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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in Hereditary Coproporphyria near New York, US. Of these, 6 are Experienced, 4 are Advanced and 1 are Elite.

    Location
    LocationClose
    11 providers found
      Elite in Hereditary Coproporphyria
      Medical Genetics | Pediatrics
      Elite in Hereditary Coproporphyria
      Medical Genetics | Pediatrics
      1 Gustave L Levy Pl, Box 1498, 
      New York, NY 
      Languages Spoken:
      English

      Robert Desnick is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Desnick is rated as an Elite provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Fabry Disease, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology

      Department Of Medicine Medical Serv Grp At Suny Hlth Sci Ctr Syr In

      750 E Adams St, 
      Syracuse, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Zheng Zhou is a Hematologist Oncology specialist and a Hematologist in Syracuse, New York. Dr. Zhou is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Monoclonal Gammopathy of Undetermined Significance (MGUS), Schnitzler Syndrome, Large-Cell Immunoblastic Lymphoma, Bone Marrow Aspiration, and Bone Marrow Transplant.

      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology

      New York Oncology Hematology PC

      43 New Scotland Ave, 
      Albany, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Muhammad Hussain is a Hematologist Oncology specialist and a Hematologist in Albany, New York. Dr. Hussain is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Burkitt Lymphoma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Waldenstrom Macroglobulinemia, Multiple Myeloma, and Bone Marrow Aspiration.

      Learn about our expert tiers
      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology
      Advanced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology

      Rpci Oncology, PC

      21 Porter Ave, 
      Jamestown, NY 
      Languages Spoken:
      English

      Jairus Ibabao is a Hematologist Oncology specialist and an Oncologist in Jamestown, New York. Dr. Ibabao is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Paget Disease of the Breast, Pleuropulmonary Blastoma, Chronic Lymphocytic Leukemia (CLL), and Lung Cancer.

      Advanced in Hereditary Coproporphyria
      Family Medicine
      Advanced in Hereditary Coproporphyria
      Family Medicine
      17 Sherman St, Suite 2100, 
      Jamestown, NY 
      Languages Spoken:
      English

      Patrick Collins is a primary care provider, practicing in Family Medicine in Jamestown, New York. Dr. Collins is rated as an Advanced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Hereditary Coproporphyria, Variegate Porphyria, Porphyria, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Sanjeev Jain
      Experienced in Hereditary Coproporphyria
      Hematology
      Experienced in Hereditary Coproporphyria
      Hematology

      North Shore Hematology Oncology Associates PC

      48 Route 25a, 
      Smithtown, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Sanjeev Jain is a Hematologist in Smithtown, New York. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Anemia, Blood Clots, Childhood Iron Deficiency Anemia, and Lung Cancer.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology
      169 Riverside Dr, 
      Binghamton, NY 
      Languages Spoken:
      English

      Jonathan Kloss is a Hematologist Oncology specialist and an Oncologist in Binghamton, New York. Dr. Kloss is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Homocystinuria due to MTHFR Deficiency, B-Cell Lymphoma, Acute Promyelocytic Leukemia, Philadelphia-Negative Chronic Myeloid Leukemia, and Bone Marrow Aspiration.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology

      North Shore Hematology Oncology Associates PC

      285 Sills Rd, Bldg 16, 
      East Patchogue, NY 
      Languages Spoken:
      English

      Shahid Nawaz is a Hematologist Oncology specialist and a Hematologist in East Patchogue, New York. Dr. Nawaz is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Blood Clots, Malabsorption, Thrombocytopenia, and Anemia.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Oncology | Hematology

      North Shore Hematology Oncology Associates PC

      285 Sills Rd, Bldg 16, 
      East Patchogue, NY 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Amishi Desai is a Hematologist Oncology specialist and an Oncologist in East Patchogue, New York. Dr. Desai has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Anemia, Blood Clots, Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, and Bone Marrow Aspiration.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology

      North Shore Hematology Oncology Associates PC

      285 Sills Rd, Bldg 16, 
      East Patchogue, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Richard Zuniga is a Hematologist Oncology specialist and a Hematologist in East Patchogue, New York. Dr. Zuniga is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. His top areas of expertise are Thrombocytopenia, Childhood Iron Deficiency Anemia, Blood Clots, and Iron Deficiency Anemia.

      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology
      Experienced in Hereditary Coproporphyria
      Hematology Oncology | Hematology | Oncology

      Icahn School Of Medicine At Mount Sinai

      1111 Amsterdam Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Madhuri Devabhaktuni is a Hematologist Oncology specialist and a Hematologist in New York, New York. Dr. Devabhaktuni is rated as an Experienced provider by MediFind in the treatment of Hereditary Coproporphyria. Her top areas of expertise are Idiopathic Neutropenia, Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, and Thrombocytopenia.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of Hereditary Coproporphyria?

      Hereditary coproporphyria (HCP) is a rare inherited form of liver (hepatic) porphyria, characterized by neurological symptoms in the form of episodes (acute attacks) of stomach pain, nausea, vomiting, weakness, numbness, and pain in the hands and feet (neuropathy). The porphyrias are a group of blood conditions caused by a lack of an enzyme in the body that makes heme, an important molecule that carries oxygen throughout the body and is vital for all of the body's organs. Symptoms present during the attacks may include body pain, nausea and vomiting, increased heart rate (tachycardia), and high blood pressure. Less common symptoms include seizures, skin lesions, and paralysis of the arms and legs, body trunk, and respiratory muscles. Most individuals with HCP do not have any signs or symptoms between attacks. HCP is caused by genetic changes in the CPOX gene and is inherited in an autosomal dominant manner. Diagnosis is based on the symptoms and specific blood, urine and stool testing.

      When should I see a Hereditary Coproporphyria doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Hereditary Coproporphyria doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Hereditary Coproporphyria doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Hereditary Coproporphyria doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Hereditary Coproporphyria doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. 

      Why is it important to get a second opinion from a different Hereditary Coproporphyria doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Hereditary Coproporphyria doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Hereditary Coproporphyria doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Hereditary Coproporphyria doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Hereditary Coproporphyria doctors in New York, US?

      Look for the filter feature on the left side of the Hereditary Coproporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Hereditary Coproporphyria doctor that offers video calls?

      Look for the filter feature on the left-side of the Hereditary Coproporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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