MediFind found 5867 doctor with experience in Koolen De Vries Syndrome. Of these, 5347 are Experienced, 514 are Advanced, 5 are Distinguished and 1 are Elite.
David Koolen practices in Nijmegen, Netherlands. Mr. Koolen is rated as an Elite expert by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Koolen De Vries Syndrome, Hypotonia, Floating-Harbor Syndrome, and West Syndrome.
University Of North Carolina At Chapel Hill
Alessandro Iannaccone is an Ophthalmologist in Chapel Hill, North Carolina. Dr. Iannaccone is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), and Usher Syndrome Type 2A. Dr. Iannaccone is currently accepting new patients.
Osu Eye Physicians And Surgeons, LLC
Andrew Hendershot is an Ophthalmologist in Columbus, Ohio. Dr. Hendershot is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Keratoconus, Corneal Dystrophy and Perceptive Deafness, Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, and Corneal Transplant. Dr. Hendershot is currently accepting new patients.
Wk Hematology Oncology Associates
Joyce Feagin is a Hematologist Oncology specialist and a Hematologist in Shreveport, Louisiana. Dr. Feagin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Inflammatory Breast Cancer, Colorectal Cancer, Familial Colorectal Cancer, and Paget Disease of the Breast. Dr. Feagin is currently accepting new patients.
Viaro Professional Arts Ltd Health Care
Cheng Her is a primary care provider, practicing in Family Medicine in La Crosse, Wisconsin. Dr. Her is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Char Syndrome, Vici Syndrome, and Cohen Syndrome.
Aurora Family Medicine
Philip Goolsby is a primary care provider, practicing in Family Medicine in Green Bay, Wisconsin. Dr. Goolsby is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Monoclonal Gammopathy of Undetermined Significance (MGUS), Schnitzler Syndrome, Movement Disorders, and Parkinson's Disease.
Aurora Family Medicine
David Stolp is a primary care provider, practicing in Family Medicine in West Allis, Wisconsin. Dr. Stolp is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Jackson-Weiss Syndrome, Marshall Syndrome, and Van Maldergem Syndrome.
Atrium Health Levine Children's Nephrology
Donald Weaver is a Pediatric Nephrologist in Charlotte, North Carolina. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Posterior Urethral Valves, Togaviridae Disease, Feingold Syndrome, and Congenital Nephrotic Syndrome. Dr. Weaver is currently accepting new patients.
Atrium Health Levine Children's Pulmonology
Ashley Chadha is a Pediatrics provider in Charlotte, North Carolina. Dr. Chadha is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and CHARGE Syndrome. Dr. Chadha is currently accepting new patients.
Athos Bousvaros is a Pediatric Gastroenterologist and a Gastroenterologist in Providence, Rhode Island. Dr. Bousvaros is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Crohn's Disease, Ulcerative Colitis, Viral Gastroenteritis, Colonoscopy, and Gastrectomy. Dr. Bousvaros is currently accepting new patients.
Advocate Heart Institute
Sunil Pauwaa is an Advanced Heart Failure and Transplant Cardiologist in Oak Lawn, Illinois. Dr. Pauwaa is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Failure, Pulmonary Veno-Occlusive Disease, Pulmonary Hypertension, Hypertensive Heart Disease, and Heart Transplant.
Atrium Health Levine Children's Gastroenterology
Jason Dranove is a Pediatric Gastroenterologist and a Hepatologist in Charlotte, North Carolina. Dr. Dranove is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hirschsprung Disease, Neurogenic Bowel, Total Intestinal Aganglionosis, and Bowel Incontinence. Dr. Dranove is currently accepting new patients.
Atrium Health Levine Children's HEARTest Yard Congenital Heart Center
Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Defective Apolipoprotein B-100, Familial Hypertriglyceridemia, and Pacemaker Implantation. Dr. Hartz is currently accepting new patients.
University Medical Associates Of The Medical University Of South Carol
Daniel Judge is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Charleston, South Carolina. Dr. Judge is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cardiomyopathy, Cardiac Amyloidosis, Transthyretin Amyloid Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Judge is currently accepting new patients.
Pediatric Eye Specialists, TX - ECW
Eric Packwood is an Ophthalmologist in Denton, Texas. Dr. Packwood is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Esotropia, Blocked Tear Duct, and Ocular Albinism.
Stanford Health Care
Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Clear Cell Sarcoma, Reconstructive Urology Surgery, and Nephrectomy.
University Hospitals Medical Group Inc
Maria Arruda is a Pediatric Cardiologist and a Cardiologist in Cleveland, Ohio. Dr. Arruda is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Sternal Cleft, Cor Triatriatum, Congenital Contractural Arachnodactyly, Ventricular Septal Defects, and Cardiac Ablation. Dr. Arruda is currently accepting new patients.
University Hospitals Medical Group Inc
Heather Gornik is a Cardiologist in Cleveland, Ohio. Dr. Gornik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Spontaneous Coronary Artery Dissection (SCAD), Peripheral Artery Disease, Carotid Artery Disease, Angioplasty, and Heart Bypass Surgery. Dr. Gornik is currently accepting new patients.
University Hospitals Medical Group Inc
Jay Shah is a Pediatric Otolaryngologist and an Otolaryngologist in Cleveland, Ohio. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngomalacia, Subglottic Stenosis, Enlarged Adenoids, and Stridor. Dr. Shah is currently accepting new patients.
Ted Lee is an Urologist in Boston, Massachusetts. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Exstrophy of the Bladder, Exstrophy-Epispadias Complex, Epispadias, and Cloacal Exstrophy. Dr. Lee is currently accepting new patients.
Last Updated: 10/30/2025










