The 20 Best Fibrous Dysplasia Doctors in The United States
Find the Top Fibrous Dysplasia Experts and Specialists
Endocrinology Clinic At Parnassus
Dr. Edward Hsiao is an endocrinologist who specializes in metabolic bone diseases, such as severe osteoporosis and osteogenesis imperfecta, and other bone disorders. He also cares for patients with calcium, phosphorous, vitamin D, and parathyroid hormone disorders. He has particular interests in fibrodysplasia ossificans progressiva (a condition in which bone gradually replaces muscle and other connective tissues) and fibrous dysplasia/McCune-Albright syndrome (a disorder that causes fibrous tissue to develop in bones). E. Hsiao's current research interests center on understanding how hormones and signaling pathways control human bone formation. His laboratory uses advanced cellular, genetic, and bioengineering tools to identify key pathways that could be targeted for disease therapies. He is also involved in clinical research to develop better diagnostic and treatment strategies for patients with bone diseases. E. Hsiao earned his medical degree and a doctorate in molecular biology and genetics from the Johns Hopkins School of Medicine, where he also completed a residency in internal medicine. He completed fellowship training in diabetes, endocrinology and metabolism at UCSF. E. Hsiao is a member of the Endocrine Society and American Society for Bone and Mineral Research. In addition, he actively works with patient support groups through the Fibrous Dysplasia Foundation and International Fibrodysplasia Ossificans Progressiva Association, and the International Clinical Council on FOP. E. Hsiao serves as director of UCSF's fellowship program in diabetes, endocrinology and metabolism. He has received the March of Dimes Basil O'Connor Starter Scholar Research Award and the Doris Duke Clinical Scientist Development Award, as well as research grant funding from the National Institutes of Health. In his free time, Hsiao enjoys reading, the outdoors and photography. Dr. Hsiao is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, and Rhizomelic Syndrome. Dr. Hsiao is board certified in American Board Of Internal Medicine, Endocrinology Diabetes & Metab. Dr. Hsiao is currently accepting new patients.
Children's National Hospital
Alison Boyce is a Pediatric Endocrinologist practicing medicine in Washington, Washington, D.c.. Dr. Boyce is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Osteitis Fibrosa, Fibrous Dysplasia, Mccune-Albright Syndrome, Nerve Decompression, and Splenectomy.
Children's National Hospital
Vivian Szymczuk is a Pediatric Endocrinologist practicing medicine in Silver Spring, Maryland. Dr. Szymczuk is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Osteitis Fibrosa, Mccune-Albright Syndrome, Nerve Decompression, and Tenotomy.
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Rachel Gafni is a Pediatric Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Gafni is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Autosomal Dominant Hypocalcemia, Osteomalacia, Osteitis Fibrosa, Malnutrition, and Hormone Replacement Therapy (HRT).
Finger Lakes Medical Group
Michael Collins is a primary care provider, practicing in Internal Medicine in Geneva, New York. Dr. Collins is rated as an Elite provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Fibrous Dysplasia, Mccune-Albright Syndrome, Osteomalacia, Hormone Replacement Therapy (HRT), and Splenectomy.
St. Christopher's Pediatric Associates Radiology - E. Erie Avenue
. Dr. Webb is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Aseptic and Alopecic Nodules of Scalp (AANS). Dr. Webb is board certified in American Board Of Radiology.
State Of Franklin Healthcare Associates- Comprehensive Breast Center
. Dr. Kohne is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 56 other conditions, according to our data. His clinical expertise encompasses Osteopenia, Melorheostosis, Melorheostosis with Osteopoikilosis, and Visceromegaly. Dr. Kohne is board certified in American Board Of Radiology.
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Kelly Wentworth is an Endocrinologist practicing medicine in San Francisco, California. Dr. Wentworth is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Mccune-Albright Syndrome, Osteitis Fibrosa, and Rhizomelic Syndrome.
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Sheila Haji is an Endocrinologist practicing medicine in Beverly Hills, California. Dr. Haji is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Postmenopausal Osteoporosis, Osteoporosis, and Hyperparathyroidism.
Nicholas Bernthal is a Pediatric Orthopedics provider practicing medicine in Los Angeles, California. Dr. Bernthal is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Bone Tumor, Synovitis, Osteotomy, and Hip Replacement. Dr. Bernthal is currently accepting new patients.
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Kelly Roszko is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Roszko is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Autosomal Dominant Hypocalcemia, Fibrous Dysplasia, Osteitis Fibrosa, Calcinosis, and Hormone Replacement Therapy (HRT).
Family Medicine Clinic At Durham Outpatient Center
Birgit Khandalavala is a primary care provider, practicing in Family Medicine in Omaha, Nebraska. She has been practicing medicine for over 41 years. Dr. Khandalavala is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Prolidase Deficiency, Obesity, Peripheral Neuropathy, and Metabolic Syndrome.
Orthopaedics Clinic At Lauritzen Outpatient Center
Sean Mcgarry is an Orthopedics provider practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 28 years. Dr. Mcgarry is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Adult Soft Tissue Sarcoma, Bone Tumor, Osteosarcoma, Myxoid Liposarcoma, and Hip Replacement.
OSF Illinois Neurological Institute - Neurosurgery
Jeffrey Klopfenstein is a Neurosurgery provider practicing medicine in Peoria, Illinois. Dr. Klopfenstein is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Radiation Induced Meningioma, Meningioma, Stroke, Carotid Artery Surgery, and Laminectomy. Dr. Klopfenstein is board certified in American Board Of Neurological Surgery.
West Reading Radiology Associates
. Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. Her clinical expertise encompasses Gas Bloat Syndrome, CAPOS Syndrome, Fibrous Dysplasia, and Galactocoele. Dr. Shaw is board certified in .
Reading Hospital Hematology Oncology
. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 75 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Stomach Cancer, Small Cell Lung Cancer (SCLC), Endoscopy, and Sacral Nerve Stimulation. Dr. Song is board certified in American Board Of Internal Medicine.
Ear, Nose, Throat (ENT) And Audiology At Lauritzen Outpatient Center
Samuel Pate is a General Surgeon practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 22 years. Dr. Pate is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Sinusitis, Perichondritis, Nasal Septal Hematoma, and Myringotomy.
MUSC Health Orthopaedics At West Ashley Medical Pavilion
Dr. Lee Leddy did his undergraduate work at Emory University where he received his BS in biological science while lettering on the varsity basketball team. He then received his M.D. from the University of Florida College of Medicine in Gainesville, Florida. Dr. Leddy went back to Emory University to complete his internship and residency in the Department of Orthopaedic Surgery. He joined MUSC in 2009 after completing a fellowship in orthopaedic oncology at Emory University where he helped establish the sarcoma program and is currently the leader of the Sarcoma Disease Focus Team at Hollings Cancer Center.Dr. Leddy currently serves as the chairman of the Department of Orthopaedics and Physical Medicine and the chief of the Musculoskeletal Integrated Center of Clinical Excellence (ICCE). He is actively involved in both clinical and basic science research and collaborates in the Sarcoma Immunotherapy Lab.As a member of the MUSC Department of Orthopaedics and Physical Medicine, Dr. Leddy's primary focus is providing excellent care to patients with benign and malignant bone and soft tissues tumors in children and adults, metastatic bone cancer, fracture care, and primary and revision hip replacements. Dr. Leddy is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Rhabdoid Tumor Predisposition Syndrome, Bone Tumor, Epithelioid Sarcoma, Hip Replacement, and Knee Replacement. Dr. Leddy is currently accepting new patients.
ColumbiaDoctors - Midtown
Lawrence Lustig is an Otolaryngologist and a General Surgeon practicing medicine in New York, New York. Dr. Lustig is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Infant Hearing Loss, Fibrous Dysplasia, Osteitis Fibrosa, and Myringotomy. Dr. Lustig is board certified in Otolaryngology and Neurotology. Dr. Lustig is currently accepting new patients.
Massachusetts General Hospital
Michael Mannstadt is an Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Mannstadt is rated as an Advanced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Hypoparathyroidism, Mccune-Albright Syndrome, Autosomal Dominant Hypocalcemia, Hormone Replacement Therapy (HRT), and Thyroidectomy.
Last Updated: 04/28/2026








