David Koolen practices in Nijmegen, Netherlands. Mr. Koolen is rated as an Elite expert by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Koolen De Vries Syndrome, Hypotonia, Floating-Harbor Syndrome, and West Syndrome.

Alessandro Iannaccone is an Ophthalmologist in Chapel Hill, North Carolina. Dr. Iannaccone is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), and Usher Syndrome Type 2A. Dr. Iannaccone is currently accepting new patients.

Andrew Hendershot is an Ophthalmologist in Columbus, Ohio. Dr. Hendershot is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Keratoconus, Corneal Dystrophy and Perceptive Deafness, Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, and Corneal Transplant. Dr. Hendershot is currently accepting new patients.

Joyce Feagin is a Hematologist Oncology specialist and a Hematologist in Shreveport, Louisiana. Dr. Feagin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Inflammatory Breast Cancer, Colorectal Cancer, Familial Colorectal Cancer, and Paget Disease of the Breast. Dr. Feagin is currently accepting new patients.

Cheng Her is a primary care provider, practicing in Family Medicine in La Crosse, Wisconsin. Dr. Her is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Char Syndrome, Vici Syndrome, and Cohen Syndrome.

Philip Goolsby is a primary care provider, practicing in Family Medicine in Green Bay, Wisconsin. Dr. Goolsby is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Monoclonal Gammopathy of Undetermined Significance (MGUS), Schnitzler Syndrome, Movement Disorders, and Parkinson's Disease.

David Stolp is a primary care provider, practicing in Family Medicine in West Allis, Wisconsin. Dr. Stolp is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Jackson-Weiss Syndrome, Marshall Syndrome, and Van Maldergem Syndrome.

Donald Weaver is a Pediatric Nephrologist in Charlotte, North Carolina. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Posterior Urethral Valves, Togaviridae Disease, Feingold Syndrome, and Congenital Nephrotic Syndrome. Dr. Weaver is currently accepting new patients.

Jonathan Kopelovich, MD, is a board-certified otolaryngologist, who cares for problems that affect the head, neck, ear, nose and throat. He has additional board-certification and fellowship training in complex pediatric otolaryngology and has extensive experience in airway, craniofacial and ear surgery for children. Dr. Kopelovich believes in a collaborative and holistic approach to caring for every child.Raised on the gulf coast of Florida, Dr. Kopelovich pursued higher education in Philadelphia. He graduated cum laude from the University of Pennsylvania, then attended Jefferson Medical College and spent an additional year at the Children’s Hospital of Philadelphia devoted to cochlear implant research in children.Inspired by these experiences, Dr. Kopelovich completed otolaryngology residency and a neurobiology research fellowship at the University of Iowa, followed by a fellowship year in pediatric ENT at the Children’s Hospital of Colorado. While training, he focused on diseases affecting breathing, sleep, facial development and hearing. In addition to a stellar publication record, Dr. Kopelovich is passionate about decreasing the environmental impact of medicine. Since starting in practice with Bellevue Ear Nose and Throat, Dr. Kopelovich has organized and led multiple interdisciplinary provider groups in King County to help coordinate care for children with complicated head and neck issues. Additionally, he serves as the pediatric otolaryngology consultant for four neonatal ICUs.Dr. Kopelovich lives on Mercer Island with his wife, Rachel, a Seattle native and acupuncturist, and their three children. He enjoys hiking and skiing with his family in the Cascades and is an avid fan of all elements of hip hop culture. Dr. Kopelovich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hearing Loss, Enlarged Adenoids, Stridor, and Low Nasal Bridge.

Ashley Chadha is a Pediatrics provider in Charlotte, North Carolina. Dr. Chadha is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and CHARGE Syndrome. Dr. Chadha is currently accepting new patients.

Athos Bousvaros is a Pediatric Gastroenterologist and a Gastroenterologist in Providence, Rhode Island. Dr. Bousvaros is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Crohn's Disease, Ulcerative Colitis, Viral Gastroenteritis, Colonoscopy, and Gastrectomy. Dr. Bousvaros is currently accepting new patients.

Sunil Pauwaa is an Advanced Heart Failure and Transplant Cardiologist in Oak Lawn, Illinois. Dr. Pauwaa is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Failure, Pulmonary Veno-Occlusive Disease, Pulmonary Hypertension, Hypertensive Heart Disease, and Heart Transplant.

Jason Dranove is a Pediatric Gastroenterologist and a Hepatologist in Charlotte, North Carolina. Dr. Dranove is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hirschsprung Disease, Neurogenic Bowel, Total Intestinal Aganglionosis, and Bowel Incontinence. Dr. Dranove is currently accepting new patients.

Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Defective Apolipoprotein B-100, Familial Hypertriglyceridemia, and Pacemaker Implantation. Dr. Hartz is currently accepting new patients.

Trac Duong, MD, practices all aspects of adult and pediatric otolaryngology. He is subspecialty-trained in otology and neurotology and specializes in treating patients with complex diseases of the ear and skull base.  He performs microsurgery, including endoscopic ear surgery, to treat hearing loss, tympanic membrane perforation, otosclerosis, chronic ear infections, cholesteatoma, vestibular schwannoma and tumors of the ear and skull base. He has over 10 years of experience performing cochlear implant surgery and working with implantable hearing technology. He also treats patients with peripheral vestibular disorders such as Meniere's disease.He believes that excellent and compassionate care starts with listening and taking the time to educate his patients so they can be more effective partners in their own care. He considers it a privilege to care for his patients. Dr. Duong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Infant Hearing Loss, Cholesteatoma, DFNB1, and Jones Syndrome.

Daniel Judge is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Charleston, South Carolina. Dr. Judge is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cardiomyopathy, Cardiac Amyloidosis, Transthyretin Amyloid Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Judge is currently accepting new patients.

Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Clear Cell Sarcoma, Reconstructive Urology Surgery, and Nephrectomy.

Maria Arruda is a Pediatric Cardiologist and a Cardiologist in Cleveland, Ohio. Dr. Arruda is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Sternal Cleft, Cor Triatriatum, Congenital Contractural Arachnodactyly, Ventricular Septal Defects, and Cardiac Ablation. Dr. Arruda is currently accepting new patients.

Heather Gornik is a Cardiologist in Cleveland, Ohio. Dr. Gornik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Spontaneous Coronary Artery Dissection (SCAD), Peripheral Artery Disease, Carotid Artery Disease, Angioplasty, and Heart Bypass Surgery. Dr. Gornik is currently accepting new patients.

Jay Shah is a Pediatric Otolaryngologist and an Otolaryngologist in Cleveland, Ohio. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngomalacia, Subglottic Stenosis, Enlarged Adenoids, and Stridor. Dr. Shah is currently accepting new patients.