The 20 Best Koolen De Vries Syndrome Doctors Near Me in Houston, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors near Houston, TX

Last Updated: 02/22/2026

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MediFind found 153 doctor with experience in Koolen De Vries Syndrome near Houston, TX. Of these, 151 are Experienced and 2 are Advanced.

Location
LocationClose
153 providers found
    Advanced in Koolen De Vries Syndrome
    Radiology
    Advanced in Koolen De Vries Syndrome
    Radiology

    Office

    6701 Fannin St Ste 470, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    James Crowe is a Radiologist in Houston, Texas. Dr. Crowe is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Short Stature (Growth Disorders), Gas Bloat Syndrome, and Bronchogenic Cyst.

    John T. Stout
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Baylor College Of Medicine - Ophthalmology

    1977 Butler Blvd, Ste E3.100 MS BCM 633, 
    Houston, TX 
     (4.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Stout has been the Sid W. Richardson Professor and Margarett Root Brown Chair of the Department of Ophthalmology, and Director of the Cullen Eye Institute at Baylor College of Medicine since 2013. Prior to that he served as Professor in the Departments of Ophthalmology and Molecular Genetics, as well as Vice President for Commercialization Strategies at Oregon Health & Science University in Portland, Oregon. He has directed the Clayton Gene Therapy Laboratories since 1995. Dr. Stout brings experience from both the research and clinical sides of medicine. His research interests include human gene and cell-based therapy for proliferative and inherited ocular disease, retinal disease genotype-phenotype correlation and ocular disease gene mapping and discovery. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), Cone Rod Dystrophy Amelogenesis Imperfecta, and Vitrectomy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    UTPhysicians

    6410 Fannin St, 
    Houston, TX 
     (3.6 miles away)
    Languages Spoken:
    English

    Maria Caldas is a Pediatric Endocrinologist in Houston, Texas. Dr. Caldas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Omphalocele, DiGeorge Syndrome, Delayed Growth, and Wildervanck Syndrome.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Childrens Hospital

    6621 Fannin St, 
    Houston,, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Santiago Valdes is a Pediatric Cardiologist in Houston,, Texas. Dr. Valdes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Wolff-Parkinson-White Syndrome, Arrhythmias, Congenital Heart Disease (CHD), Pacemaker Implantation, and Cardiac Ablation.

    Experienced in Koolen De Vries Syndrome
    Palliative Medicine
    Experienced in Koolen De Vries Syndrome
    Palliative Medicine

    Texas Childrens Hospital

    6621 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Regina Okhuysen is a Palliative Medicine provider in Houston, Texas. Dr. Okhuysen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are CHARGE Syndrome, Wildervanck Syndrome, Koolen De Vries Syndrome, Microcephaly Deafness Syndrome, and Cordotomy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston,, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Judith Becker is a Pediatric Cardiologist in Houston,, Texas. Dr. Becker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Kawasaki Disease, Ventricular Septal Defects, Patent Ductus Arteriosus, and Coronary Artery Fistula.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston,, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Jack Price is a Pediatric Cardiologist in Houston,, Texas. Dr. Price is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pediatric Myocarditis, Heart Failure, Cardiomyopathy, Childhood Iron Deficiency Anemia, and Heart Transplant.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Christina Miyake is a Pediatric Cardiologist in Houston, Texas. Dr. Miyake is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Arrhythmias, Ventricular Tachycardia, Heart Block, Cardiac Ablation, and Pacemaker Implantation.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Swati Choudhry is a Pediatric Cardiologist in Houston, Texas. Dr. Choudhry is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Heart Failure, Premature Infant, High Blood Pressure in Infants, and Heart Transplant.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Taylor Howard is a Pediatric Cardiologist in Houston, Texas. Dr. Howard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Wolff-Parkinson-White Syndrome, Short QT Syndrome, and Brugada Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Carolyn Altman is a Pediatric Cardiologist in Houston, Texas. Dr. Altman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Kawasaki Disease, Pediatric Myocarditis, Congenital Heart Disease (CHD), and Hypoplastic Left Heart Syndrome (HLHS).

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Shagun Sachdeva is a Pediatric Cardiologist in Houston, Texas. Dr. Sachdeva is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Coronary Artery Malformation, Transposition of the Great Arteries, Coronary Artery Aneurysm, and Anomalous Left Coronary Artery from the Pulmonary Artery.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Justin Weigand is a Pediatric Cardiologist in Houston, Texas. Dr. Weigand is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Supravalvular Aortic Stenosis, Marfan Syndrome, Anomalous Left Coronary Artery from the Pulmonary Artery, and Congenital Coronary Artery Malformation.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston,, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Aura Sanchez is a Pediatric Cardiologist in Houston,, Texas. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Kawasaki Disease, Ventricular Septal Defects, Congenital Heart Disease (CHD), and Transposition of the Great Arteries.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    William Kyle is a Pediatric Cardiologist in Houston, Texas. Dr. Kyle is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ventricular Septal Defects, Congenital Heart Disease (CHD), Trisomy 18, Atrioventricular Septal Defect, and Gastrostomy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Texas Children's Pavilion For Women Radiology

    6651 Main St, 
    Houston,, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Tam Pham is a Pediatric Cardiologist in Houston,, Texas. Dr. Pham is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Arrhythmias, Congenital Heart Disease (CHD), Congenital Coronary Artery Malformation, Fainting, and Heart Transplant.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Marla Sammer is a Pediatric Radiologist in Houston, Texas. Dr. Sammer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Intussusception in Children, Infantile Pyloric Stenosis, Bronchogenic Cyst, and Appendicitis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Stephanie Sisley is a Pediatric Endocrinologist in Houston, Texas. Dr. Sisley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Obesity, Obesity in Children, Malnutrition, Type A Insulin Resistance Syndrome, and Gastric Bypass.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Office

    6701 Fannin St Ste 470, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Steven Kraus is a Pediatric Radiologist in Houston, Texas. Dr. Kraus is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are PIK3CA-Related Overgrowth Spectrum, Megalencephaly-Capillary Malformation Syndrome, Perlman Syndrome, and Simpson-Golabi-Behmel Syndrome.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology

    Office

    6701 Fannin St Ste 470, 
    Houston, TX 
     (4.1 miles away)
    Languages Spoken:
    English

    Rajan Patel is a Neuroradiologist in Houston, Texas. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hydrocephalus, Choroid Plexus Cyst, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, and Osteotomy.

    Showing 1-20 of 153

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Houston, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Houston, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Houston, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Houston, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Houston, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Houston, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Houston, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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