The 20 Best Fibrous Dysplasia Doctors Near Me in Washington, DC

Find the Top Fibrous Dysplasia Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 9 doctor with experience in Fibrous Dysplasia near Washington, DC. Of these, 7 are Experienced, 1 are Advanced and 1 are Distinguished.

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9 providers found
    Distinguished in Fibrous Dysplasia
    Otolaryngology
    Distinguished in Fibrous Dysplasia
    Otolaryngology
    Referral may be required

    MedStar Health: Otolaryngology At MedStar Georgetown University Hospital

    3800 Reservoir Rd NW Fl 1, 
    Washington, DC 
    Languages Spoken:
    English
    Offers Telehealth

    Timothy Deklotz is an Otolaryngologist practicing medicine in Washington, Washington, D.c.. Dr. Deklotz is rated as a Distinguished provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Teratocarcinosarcoma, Olfactory Neuroblastoma, Fibrous Dysplasia, Endoscopic Transnasal Transsphenoidal Surgery, and Nerve Decompression.

    Advanced in Fibrous Dysplasia
    Pediatrics | Pediatric Endocrinology
    Advanced in Fibrous Dysplasia
    Pediatrics | Pediatric Endocrinology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    17+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Andrea Estrada is a Pediatric Endocrinologist practicing medicine in Washington, Washington, D.c.. She has been practicing medicine for over 17 years. Dr. Estrada is rated as an Advanced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Mccune-Albright Syndrome, Osteitis Fibrosa, Albright's Hereditary Osteodystrophy, and Pseudohypoparathyroidism. Dr. Estrada is board certified in Pediatric Endocrinology: American Board Of Pediatrics, 2015 and Pediatrics: American Board Of Pediatrics, 2012.

    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia
    Referral may be required

    MedStar Health: Pediatrics At Tenleytown

    4200 Wisconsin Ave NW Ste 4, 
    Washington, DC 
    Languages Spoken:
    English

    Evgenia Gourgari is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Gourgari is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Type 1 Diabetes (T1D), Panhypopituitarism, Type 2 Diabetes (T2D), and Intersex.

    Learn about our expert tiers
    Experienced in Fibrous Dysplasia
    Experienced in Fibrous Dysplasia
    Referral may be required

    Main Hospital-Orthopaedics Clinic

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Experience:
    36+ years
    Languages Spoken:
    English
    Offers Telehealth

    Robert Henshaw, MD, is the director of Orthopaedic Oncology at Children’s National Hospital. Dr. Henshaw is board-certified in orthopaedic surgery specializes in orthopaedic oncology. He is renowned for introducing minimally invasive procedures for children with bone tumors and performing cutting-edge limb sparing surgery for children with sarcomas (cancer of the musculoskeletal system) using a variety of innovative techniques including expandable implants for growing children. He is also a Professor of Orthopaedic Surgery at Georgetown University School of Medicine. Dr. Henshaw is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma Embryonal, Osteotomy, and Bone Graft. Dr. Henshaw is board certified in Orthopaedic Surgery: American Board Of Orthopaedic Surgery, 1999.

    Experienced in Fibrous Dysplasia
    Pediatrics | Pediatric Orthopedics
    Experienced in Fibrous Dysplasia
    Pediatrics | Pediatric Orthopedics
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    49+ years
    Languages Spoken:
    English
    Offers Telehealth

    Laura L. Tosi, MD, is the director of the Bone Health Program at Children’s National Hospital. Her practice focuses on orthopaedic management of children with physical disabilities and birth defects. Dr. Tosi also works to increase physician awareness of bone health issues for women and children, with the goal of reducing debilitating bone injury as the population ages. Dr. Tosi also treats children and adults with spina bifida and other congenital orthopaedic problems. Dr. Tosi has lectured extensively on women’s bone health, particularly osteoporosis prevention, to women’s organizations throughout the United States. Dr. Tosi is a member of the Committee on Women’s Health Issues for the American Academy of Orthopaedic Surgeons and serves on the Boards of Directors for the Orthopaedic Research and Education Foundation and the Academic Orthopaedic Society. Specialties: Rare Bone Disease, Bone Health, and Trauma. Dr. Tosi is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Macrodactyly of the Foot, Acromicric Dysplasia, and Osteoporosis. Dr. Tosi is board certified in Orthopaedic Surgery: American Board Of Orthopaedic Surgery, 1986.

    Experienced in Fibrous Dysplasia
    General Surgery
    Experienced in Fibrous Dysplasia
    General Surgery
    Referral may be required

    Main Hospital-Diabetes Complex Clinic

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Experience:
    43+ years
    Languages Spoken:
    English

    Robert Keating, MD, is currently a McCullough distinguished professor, interim senior vice president, Neuroscience and Behavioral Medicine Center and chief of Neurosurgery at Children’s National Hospital. A graduate of Georgetown University Medical School, he completed a neurosurgery residency and fellowship in pediatric neurosurgery/craniofacial surgery at the Albert Einstein and Montefiore Medical Center in the Bronx, NY. Following his training, Dr. Keating served in the U.S. Navy and was stationed at the Oakland Naval Hospital serving as the chief from 1991-1994. After his time in the Navy, he returned to the Bronx where he was on staff at Montefiore Medical Center as well as the Bronx Municipal Hospital Center for two years before coming back to Washington, D.C., in 1996 to join the faculty at Children’s National Dr. Keating's past appointments include the president of the medical staff at Children’s National, as well as head of credentials. He currently maintains a busy practice of pediatric neurosurgery, with an emphasis on tumors, Chiari malformations, craniofacial reconstruction, spinal dysraphism, spasticity and brachial plexus surgery. As a member of the American Society of Pediatric Neurosurgery and International Society of Pediatric Neurosurgery, he has published and presented extensively in the field. His publications include the previous texts, “An Atlas of Orbitocranial Surgery” and “Tumors of the Pediatric Nervous System” (2nd edition published in 2013), with current work on Neurosurgical Operative Atlas, (2nd ed. Goodrich JT, and Keating RF, Thieme) due for publication in 2018. He is also chair, medical advisory committee on the Board of the American Syringomyelia Alliance Project as well as a founding member of the Posterior Fossa Society and maintains long-standing membership in the CNS, AANS, ASPN and ISPN. Dr. Keating is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Craniosynostosis, Metopic Ridge, Chiari Malformation Type 1, Posterior Fossa Decompression, and Craniectomy. Dr. Keating is board certified in Neurological Surgery: American Board Of Neurological Surgery, 2000 and Neurological Surgery: American Board Of Neurological Surgery, 1993.

    Experienced in Fibrous Dysplasia
    Orthopedics | Pediatric Orthopedics
    Experienced in Fibrous Dysplasia
    Orthopedics | Pediatric Orthopedics
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Megan Young, MD, is a pediatric orthopaedic surgeon at Children’s National Hospital and assistant professor at George Washington University with a special concentration in limb lengthening and complex lower extremity deformity reconstruction. Her other areas of interest include orthopedic injuries, growth arrest problems, limb deficiencies, developmental hip dysplasia and clubfoot. She completed orthopaedic residency training at Boston University and subspecialty training in pediatrics at the Texas Scottish Rite Hospital for Children, where she learned from experts at the Center for Excellence in Limb Lengthening and Reconstruction. Dr. Young was named the 2019 Limb Lengthening and Reconstruction Society Traveling Fellow and spent time with leaders in the field learning new advanced techniques to offer patients and families in the DC Metro area. Dr. Young was also selected as a Traveling Fellow for the Pediatric Orthopedic Society of North America in 2015 and visited a number of hospitals throughout South America lecturing on the history of limb lengthening and sharing knowledge of novel internal techniques to lengthen bones. She has a passion for traveling and has volunteered time caring for children around the globe including Honduras, Guatemala and the Caribbean. She enjoys developing longstanding relationships with her patients and prides in the ability to give children back a functional quality of life. Outside of the hospital Dr. Young maintains an active lifestyle enjoying paddleboarding, kayaking, hiking, yoga and spending quality time with her young daughter and husband. Specialties: Limb Lengthening and Deformity. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Knock Knees, Beukes Familial Hip Dysplasia, Clubfoot, and Congenital Femoral Deficiency. Dr. Young is board certified in American Board Of Orthopaedic Surgery, 2014.

    Experienced in Fibrous Dysplasia
    Otolaryngology
    Experienced in Fibrous Dysplasia
    Otolaryngology
    Referral may be required

    MedStar Health: Otolaryngology At MedStar Washington Hospital Center

    106 Irving St NW, 
    Washington, DC 
    Languages Spoken:
    English

    Stanley Hung is an Otolaryngologist practicing medicine in Washington, Washington, D.c.. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Adenoid Cystic Carcinoma, Sialadenitis, Acinic Cell Carcinoma of Salivary Glands, Laryngectomy, and Percutaneous Coronary Intervention (PCI).

    Experienced in Fibrous Dysplasia
    Neurosurgery
    Experienced in Fibrous Dysplasia
    Neurosurgery
    Referral may be required

    MedStar Georgetown Neurosurgery

    110 Irving St NW Ste G-19, 
    Washington, DC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Samir Sur is a Neurosurgery provider practicing medicine in Washington, Washington, D.c.. Dr. Sur is rated as an Experienced provider by MediFind in the treatment of Fibrous Dysplasia. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Stroke, Brain Aneurysm, Cerebral Arteriovenous Malformation, Thrombectomy, and Stent Placement. Dr. Sur is currently accepting new patients.

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    Last Updated: 06/30/2026

    What is the definition of Fibrous Dysplasia?

    Fibrous dysplasia is a bone disease that destroys and replaces normal bone with fibrous bone tissue. One or more bones can be affected.

    When should I see a Fibrous Dysplasia doctor near Washington, DC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrous Dysplasia doctor near Washington, DC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrous Dysplasia doctors near Washington, DC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrous Dysplasia doctors near Washington, DC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrous Dysplasia doctor near Washington, DC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrous Dysplasia doctor search results page. 

    Why is it important to get a second opinion from a different Fibrous Dysplasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrous Dysplasia doctor near Washington, DC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrous Dysplasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrous Dysplasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrous Dysplasia doctors near Washington, DC?

    Look for the filter feature on the left side of the Fibrous Dysplasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrous Dysplasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrous Dysplasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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