The 20 Best Fibrous Dysplasia Doctors in The United States

Find the Top Fibrous Dysplasia Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1550 doctor with experience in Fibrous Dysplasia near The United States. Of these, 1396 are Experienced, 129 are Advanced, 11 are Distinguished and 5 are Elite.

Location
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1,550 providers found
    Elite in Fibrous Dysplasia
    Endocrinology
    Elite in Fibrous Dysplasia
    Endocrinology

    Endocrinology Clinic At Parnassus

    400 Parnassus Ave., Suite A-550, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Edward Hsiao is an endocrinologist who specializes in metabolic bone diseases, such as severe osteoporosis and osteogenesis imperfecta, and other bone disorders. He also cares for patients with calcium, phosphorous, vitamin D, and parathyroid hormone disorders. He has particular interests in fibrodysplasia ossificans progressiva (a condition in which bone gradually replaces muscle and other connective tissues) and fibrous dysplasia/McCune-Albright syndrome (a disorder that causes fibrous tissue to develop in bones). E. Hsiao's current research interests center on understanding how hormones and signaling pathways control human bone formation. His laboratory uses advanced cellular, genetic, and bioengineering tools to identify key pathways that could be targeted for disease therapies. He is also involved in clinical research to develop better diagnostic and treatment strategies for patients with bone diseases. E. Hsiao earned his medical degree and a doctorate in molecular biology and genetics from the Johns Hopkins School of Medicine, where he also completed a residency in internal medicine. He completed fellowship training in diabetes, endocrinology and metabolism at UCSF. E. Hsiao is a member of the Endocrine Society and American Society for Bone and Mineral Research. In addition, he actively works with patient support groups through the Fibrous Dysplasia Foundation and International Fibrodysplasia Ossificans Progressiva Association, and the International Clinical Council on FOP. E. Hsiao serves as director of UCSF's fellowship program in diabetes, endocrinology and metabolism. He has received the March of Dimes Basil O'Connor Starter Scholar Research Award and the Doris Duke Clinical Scientist Development Award, as well as research grant funding from the National Institutes of Health. In his free time, Hsiao enjoys reading, the outdoors and photography. Dr. Hsiao is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Rhizomelic Syndrome. Dr. Hsiao is board certified in American Board Of Internal Medicine, Endocrinology Diabetes & Metab. Dr. Hsiao is currently accepting new patients.

    Elite in Fibrous Dysplasia
    Pediatric Endocrinology
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Alison Boyce is a Pediatric Endocrinologist practicing medicine in Washington, Washington, D.c.. Dr. Boyce is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Osteitis Fibrosa, Fibrous Dysplasia, Mccune-Albright Syndrome, Nerve Decompression, and Splenectomy.

    Elite in Fibrous Dysplasia
    Pediatric Endocrinology
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
    Languages Spoken:
    English

    Vivian Szymczuk is a Pediatric Endocrinologist practicing medicine in Silver Spring, Maryland. Dr. Szymczuk is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, Nerve Decompression, and Tenotomy.

    Learn about our expert tiers
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology
    Elite in Fibrous Dysplasia
    Pediatric Endocrinology

    Office

    30 Rockville Pike, 
    Bethesda, MD 
    Languages Spoken:
    English

    Rachel Gafni is a Pediatric Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Gafni is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Autosomal Dominant Hypocalcemia, Osteomalacia, Osteitis Fibrosa, Malnutrition, and Hormone Replacement Therapy (HRT).

    Elite in Fibrous Dysplasia
    Internal Medicine
    Elite in Fibrous Dysplasia
    Internal Medicine

    Finger Lakes Medical Group

    200 North St Ste 101, 
    Geneva, NY 
    Languages Spoken:
    English

    Michael Collins is a primary care provider, practicing in Internal Medicine in Geneva, New York. Dr. Collins is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Fibrous Dysplasia, Mccune-Albright Syndrome, Osteomalacia, Hormone Replacement Therapy (HRT), and Splenectomy.

    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology
    Experienced in Fibrous Dysplasia
    Radiology | Pediatric Radiology

    St. Christopher's Pediatric Associates Radiology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Webb is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Aseptic and Alopecic Nodules of Scalp (AANS). Dr. Webb is board certified in American Board Of Radiology.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    State Of Franklin Healthcare Associates- Comprehensive Breast Center

    818 Sunset Dr, Ste 100, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Kohne is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 56 other conditions, according to our data. His clinical expertise encompasses Osteopenia, Melorheostosis, Melorheostosis with Osteopoikilosis, and Visceromegaly. Dr. Kohne is board certified in American Board Of Radiology.

    Distinguished in Fibrous Dysplasia
    Endocrinology
    Distinguished in Fibrous Dysplasia
    Endocrinology

    Office

    400 Parnassus Ave Ste 550, 
    San Francisco, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Kelly Wentworth is an Endocrinologist practicing medicine in San Francisco, California. Dr. Wentworth is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Mccune-Albright Syndrome, Osteitis Fibrosa, and Rhizomelic Syndrome.

    Distinguished in Fibrous Dysplasia
    Endocrinology
    Distinguished in Fibrous Dysplasia
    Endocrinology

    Office

    8641 Wilshire Blvd Ste 210, 
    Beverly Hills, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Sheila Haji is an Endocrinologist practicing medicine in Beverly Hills, California. Dr. Haji is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Postmenopausal Osteoporosis, Osteoporosis, and Hyperparathyroidism.

    Distinguished in Fibrous Dysplasia
    Pediatric Orthopedics
    Distinguished in Fibrous Dysplasia
    Pediatric Orthopedics
    403 West Adams Boulevard, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nicholas Bernthal is a Pediatric Orthopedics provider practicing medicine in Los Angeles, California. Dr. Bernthal is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Bone Tumor, Synovitis, Osteotomy, and Hip Replacement. Dr. Bernthal is currently accepting new patients.

    Distinguished in Fibrous Dysplasia
    Endocrinology
    Distinguished in Fibrous Dysplasia
    Endocrinology

    Office

    30 Convent Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Kelly Roszko is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Roszko is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Autosomal Dominant Hypocalcemia, Fibrous Dysplasia, Osteitis Fibrosa, Calcinosis, and Hormone Replacement Therapy (HRT).

    Experienced in Fibrous Dysplasia
    Family Medicine
    Experienced in Fibrous Dysplasia
    Family Medicine

    Family Medicine Clinic At Durham Outpatient Center

    4400 Emile St., 
    Omaha, NE 
    Experience:
    41+ years
    Languages Spoken:
    English

    Birgit Khandalavala is a primary care provider, practicing in Family Medicine in Omaha, Nebraska. She has been practicing medicine for over 41 years. Dr. Khandalavala is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Prolidase Deficiency, Obesity, Peripheral Neuropathy, and Metabolic Syndrome.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    Orthopaedics Clinic At Lauritzen Outpatient Center

    4014 Leavenworth St., 
    Omaha, NE 
    Experience:
    28+ years
    Languages Spoken:
    English

    Sean Mcgarry is an Orthopedics provider practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 28 years. Dr. Mcgarry is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Bone Tumor, Osteosarcoma, Myxoid Liposarcoma, and Hip Replacement.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia

    OSF Illinois Neurological Institute - Neurosurgery

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English

    Jeffrey Klopfenstein is a Neurosurgery provider practicing medicine in Peoria, Illinois. Dr. Klopfenstein is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Radiation Induced Meningioma, Meningioma, Stroke, Carotid Artery Surgery, and Laminectomy. Dr. Klopfenstein is board certified in American Board Of Neurological Surgery.

    Experienced in Fibrous Dysplasia
    Radiology
    Experienced in Fibrous Dysplasia
    Radiology

    West Reading Radiology Associates

    301 S 7th Ave, Suite 135, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her clinical expertise encompasses Gas Bloat Syndrome, CAPOS Syndrome, Fibrous Dysplasia, and Galactocoele. Dr. Shaw is board certified in  .

    Experienced in Fibrous Dysplasia
    Hematology | Oncology
    Experienced in Fibrous Dysplasia
    Hematology | Oncology

    Reading Hospital Hematology Oncology

    824 Main St, Ste 101, 
    Phoenixville, PA 
    Languages Spoken:
    English, Mandarin

    . Dr. Song is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 75 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Stomach Cancer, Small Cell Lung Cancer (SCLC), Endoscopy, and Sacral Nerve Stimulation. Dr. Song is board certified in American Board Of Internal Medicine.

    Experienced in Fibrous Dysplasia
    General Surgery
    Experienced in Fibrous Dysplasia
    General Surgery

    Ear, Nose, Throat (ENT) And Audiology At Lauritzen Outpatient Center

    4014 Leavenworth St., 
    Omaha, NE 
    Experience:
    22+ years
    Languages Spoken:
    English

    Samuel Pate is a General Surgeon practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 22 years. Dr. Pate is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Sinusitis, Perichondritis, Nasal Septal Hematoma, and Myringotomy.

    Distinguished in Fibrous Dysplasia
    Orthopedics
    Distinguished in Fibrous Dysplasia
    Orthopedics

    MUSC Health Orthopaedics At West Ashley Medical Pavilion

    2060 Sam Rittenberg Blvd, 1st Floor, 
    Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Lee Leddy did his undergraduate work at Emory University where he received his BS in biological science while lettering on the varsity basketball team. He then received his M.D. from the University of Florida College of Medicine in Gainesville, Florida. Dr. Leddy went back to Emory University to complete his internship and residency in the Department of Orthopaedic Surgery. He joined MUSC in 2009 after completing a fellowship in orthopaedic oncology at Emory University where he helped establish the sarcoma program and is currently the leader of the Sarcoma Disease Focus Team at Hollings Cancer Center.Dr. Leddy currently serves as the chairman of the Department of Orthopaedics and Physical Medicine and the chief of the Musculoskeletal Integrated Center of Clinical Excellence (ICCE). He is actively involved in both clinical and basic science research and collaborates in the Sarcoma Immunotherapy Lab.As a member of the MUSC Department of Orthopaedics and Physical Medicine, Dr. Leddy's primary focus is providing excellent care to patients with benign and malignant bone and soft tissues tumors in children and adults, metastatic bone cancer, fracture care, and primary and revision hip replacements. Dr. Leddy is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Rhabdoid Tumor Predisposition Syndrome, Bone Tumor, Epithelioid Sarcoma, Hip Replacement, and Knee Replacement. Dr. Leddy is currently accepting new patients.

    Distinguished in Fibrous Dysplasia
    Otolaryngology | General Surgery
    Distinguished in Fibrous Dysplasia
    Otolaryngology | General Surgery

    ColumbiaDoctors - Midtown

    51 West 51st Street, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Lawrence Lustig is an Otolaryngologist and a General Surgeon practicing medicine in New York, New York. Dr. Lustig is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Infant Hearing Loss, Fibrous Dysplasia, Osteitis Fibrosa, and Myringotomy. Dr. Lustig is board certified in Otolaryngology and Neurotology. Dr. Lustig is currently accepting new patients.

    Advanced in Fibrous Dysplasia
    Endocrinology
    Advanced in Fibrous Dysplasia
    Endocrinology

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Mannstadt is an Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Mannstadt is rated as an Advanced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Hypoparathyroidism, Mccune-Albright Syndrome, Autosomal Dominant Hypocalcemia, Hormone Replacement Therapy (HRT), and Thyroidectomy.

    Showing 1-20 of 1,550

    Last Updated: 04/28/2026

    What is the definition of Fibrous Dysplasia?

    Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected.

    When should I see a Fibrous Dysplasia doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrous Dysplasia doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrous Dysplasia doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrous Dysplasia doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrous Dysplasia doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrous Dysplasia doctor search results page. 

    Why is it important to get a second opinion from a different Fibrous Dysplasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrous Dysplasia doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrous Dysplasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrous Dysplasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrous Dysplasia doctors in The United States?

    Look for the filter feature on the left side of the Fibrous Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrous Dysplasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrous Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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