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    Last Updated: 10/30/2025

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    MediFind found 4 doctor with experience in Hereditary Coproporphyria near Boston, MA. Of these, 4 are Experienced.

    Location
    LocationClose
    4 providers found
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Transfusion Medicine | Hematology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Transfusion Medicine | Hematology

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Larissa Bornikova is a Hematologist Oncology specialist and a Transfusion Medicine provider in Boston, Massachusetts. Dr. Bornikova is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Von Willebrand Disease (VWD), Heyde Syndrome, Hemochromatosis, and Congenital Afibrinogenemia. Dr. Bornikova is currently accepting new patients.

      Experienced in Hereditary Coproporphyria
      Medical Genetics | Pediatrics
      Experienced in Hereditary Coproporphyria
      Medical Genetics | Pediatrics

      Atrius Health Inc

      133 Brookline Ave, 
      Boston, MA 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joel Krier is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Krier is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Deep Brain Stimulation.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Hereditary Coproporphyria
      Internal Medicine
      Experienced in Hereditary Coproporphyria
      Internal Medicine

      Lahey Clinic Inc

      41 Mall Rd, 
      Burlington, MA 
       (11.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lars Reinhold is a primary care provider, practicing in Internal Medicine in Burlington, Massachusetts. Dr. Reinhold is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Metatarsalgia, Diabetic Neuropathy, Pulmonary Fibrosis, and Idiopathic Pulmonary Fibrosis.

      Learn about our expert tiers
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology

      Lahey Clinic Inc

      1 Essex Ctr Dr, 
      Peabody, MA 
       (13.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Karl D'silva is a Hematologist Oncology specialist and an Oncologist in Peabody, Massachusetts. Dr. D'silva is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Ampullary Cancer, Familial Colorectal Cancer, Small Cell Lung Cancer (SCLC), and Lung Adenocarcinoma. Dr. D'silva is currently accepting new patients.

      Showing 1-4 of 4

      Last Updated: 10/30/2025

      What is the definition of Hereditary Coproporphyria?

      Hereditary coproporphyria (HCP) is a rare inherited form of liver (hepatic) porphyria, characterized by neurological symptoms in the form of episodes (acute attacks) of stomach pain, nausea, vomiting, weakness, numbness, and pain in the hands and feet (neuropathy). The porphyrias are a group of blood conditions caused by a lack of an enzyme in the body that makes heme, an important molecule that carries oxygen throughout the body and is vital for all of the body's organs. Symptoms present during the attacks may include body pain, nausea and vomiting, increased heart rate (tachycardia), and high blood pressure. Less common symptoms include seizures, skin lesions, and paralysis of the arms and legs, body trunk, and respiratory muscles. Most individuals with HCP do not have any signs or symptoms between attacks. HCP is caused by genetic changes in the CPOX gene and is inherited in an autosomal dominant manner. Diagnosis is based on the symptoms and specific blood, urine and stool testing.

      When should I see a Hereditary Coproporphyria doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Hereditary Coproporphyria doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hereditary Coproporphyria doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hereditary Coproporphyria doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Hereditary Coproporphyria doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. 

      Why is it important to get a second opinion from a different Hereditary Coproporphyria doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Hereditary Coproporphyria doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hereditary Coproporphyria doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hereditary Coproporphyria doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hereditary Coproporphyria doctors near Boston, MA?

      Look for the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Hereditary Coproporphyria doctor that offers video calls?

      Look for the filter feature on the left-side of the Hereditary Coproporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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