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    Last Updated: 10/30/2025

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    MediFind found 303 doctor with experience in Hereditary Coproporphyria. Of these, 213 are Experienced, 74 are Advanced, 11 are Distinguished and 4 are Elite.

    Location
    LocationClose
    303 providers found
      Elite in Hereditary Coproporphyria
      Medical Genetics | Pediatrics
      Elite in Hereditary Coproporphyria
      Medical Genetics | Pediatrics
      1 Gustave L Levy Pl, Box 1498, 
      New York, NY 
      Languages Spoken:
      English

      Robert Desnick is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Desnick is rated as an Elite provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Fabry Disease, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Elite in Hereditary Coproporphyria
      Elite in Hereditary Coproporphyria
      Beersheba, D, IL 

      Yonatan Edel practices in Beersheba, Israel. Mr. Edel is rated as an Elite expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Variegate Porphyria, Porphyria, and Acute Intermittent Porphyria.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Hereditary Coproporphyria
      Elite in Hereditary Coproporphyria
      London, ENG, GB 

      Penelope Stein practices in London, United Kingdom. Ms. Stein is rated as an Elite expert by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Hereditary Coproporphyria, and Acute Hepatic Porphyria (AHP).

      Learn about our expert tiers
      Elite in Hereditary Coproporphyria
      Elite in Hereditary Coproporphyria
      Chemnitz, SN, DE 

      Ulrich Stolzel practices in Chemnitz, Germany. Mr. Stolzel is rated as an Elite expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Hereditary Coproporphyria, and Liver Transplant.

      Jerry X. Liu
      Experienced in Hereditary Coproporphyria
      Hematology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology | Oncology

      Advocate Infusion Center

      525 E Congress Pkwy, Ste 300, 
      Crystal Lake, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Jerry Liu is a Hematologist and an Oncologist in Crystal Lake, Illinois. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Paget Disease of the Breast, Colorectal Cancer, Familial Colorectal Cancer, Anemia, and Bone Marrow Aspiration.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      1003 S 5th St, Ste 3l, 
      Tacoma, WA 
      Languages Spoken:
      English, Castilian, Danish, Hakka, Hindi, Japanese, Mandarin, Portuguese, Punjabi, Russian, Spanish, Taiwanese, Urdu
      Accepting New Patients
      Offers Telehealth

      Min-chun Chen is a Hematologist Oncology specialist and a Hematologist in Tacoma, Washington. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Essential Thrombocythemia, Myeloproliferative Neoplasms (MPN), Philadelphia-Negative Chronic Myeloid Leukemia, and Chronic Myelogenous Leukemia (CML). Dr. Chen is currently accepting new patients.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sneha Phadke is a Hematologist Oncology specialist and an Oncologist in Iowa City, Iowa. Dr. Phadke is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Breast Cancer, Angiosarcoma, Inflammatory Breast Cancer, and Paget Disease of the Breast. Dr. Phadke is currently accepting new patients.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Petah Tiqwa, M, IL 

      Rivka Mamet practices in Petah Tiqwa, Israel. Ms. Mamet is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Hereditary Coproporphyria, Variegate Porphyria, Porphyria Cutanea Tarda, and Porphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Wellington, WGN, NZ 

      Cindy Towns practices in Wellington, New Zealand. Ms. Towns is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Hereditary Coproporphyria, Porphyria, Acute Intermittent Porphyria, and Delirium.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Bergen, NO 

      Sverre Sandberg practices in Bergen, Norway. Mr. Sandberg is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Porphyria Cutanea Tarda.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria

      Karolinska Institutet

      Stockholm, AB, SE 

      Pauline Harper practices in Stockholm, Sweden. Ms. Harper is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Acute Intermittent Porphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Variegate Porphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Paris, FR 

      Laurent Gouya practices in Paris, France. Mr. Gouya is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Protoporphyria, and Bone Marrow Transplant.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Tel Aviv, TA, IL 

      Ran Kaftory practices in Tel Aviv, Israel. Mr. Kaftory is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Variegate Porphyria, Porphyria, and Protoporphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      39 Jabotinsky St, 4941492, 
      Petah Tiqwa, M, IL 

      Igor Snast practices in Petah Tiqwa, Israel. Mr. Snast is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Variegate Porphyria, Erythropoietic Protoporphyria, and Protoporphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Cardiff, WLS, GB 

      Michael Badminton practices in Cardiff, United Kingdom. Mr. Badminton is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Variegate Porphyria, and Hereditary Coproporphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria

      Karolinska Institutet

      Stockholm, AB, SE 

      Ylva Floderus practices in Stockholm, Sweden. Ms. Floderus is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Variegate Porphyria, Hereditary Coproporphyria, Acute Intermittent Porphyria, and Porphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Melbourne, VIC, AU 

      George Varigos practices in Melbourne, Australia. Mr. Varigos is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Atopic Dermatitis, Porphyria, and Erythropoietic Protoporphyria.

      Distinguished in Hereditary Coproporphyria
      Distinguished in Hereditary Coproporphyria
      Bergen, NO 

      Aasne Aarsand practices in Bergen, Norway. Aarsand is rated as a Distinguished expert by MediFind in the treatment of Hereditary Coproporphyria. Their top areas of expertise are Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Porphyria Cutanea Tarda.

      Raymond Y. Wang
      Advanced in Hereditary Coproporphyria
      Medical Genetics
      Advanced in Hereditary Coproporphyria
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      Angelika Erwin
      Advanced in Hereditary Coproporphyria
      Advanced in Hereditary Coproporphyria

      N Building - Education Building And Lerner Research Institute

      9620 Carnegie Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English, French, German, Spanish
      Offers Telehealth

      Angelika Erwin is a Pediatrics provider in Cleveland, Ohio. Dr. Erwin is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Gaucher Disease Type 3, and Gaucher Disease.

      Showing 1-20 of 303

      Last Updated: 10/30/2025

      What is the definition of Hereditary Coproporphyria?

      Hereditary coproporphyria (HCP) is a rare inherited form of liver (hepatic) porphyria, characterized by neurological symptoms in the form of episodes (acute attacks) of stomach pain, nausea, vomiting, weakness, numbness, and pain in the hands and feet (neuropathy). The porphyrias are a group of blood conditions caused by a lack of an enzyme in the body that makes heme, an important molecule that carries oxygen throughout the body and is vital for all of the body's organs. Symptoms present during the attacks may include body pain, nausea and vomiting, increased heart rate (tachycardia), and high blood pressure. Less common symptoms include seizures, skin lesions, and paralysis of the arms and legs, body trunk, and respiratory muscles. Most individuals with HCP do not have any signs or symptoms between attacks. HCP is caused by genetic changes in the CPOX gene and is inherited in an autosomal dominant manner. Diagnosis is based on the symptoms and specific blood, urine and stool testing.

      When should I see a Hereditary Coproporphyria doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Hereditary Coproporphyria doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hereditary Coproporphyria doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hereditary Coproporphyria doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Hereditary Coproporphyria doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. 

      Why is it important to get a second opinion from a different Hereditary Coproporphyria doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Hereditary Coproporphyria doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hereditary Coproporphyria doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hereditary Coproporphyria doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hereditary Coproporphyria doctors near me?

      Look for the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Hereditary Coproporphyria doctor that offers video calls?

      Look for the filter feature on the left-side of the Hereditary Coproporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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