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    Last Updated: 01/09/2026

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    MediFind found 197 doctor with experience in Koolen De Vries Syndrome near Dallas, TX. Of these, 165 are Experienced and 32 are Advanced.

    Location
    LocationClose
    197 providers found
      Mary Brickner
      Advanced in Koolen De Vries Syndrome
      Advanced in Koolen De Vries Syndrome

      University Of Texas Southwestern Medical Center

      5323 Harry Hines Blvd, 
      Dallas, TX 
       (3.5 miles away)
      Languages Spoken:
      English

      Mary Brickner is a Cardiologist in Dallas, Texas. Dr. Brickner is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Bicuspid Aortic Valve, Partial Atrioventricular Canal, Endocardial Cushion Defect, Atrioventricular Septal Defect, and Pacemaker Implantation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Nephrology
      Advanced in Koolen De Vries Syndrome
      Pediatric Nephrology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      45+ years
      Languages Spoken:
      English

      Mouin Seikaly is a Pediatric Nephrologist in Dallas, Texas. Dr. Seikaly has been practicing medicine for over 45 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Nephrotic Syndrome, CHARGE Syndrome, Koolen De Vries Syndrome, Glomerulonephritis, and Kidney Transplant.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      Hoang Nguyen is a Pediatric Cardiologist in Dallas, Texas. Dr. Nguyen is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Double Inlet Left Ventricle, Mitral Atresia, and Fainting.

      Learn about our expert tiers
      Joshua Beckman
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      UT Southwestern-Clinical Heart And Vascular Center At West Campus Building 3

      2001 Inwood Rd Fl 5, 
      Dallas, TX 
       (3.6 miles away)
      Languages Spoken:
      English

      Joshua Beckman is a Cardiologist in Dallas, Texas. Dr. Beckman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Peripheral Artery Disease, Atherosclerosis, Thoracic Aortic Aneurysm, Angioplasty, and Thrombectomy.

      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Shanmuga Jonnalagadda is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Dallas, Texas. Dr. Jonnalagadda has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Delayed Growth, Developmental Dysphasia Familial, Autism Spectrum Disorder, and Gastroschisis.

      Experienced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      28+ years
      Languages Spoken:
      English

      J Kan is a Pediatric Radiologist and a Radiologist in Dallas, Texas. Dr. Kan has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bronchogenic Cyst, Gas Bloat Syndrome, Scoliosis, and Birt-Hogg-Dube Syndrome.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English

      Charuta Joshi is a Pediatric Neurologist and a Neurologist in Dallas, Texas. Dr. Joshi has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Epilepsy, Seizures, West Syndrome, Epilepsy in Children, and Deep Brain Stimulation.

      Experienced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      14+ years
      Languages Spoken:
      English

      Matthew Ditzler is a Pediatric Radiologist and a Radiologist in Dallas, Texas. Dr. Ditzler has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Short Stature (Growth Disorders).

      Experienced in Koolen De Vries Syndrome
      Child and Adolescent Psychiatry
      Experienced in Koolen De Vries Syndrome
      Child and Adolescent Psychiatry

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Mathew Stokes is a Child and Adolescent Psychiatrist in Dallas, Texas. Dr. Stokes has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Concussion, Delirium, Migraine, and Tension Headache.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery
      Experienced in Koolen De Vries Syndrome
      Neurosurgery

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      42+ years
      Languages Spoken:
      English

      Dale Swift is a Neurosurgery provider in Dallas, Texas. Dr. Swift has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chiari Malformation Type 1, Chiari Malformation, Chiari Malformation Type 2, Posterior Fossa Decompression, and Endoscopy.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Neurosurgery | Pediatrics

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English

      Bradley Weprin is a Pediatrics specialist and a Neurosurgery provider in Dallas, Texas. Dr. Weprin has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chiari Malformation Type 1, Chiari Malformation, Syringomyelia, Craniectomy, and Posterior Fossa Decompression.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Neurosurgery | Pediatrics

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      32+ years
      Languages Spoken:
      English

      Angela Price is a Pediatrics specialist and a Neurosurgery provider in Dallas, Texas. Dr. Price has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hydrocephalus, Chiari Malformation Type 1, Chiari Malformation, Rhizotomy, and Posterior Fossa Decompression.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Brett Whittemore is a Neurosurgery provider in Dallas, Texas. Dr. Whittemore has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chiari Malformation Type 1, Chiari Malformation, Chiari Malformation Type 2, Syringomyelia, and Posterior Fossa Decompression.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Hamza Alizai is a Radiologist in Dallas, Texas. Dr. Alizai has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Osteochondritis Dissecans, Scoliosis, Maffucci Syndrome, and Ollier Disease.

      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics
      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Brandon Ramo is a Pediatric Orthopedics provider in Dallas, Texas. Dr. Ramo has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Adolescent Idiopathic Scoliosis, Collins Pope Syndrome, Clubfoot, Spinal Fusion, and Osteotomy.

      Experienced in Koolen De Vries Syndrome
      Pediatrics | Urology
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Urology

      Texas Scottish Rite Hospital For Children

      2222 Welborn St, 
      Dallas, TX 
       (2.0 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Offers Telehealth

      Micah Jacobs is a Pediatrics specialist and an Urologist in Dallas, Texas. Dr. Jacobs has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Testicular Torsion, Neurogenic Bladder, Undescended Testicle, Orchiectomy, and Ureteral Reconstruction.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      David Fixler is a Pediatric Cardiologist in Dallas, Texas. Dr. Fixler is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Murmurs, Kawasaki Disease, Ventricular Septal Defects, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Heart Transplant.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas,, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      Sadia Malik is a Pediatric Cardiologist in Dallas,, Texas. Dr. Malik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Trisomy 3 Mosaicism, Trisomy 2 Mosaicism, Trisomy 12 Mosaicism, and Mosaic Trisomy 7.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      Scott Weinreb is a Pediatric Cardiologist in Dallas, Texas. Dr. Weinreb is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Congenital Heart Block, Heart Block, Mitral Atresia, and Hypoplastic Left Heart Syndrome (HLHS).

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Children's Medical Center/Children's Health

      1935 Medical District Dr, 
      Dallas, TX 
       (3.3 miles away)
      Languages Spoken:
      English

      Jenna Keelan is a Pediatric Cardiologist in Dallas, Texas. Dr. Keelan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Kawasaki Disease, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Tetralogy of Fallot.

      Showing 1-20 of 197

      Last Updated: 01/09/2026

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Dallas, TX?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Dallas, TX?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Dallas, TX?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Dallas, TX?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Dallas, TX?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Dallas, TX?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Dallas, TX?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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