis Congenita, Aplastic Anemia, Aase Syndrome, Hormone Replacement Therapy (HRT), and Bone Marrow Transplant.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    Office

    9609 Medical Center Dr Rm 6E452, 
    Rockville, MD 
    Languages Spoken:
    English

    Blanche Alter is a Hematologist and an Oncologist practicing medicine in Rockville, Maryland. Dr. Alter is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Aase Syndrome, Dyskeratosis Congenita, Aplastic Anemia, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

    Learn about our expert tiers
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    Children's Of Alabama

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Frederick Goldman is a Hematologist and an Oncologist practicing medicine in Birmingham, Alabama. Dr. Goldman is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dyskeratosis Congenita, Severe Combined Immunodeficiency (SCID), Aase Syndrome, Wiskott-Aldrich Syndrome, and Bone Marrow Transplant.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    St. Jude Children's Research Hospital

    262 Danny Thomas Pl, 
    Memphis, TN 
    Languages Spoken:
    English

    Marcin Wlodarski is a Hematologist and an Oncologist practicing medicine in Memphis, Tennessee. Dr. Wlodarski is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, Bone Marrow Transplant, and Splenectomy.

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    Office

    9609 Medical Center Dr, 
    Rockville, MD 
    Languages Spoken:
    English

    Neelam Giri is a Hematologist and an Oncologist practicing medicine in Rockville, Maryland. Dr. Giri is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Dyskeratosis Congenita, Aase Syndrome, Aplastic Anemia, Fanconi Anemia, and Hormone Replacement Therapy (HRT).

    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Elite in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Suneet Agarwal is a Hematologist and an Oncologist practicing medicine in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required

    Clear Dermatology LLC

    4906 Penn Ave, Ste 202, 
    Sinking Spring, PA 
    Languages Spoken:
    English

    Jessica Galvin is a Dermatologist practicing medicine in Sinking Spring, Pennsylvania. Dr. Galvin is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her clinical expertise encompasses Pityriasis Lichenoides Et Varioliformis Acuta, Pityriasis Lichenoides, Actinic Keratosis, and Graham-Little-Piccardi-Lassueur Syndrome. Dr. Galvin is board certified in American Osteopathic Board Of Dermatology.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required
    2155 City Gate Lane, Suite 225, 
    Naperville, IL 
    Experience:
    26+ years
    Languages Spoken:
    English, French, Haitian Creole, Spanish
    Offers Telehealth

    Early in my training at the Mayo Clinic I was taught that the interest of the patient is the only interest to be considered. With that as my guiding principle, I strive to create a warm and trusting relationship with my patients so they may feel at ease discussing their skin care issues with me. I believe strongly in educating patients on how best they can be in control of their own outcomes; they are the ones who live day to day in their own skin and I need them to help with their care plan! Lastly, I try to administer a healthy dose of laughter with each prescription or procedure as I've found this helps my patients get better more quickly. Dr. Charles is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Seborrheic Keratosis, Warts, Actinic Keratosis, and Psoriasis. Dr. Charles is board certified in Dermatology.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required

    Dermatology Clinic At Lauritzen Outpatient Center

    Omaha, NE 
    Experience:
    13+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Adams is a Dermatologist practicing medicine in Omaha, Nebraska. She has been practicing medicine for over 13 years. Dr. Adams is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Actinic Keratosis, Warts, Graham-Little-Piccardi-Lassueur Syndrome, and Basal Cell Skin Cancer.

    Experienced in Dyskeratosis Congenita
    Dermatology
    Experienced in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Avera Dermatology — Pierre

    801 E Sioux Ave, Floor 2, 
    Pierre, SD 
    Languages Spoken:
    English

    Dr. (Joyce) Wesley Fletcher is a dermatologist at Avera Medical Group in Pierre, located in the Helmsley Center at Avera St. Mary's Hospital. Dr. Fletcher is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, Giant Congenital Nevus, and Neurocutaneous Melanosis.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required

    Avera Medical Group Dermatology — Mitchell

    1900 Grassland Dr 3rd, Floor, 
    Mitchell, SD 
    Languages Spoken:
    English

    Mandi Greenway, MD, a dermatologist, provides expert skin care for people of all ages at Avera Medical Group Dermatology in Mitchell, SD. Dr. Greenway is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Warts, Seborrheic Keratosis, and Melanoma. Dr. Greenway is board certified in American Board Of Dermatology.

    Experienced in Dyskeratosis Congenita
    Dermatology
    Experienced in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Holladay Clinic - Dermatology

    6272 South Highland Drive, Suite 202, 
    Murray, UT 
    Experience:
    23+ years
    Languages Spoken:
    English

    Jana Parker is a Dermatologist practicing medicine in Murray, Utah. She has been practicing medicine for over 23 years. Dr. Parker is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Sunburn, Actinic Keratosis, Melanoma, and Liver Spots. Dr. Parker is board certified in American Board Of Dermatology.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required

    University Of Virginia Physicians Group

    1221 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mary-margaret Noland is a Dermatologist practicing medicine in Charlottesville, Virginia. Dr. Noland is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Sunburn, Actinic Keratosis, Bullous Pemphigoid, and Warts. Dr. Noland is currently accepting new patients.

    Experienced in Dyskeratosis Congenita
    Hematology | Oncology
    Experienced in Dyskeratosis Congenita
    Hematology | Oncology
    Referral may be required

    ETSU Pediatrics- St. Jude's Clinic

    400 N State Of Franklin Rd, Fl 1, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Kim Nichols is a Hematologist and an Oncologist practicing medicine in Johnson City, Tennessee. Dr. Nichols is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Hemophagocytic Lymphohistiocytosis, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, and Bone Marrow Transplant. Dr. Nichols is board certified in American Board Of Pediatrics.

    Experienced in Dyskeratosis Congenita
    Experienced in Dyskeratosis Congenita
    Referral may be required

    DermDox

    38 Keystone Ct, 
    Leola, PA 
    Languages Spoken:
    English

    Stephanie Mackey is a Dermatologist practicing medicine in Leola, Pennsylvania. Dr. Mackey is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her clinical expertise encompasses Actinic Keratosis, Plaque Psoriasis, Sunburn, and Psoriasis. Dr. Mackey is board certified in American Board Of Dermatology.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Van Dyke Yun Dermatology

    12403 Ventura Ct Ste A, 
    Studio City, CA 
    Languages Spoken:
    English

    Jasmine Yun is a Dermatologist practicing medicine in Studio City, California. Dr. Yun is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 58 other conditions, according to our data. Her clinical expertise encompasses Eccrine Porocarcinoma, Trichoepithelioma, Multiple Familial Trichoepithelioma, and Syringocystadenoma Papilliferum.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Pariser Dermatology Specialists LTD.

    6160 Kempsville Cir Ste 200A, 
    Norfolk, VA 
    Languages Spoken:
    English

    Molly Smith is a Dermatologist practicing medicine in Norfolk, Virginia. Dr. Smith is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. She is also highly rated in 133 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Basal Cell Skin Cancer, Seborrheic Keratosis, and Warts.

    Distinguished in Dyskeratosis Congenita
    Dermatology
    Distinguished in Dyskeratosis Congenita
    Dermatology
    Referral may be required

    Matthew J. Rowley M.D. P.A.

    107 Christie Dr, 
    Lufkin, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Rowley is a Dermatologist practicing medicine in Lufkin, Texas. Dr. Rowley is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 80 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Warts, Contact Dermatitis, and Seborrheic Keratosis.

    Distinguished in Dyskeratosis Congenita
    Distinguished in Dyskeratosis Congenita
    Referral may be required

    Van Dyke Yun Medical Group Pacific Dermatopathology & Jasmine Yun MD A

    12409 Ventura Ct Ste C, 
    Studio City, CA 
    Languages Spoken:
    English

    Gregory Van Dyke is a Dermatologist practicing medicine in Studio City, California. Dr. Van Dyke is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. He is also highly rated in 56 other conditions, according to our data. His clinical expertise encompasses Multiple Familial Trichoepithelioma, Trichoepithelioma, Syringoma, and Sebaceous Adenoma.

    Showing 1-20 of 2,471

    Last Updated: 06/30/2026

    What is the definition of Dyskeratosis Congenita?

    Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

    When should I see a Dyskeratosis Congenita doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dyskeratosis Congenita doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dyskeratosis Congenita doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dyskeratosis Congenita doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dyskeratosis Congenita doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

    Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dyskeratosis Congenita doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dyskeratosis Congenita doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dyskeratosis Congenita doctors in The United States?

    Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

    Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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