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    Last Updated: 01/09/2026

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    MediFind found 2463 doctor with experience in Dyskeratosis Congenita near The United States. Of these, 2228 are Experienced, 171 are Advanced, 33 are Distinguished and 6 are Elite.

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    2,463 providers found
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      10 Center Drive, National Institutes Of Health Clinical Center, 
      Bethesda, MD 
      Languages Spoken:
      English

      Sharon Savage is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Savage is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Aase Syndrome, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, Room 6e452, 
      Rockville, MD 
      Languages Spoken:
      English

      Blanche Alter is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Alter is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Dyskeratosis Congenita, Aplastic Anemia, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      1600 7th Ave S, 
      Birmingham, AL 
      Languages Spoken:
      English

      Frederick Goldman is a Pediatric Hematologist Oncology provider in Birmingham, Alabama. Dr. Goldman is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Severe Combined Immunodeficiency (SCID), Aase Syndrome, Wiskott-Aldrich Syndrome, and Bone Marrow Transplant.

      Learn about our expert tiers
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      262 Danny Thomas Pl, 
      Memphis, TN 
      Languages Spoken:
      English

      Marcin Wlodarski is a Pediatric Hematologist Oncology provider in Memphis, Tennessee. Dr. Wlodarski is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Dyskeratosis Congenita, Bone Marrow Transplant, and Splenectomy.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, 6e526, Msc 9772, 
      Rockville, MD 
      Languages Spoken:
      English

      Neelam Giri is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Giri is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Aplastic Anemia, Congenital Aplastic Anemia, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, Children's Hospital, 
      Boston, MA 
      Languages Spoken:
      English

      Suneet Agarwal is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology

      Holladay Clinic - Dermatology

      6272 South Highland Drive, Suite 202, 
      Murray, UT 
      Experience:
      23+ years
      Languages Spoken:
      English

      Jana Parker is a Dermatologist in Murray, Utah. Dr. Parker has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Sunburn, Actinic Keratosis, Melanoma, and Universal Acquired Melanosis.

      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kord Honda is a Dermatologist in Cleveland, Ohio. Dr. Honda is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Melanoma, Erythroderma, Acrogeria, Gottron Type, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.

      Christiane S. Querfeld
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      City Of Hope Medical Foundation

      1601 Avocado Ave, 
      Newport Beach, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Christiane Querfeld is a Dermatologist in Newport Beach, California. Dr. Querfeld is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, and Sezary Syndrome.

      Adrianna Vlachos
      Advanced in Dyskeratosis Congenita
      Hematology | Pediatric Hematology Oncology
      Advanced in Dyskeratosis Congenita
      Hematology | Pediatric Hematology Oncology

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      Saint Petersburg, FL 
      Languages Spoken:
      English, Greek
      Offers Telehealth

      Dr. Vlachos is the chief of hematology in the Johns Hopkins All Children’s Hospital Cancer & Blood Disorders Institute in St. Petersburg, Florida, and professor of pediatrics (PAR) in the Johns Hopkins University School of Medicine. She joined the hospital staff in 2024. She was previously professor of pediatrics at Zucker School of Medicine at Hofstra/Northwell and attending physician in hematology/oncology at Cohen Children’s Medical Center/Northwell Health, where she was head of the Bone Marrow Failure Program and head of the pediatric hematology/oncology trials office. Dr. Vlachos is internationally known for clinical care and expertise in bone marrow failure syndromes and her transformational research in Diamond Blackfan anemia (DBA) syndrome, a rare inherited bone marrow failure syndrome. Dr. Vlachos is the founder and has directed the Diamond Blackfan Anemia Registry (DBAR) of North America since its inception in 1991. She is the principal investigator and co-investigator on multiple grants funded by the National Institute of Health and the Centers for Disease Control and Prevention. She has published numerous articles on her research findings and has been invited to author papers and book chapters on bone marrow failure syndromes and DBA. Dr. Vlachos is a member of the Medical and Scientific Advisory Board for the Shwachman-Diamond Syndrome Registry, is a member of the Scientific Advisory Board for the Diamond Blackfan Anemia Foundation and holds a position on the Scientific Program Committee for Bone Marrow Failure of the American Society of Hematology. She earned her medical degree from New York Medical College in Valhalla, New York. She completed her residency in pediatrics at North Shore University Hospital in Manhasset, New York. She then completed a clinical fellowship in bone marrow transplantation at North Shore University Hospital, followed by a fellowship in pediatric hematology-oncology and bone marrow transplantation at Mount Sinai Medical Center in New York. Videos Bone Marrow Failure Syndrome Expert Dr. Adrianna Vlachos at Johns Hopkins All Children’s. Dr. Vlachos is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Transient Erythroblastopenia of Childhood.

      Nika Finelt
      Advanced in Dyskeratosis Congenita
      Pediatrics | Dermatology
      Advanced in Dyskeratosis Congenita
      Pediatrics | Dermatology

      Northwell Health Physician Partners Dermatology At Lake Success

      1991 Marcus Avenue, Suite 300, 
      Lake Success, NY 
      Languages Spoken:
      English, Russian, Spanish

      Nika Finelt is a Pediatrics specialist and a Dermatologist in Lake Success, New York. Dr. Finelt is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Linear Hamartoma Syndrome, and Vascular Birthmark.

      Matthew Janik
      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      Avon - Richard E. Jacobs Health Center

      33100 Cleveland Clinic Boulevard, 
      Avon, OH 
      Experience:
      24+ years
      Languages Spoken:
      English

      Matthew Janik is a Dermatologist in Avon, Ohio. Dr. Janik has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Actinic Keratosis, Warts, Seborrheic Keratosis, and Graham-Little-Piccardi-Lassueur Syndrome.

      Vickie Baker
      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      Elyria Family Health Center

      303 Chestnut Commons Drive, 
      Elyria, OH 
      Experience:
      38+ years
      Languages Spoken:
      English

      Vickie Baker is a Dermatologist in Elyria, Ohio. Dr. Baker has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Actinic Keratosis, Warts, Seborrheic Keratosis, and Psoriasis.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Forefront Dermatology Sc

      801 York St, 
      Manitowoc, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Kelli Hutchens is a Dermatologist in Manitowoc, Wisconsin. Dr. Hutchens is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Melanoma, Neurocutaneous Melanosis, Seborrheic Keratosis, and Molluscum Contagiosum. Dr. Hutchens is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary-margaret Noland is a Dermatologist in Charlottesville, Virginia. Dr. Noland is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Sunburn, Actinic Keratosis, Bullous Pemphigoid, and Warts. Dr. Noland is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Lacey Kruse is a Dermatologist in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Aplasia Cutis Congenita, and Linear Hamartoma Syndrome.

      Experienced in Dyskeratosis Congenita
      Family Medicine
      Experienced in Dyskeratosis Congenita
      Family Medicine

      Sentara Medical Group

      4374 New Town Ave, Suite 200, 
      Williamsburg, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Janice Langer is a primary care provider, practicing in Family Medicine in Williamsburg, Virginia. Dr. Langer is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Langer is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Geriatrics | Internal Medicine
      Experienced in Dyskeratosis Congenita
      Geriatrics | Internal Medicine

      Daniel C Lazowick Do LLC

      100 E Lancaster Ave, Suite 461, 
      Wynnewood, PA 
      Languages Spoken:
      English

      Daniel Lazowick is a primary care provider, practicing in Geriatrics and Internal Medicine in Wynnewood, Pennsylvania. Dr. Lazowick is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Enlarged Prostate (BPH), Muir-Torre Syndrome, Hyperkeratosis Lenticularis Perstans, and Chronic Pancreatitis.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Yale University

      800 Howard Ave, 
      New Haven, CT 
      Languages Spoken:
      English

      Keith Choate is a Dermatologist in New Haven, Connecticut. Dr. Choate is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Lamellar Ichthyosis.

      Showing 1-20 of 2,463

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors in The United States?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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