The 20 Best Koolen De Vries Syndrome Doctors Near Me in Delaware, US
Find the Top Koolen De Vries Syndrome Experts and Specialists
Nemours Children's Hospital, Delaware
Dr. Pimpiroon Ploysangam spent most of her childhood in Bangkok, Thailand. She graduated with distinction from Boston University and received her medical degree from the University of Cincinnati. Her ophthalmology residency was at State University of New York (SUNY) Buffalo, where she served as chief resident and cultivated her interests in pediatrics and oculoplastics. She completed her pediatric ophthalmology and strabismus fellowship at Duke University, followed by an oculoplastics fellowship at the University of Pittsburgh Medical Center. Pediatrics has always had a special place in my heart. Pediatric ophthalmology truly marries my love of working with our children with the large scope of practice and surgical procedures. I have a special interest in pediatric oculoplastics. Oculoplastics beautiful balances creativity and anatomy to create an outcome that is functional but also cosmetically appropriate. Every case is unique. As a physician, I recognize that I am sometimes meeting a sick patient and their family at their worst. Such encounters are humbling, and it reminds me that it is a privilege to be my patient’s advocate. Dr. Ploysangam is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Epicanthal Folds, Oculomotor Apraxia Cogan Type, and Microphthalmia Syndromic 9. Dr. Ploysangam is board certified in American Board Of Ophthalmology.
Nemours Children's Hospital, Delaware
I chose orthopedics because I love helping people get back on their feet, and I looked at how happy Orthopedic surgeons were 20 years into their practice. That is always a good sign that you have chosen a career path wisely! I was once a kid myself! Growing up I was a babysitter and a nanny, so I kind of grew up around kids. When I did mission work in Guatemala, I gravitated toward taking care of children. When I became interested in pediatric orthopedics, I started focusing on deformity correction because that mostly affects children. I’m passionate about being a doctor in general, and a doctor at Nemours in particular. Also, I think it’s important for people to learn to take care of themselves. As health issues, smoking and obesity are personal hot-buttons for me. I love what I do, and enjoy the interaction with parents and kids. I treat the whole patient as an individual, not just their orthopedic needs, and I treat each child as my own. Dr. Nichols is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Clubfoot, Tenotomy, and Osteotomy. Dr. Nichols is board certified in American Board Of Orthopaedic Surgery.
Nemours Children's Hospital, Delaware
Dr. Dorothy Hendricks has been a pediatric ophthalmologist at Nemours for 16 years. She enjoys treating children as they grow and helping to change their lives. I treat children because of the impact that can be made on a child’s life. Even small beneficial changes to a child’s vision can help emotionally, psychologically, and socially. It’s important for me to help children not feel held back. I’m passionate about being part of a multidisciplinary group that can holistically care for a child. By treating a child from birth to adulthood, I can help improve the vision and overall health of a child; allowing the child to thrive and succeed in whatever they choose to do. Dr. Hendricks is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Retinochoroidal Coloboma, and Esotropia. Dr. Hendricks is board certified in American Board Of Ophthalmology.
Nemours Children's Hospital, Delaware
Maura Mcmanus is a Physiatrist practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 8 years. Dr. Mcmanus is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Moebius Syndrome. Dr. Mcmanus is board certified in American Board Of Physical Medicine & Rehabilitation.
Nemours Children's Hospital, Delaware
Dr. Joseph Piatt is the chief of the Division of Pediatric Neurosurgery, and a current professor of neurological surgery and pediatrics at the Sidney Kimmel Medical College of Thomas Jefferson University. Born in Pittsburgh, Dr. Piatt obtained his undergraduate degree from Swarthmore College. He went to medical school at the University of Pennsylvania; residency at Duke University in North Carolina; and fellowship at The Hospital for Sick Children in Toronto while he was on active duty for the U.S. Army. After 2 more years in uniform at Madigan Army Medical Center, Dr. Piatt took his first academic position at the Oregon Health Science University in Portland, Oregon. At the end of the millennium, he returned to the East to work at St. Christopher’s in Philadelphia and then at Nemours Children’s Hospital, Delaware. He has been at Nemours for 14 years. I enjoy working with the family dynamics of children and their parents/guardians. I love being able to help children and bring joy to their families. I am passionate about providing clarity and understanding in issues surrounding a child’s health. My goals are to employ all the resources of medical science and my own personal experience to provide the best quality care to children with neurological conditions that require surgical intervention. I strive to continue to help advance the medical science of pediatric neurosurgery for all patients and families. I take advantage of 35 years of experience in finding the right word to communicate with patients and parents with respect and clarity. Dr. Piatt is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Hydrocephalus, Moyamoya Disease, and Plagiocephaly. Dr. Piatt is board certified in American Board Of Neurological Surgery.
Nemours Children's Hospital, Delaware
Dr. William J. Parkes, IV, is a pediatric otolaryngologist (ear, nose and throat surgeon). His medical interests include hearing loss, cochlear implantation, chronic ear disease and cholesteatoma, tympanoplasty, endoscopic skull base surgery, thyroid and parathyroid surgery.Dr. Parkes first became involved with Nemours as a medical student and resident. After his fellowship at the Hospital for Sick Children in Toronto, he made the choice to come back to Nemours to continue his career, where his practice focuses on the care of children with complex ear and hearing problems. I feel privileged to have the opportunity to work with children, while also having the trust of parents to care for their children surgically. When I can care for a child and provide an answer to medical problems it is incredibly rewarding. I’m most passionate about participating in the multidisciplinary care of children with complex head and neck problems. Examples include my work as the medical director of the Cochlear Implant Team, co-director of the Minimally Invasive Skull Base Surgery program (a partnership with Thomas Jefferson University physicians) and co-lead surgeon for the surgical care of children with thyroid and parathyroid problems at Nemours. I find every interaction with children and their families, big or small, a chance to make a difference. Whether in clinic or the operating room, there are multiple opportunities to be impactful every single day. Dr. Parkes is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Ruptured Eardrum, Enlarged Adenoids, Otitis, and Hearing Loss. Dr. Parkes is board certified in American Board Of Otolaryngology.
Nemours DuPont Hospital For Children
Karen Gripp is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Gripp is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 122 other conditions, according to our data. Her clinical expertise encompasses Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.
Nemours DuPont Hospital For Children
Anne Meduri is a Pediatrics provider practicing medicine in Wilmington, Delaware. Dr. Meduri is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, CHARGE Syndrome, Microcephaly Deafness Syndrome, and Wildervanck Syndrome.
Nemours Children's Hospital, Delaware
I completed a residency in obstetrics and gynecology in which I primarily worked with adult patients, however I still felt connected to the younger women and adolescents that came to our clinic. As I was initially torn between pursuing a career in pediatrics or OB/GYN as a medical student, I found that the field of pediatric and adolescent gynecology allowed me to pursue both of these interests. And I love working with children and teens — they are resilient and full of energy, which is often contagious. I’m passionate about empowering girls and teens to make healthy choices through crucial moments in their youth by providing them with useful information to help in guiding those decisions.Outside of work, I am passionate about culinary experiences, travel and spending time with my family. I believe in treating my patients in a manner in which I would want my own family members to be treated. I try to be nice to everyone I meet, from coworkers to patients and their families. I also believe in providing comprehensive care for girls and teens — in a non-judgmental, friendly and confidential manner. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Painful Menstrual Periods, Pelvic Congestion Syndrome, Hydrocele, Menorrhagia, and Intrauterine Device Insertion. Dr. Patel is board certified in American Board Of Obstetrics & Gynecology.
Nemours Children's Hospital, Delaware
Nina Powell is a Medical Genetics provider practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 30 years. Dr. Powell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, PIK3CA-Related Overgrowth Spectrum, Chromosome 13q Deletion, and Increased Head Circumference. Dr. Powell is board certified in American Board Of Medical Genetics And Genomics.
Nemours Children's Hospital, Delaware
I was born in India to a family of doctors, so I did not have to look far for inspiration. I’m married to a pediatric cardiologist, also with duPont Hospital for Children, and I’m grateful for the opportunities I have every day to improve lives for kids and their families. As a father and surgeon, I have a soft spot for helping children in any way I can. It’s a privilege to be able to improve their lives even if there are challenges. I love to see kids getting back to enjoying life to its fullest and being able to help people deal with difficult issues. One of my proudest professional moments was the day I walked into the operating room and had the privilege to start surgically caring for children. I’m still passionate about my work and the opportunities I have every day to improve the lives of kids, one child at a time. The children I treat have serious medical problems, and it takes a whole team of professionals, working in lots of related medical and sociological fields, to make a difference in their lives, and the lives of their families. It’s an honor to be part of that team. At the end of the day, it’s all about the kids. Dr. Thacker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 66 other conditions, according to our data. Her clinical expertise encompasses Osteochondroma, Knock Knees, Hereditary Multiple Osteochondromas, Chondroblastoma, and Osteotomy. Dr. Thacker is board certified in American Board Of Orthopaedic Surgery.
Nemours Children's Hospital, Delaware
Jennifer Ty is an Orthopedics provider practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 5 years. Dr. Ty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Ganglion Cyst, Hypoplasia of the Tibia with Polydactyly, Brachydactyly Type B, and Brachydactyly Type C. Dr. Ty is board certified in American Board Of Orthopaedic Surgery.
Nemours Children's Hospital, Delaware
Both of my parents were in the medical field and strongly influenced the direction of my career. I became a physical therapist, which I enjoyed immensely, but I thought I could make a different contribution to patient care by becoming a physician. In radiology, we are part of the medical team that helps diagnose or exclude an illness and we help to direct the course of our patient’s treatment. Working with children is an amazing experience. Kids are so resilient and bounce back from all types of difficult situations. They each have such a unique perspective and we try our best to tailor our interactive imaging procedures to the child. Sometimes this involves providing anatomy lessons to teen patients, other times it involves just “getting it over with.” We aim to make our imaging procedures as interesting and as comfortable as possible. My areas of interest include: Pediatric Body Imaging Fetal Imaging Child Abuse I try to provide the most accurate information based on our imaging studies to the patient’s medical team so that the child can be treated as quickly as possible. I am fortunate to work with an incredible group of medical practitioners at Nemours/Alfred I. duPont Hospital for Children who share my passion to provide the highest quality medical care to all children. Dr. Harty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses X-Linked Spondyloepiphyseal Dysplasia Tarda, Weissenbacher-Zweymuller Syndrome, Kniest Dysplasia, and Spondyloepiphyseal Dysplasia. Dr. Harty is board certified in American Board Of Radiology.
Nemours Children's Hospital, Delaware
Dr. Aaron C. Chidekel is division chief of pulmonology, co-medical director of the sleep program and director of the hospital's cystic fibrosis program. He's an associate professor of pediatrics at the Sidney Kimmel Medical College at Thomas Jefferson University, author of medical journal articles and books, invited lecturer and active researcher. How can you not love kids and want to do all you can to help them? After all, they are our future. If you can positively impact the life of a child, you also impact a little bit of our future. I became a doctor because I wanted to help people. One of my mentors in medical school was an early pioneer in the treatment of cystic fibrosis (CF), and I picked up on his passion for helping those with the disease. Since his early work to today, kids with CF are living longer and better. That's very exciting and led to my wanting to help kids with CF, too — as well as those with asthma and other pulmonary conditions. I'm passionate about working with the whole family. It's the best way for each child to have the best possible outcome, and helps the whole family feel ownership of and contribution to the child's health. I like to help the kids and their families deal with the challenges they are facing. This can be challenging for me as well, but it's ultimately very rewarding when I can make a positive difference for a child and family.I'm also passionate about teaching kids and their families about asthma, CF and other conditions and how they can take care of themselves and live as healthy a life as possible.Learning is very important to my own practice as a doctor as well. I find it crucial to stay up to date on the very latest regarding conditions and treatments. I believe that caring and contributing my skills as a physician can help make a difference for a child and family. Also, a positive attitude can help people get through tough challenges and sometimes serious health concerns. I believe my patients pick up on this and gain confidence from it — although they're often incredibly positive already, no matter what life has thrown at them. Dr. Chidekel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Ellis-Van Creveld Syndrome, Cystic Fibrosis, Obstructive Sleep Apnea, and Hypochondroplasia. Dr. Chidekel is board certified in American Board Of Pediatrics.
Nemours Children's Hospital, Delaware
Tal Grunwald is an Endocrinologist practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 33 years. Dr. Grunwald is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Precocious Puberty. Dr. Grunwald is board certified in American Board Of Pediatrics.
Nemours Children's Hospital, Delaware
My mother’s career as a nurse started my interest in medicine. I volunteered as a candy striper during high school and worked as a nursing assistant through college. After college and medical school in my home state of Ohio, I moved to Delaware for a Nemours residency that combined pediatrics with physical medicine and rehabilitation. Physical medicine and rehabilitation is a way to help children with neuromuscular conditions reach the highest function that they can. I find my patients fun to work with, I love watching them grow, and I enjoy getting to know them and their families. The kids I treat inspire me with their resilience. I’m passionate about helping families of children with neuromuscular injuries or congenital issues become active, informed participants on their child’s care team. It takes a group effort to help an injured child return to prior function or to help a child with a chronic condition make the most of function they have. I make the patient and family’s goals my own. We may be trying to return a child to sports quickly after a concussion or helping a child with a chronic condition participate in meaningful activities. Rehab at Nemours means physicians, nurses, therapists, social workers and others working together with the family. Teamwork is one of our strengths. Dr. Owens is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Concussion. Dr. Owens is board certified in American Board Of Pediatrics.
Nemours Children's Hospital, Delaware
Michael Moore is a Pediatric Radiologist and a Radiologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 22 years. Dr. Moore is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 86 other conditions, according to our data. His clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, and Hypochondroplasia. Dr. Moore is board certified in American Board Of Radiology.
Nemours Children's Hospital, Delaware
Patrice Hyde is a Dermatologist practicing medicine in Wilmington, Delaware. Dr. Hyde is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Familial Multiple Nevi Flammei, Vascular Birthmark, and Linear Hamartoma Syndrome. Dr. Hyde is board certified in American Board Of Dermatology.
Nemours Children's Hospital, Delaware
In addition to my work as a pediatric orthopedic surgeon, the Shands/MacEwen Endowed Chair of Orthopaedic Surgery at Nemours Children’s Hospital, Delaware, and division chief of the Nemours Spine and Scoliosis Center, I help educate the next generation of orthopedic physicians. I am the Clinical Fellowship Director Emeritus for the orthopedics department at Nemours Children’s Hospital, Delaware. I train residents, fellows and visiting observers in advanced spinal deformity techniques. I’m a professor of orthopedic surgery and pediatrics at Sidney Kimmel Medical College of Thomas Jefferson University, and frequently teach and lecture at national and international courses, educational symposia, conferences and other institutions. I am vice president of the Scoliosis Research Society, president of Setting Scoliosis Straight Foundation, a member of the Pediatric Orthopaedic Society of North America and a member of the Medical and Scientific Board of the National Spine Health Foundation. In addition, I have authored more than 200 research articles and 30 book chapters, and serve as a reviewer of four journals. Children are amazing. They just want to get better so they can get back to being kids. I enjoy giving each patient and family the personalized and customized attention they need, and making sure their questions are answered. There’s no template for this kind of care. I’m proud to be at Nemours Children’s Hospital, Delaware. We handle the most complex cases and teach the techniques other people come here to learn to do. Every person in our department is a national leader in his or her field. You couldn’t duplicate a group like this. It’s a real privilege to work with a team this good. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Adolescent Idiopathic Scoliosis, Spinal Fusion, and Osteotomy. Dr. Shah is board certified in American Board Of Orthopaedic Surgery.
Nemours Children's Hospital, Delaware
Anand Gundakaram is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 19 years. Dr. Gundakaram is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Migraine, and Wolf-Hirschhorn Syndrome. Dr. Gundakaram is board certified in American Board Of Psychiatry & Neurology.
Last Updated: 04/28/2026

















