The 20 Best Koolen De Vries Syndrome Doctors Near Me in Iowa, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 30 doctor with experience in Koolen De Vries Syndrome near Iowa, US. Of these, 29 are Experienced and 1 are Advanced.

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30 providers found
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology
    Referral may be required

    MercyOne Des Moines Pediatrics Neurology Care

    330 Laurel St., Suite 1200, 
    Des Moines, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Rifali Patel, MD, specializes in pediatric neurological disorders with a major focus on pediatric epilepsy, including new-onset seizures, drug-resistant childhood epilepsy- Lennox-Gastaut syndrome (LGS), Doose syndrome, epilepsy surgery and status epilepticus.She treats all types of epilepsy in children of all ages by using diagnostic tools, such as video EEG monitoring and routine EEGs, and genetic testing and neuroimaging. Dr. Patel offers anti-epileptic medications and surgical and dietary treatments to control seizures and reduce those risks so your child can live a safer, healthier life.Dr. Patel has training in pediatric neurology and pediatric neurophysiology, with a pediatric epilepsy-focused fellowship at Children’s Healthcare of Atlanta, Emory University in Atlanta, Ga. She also completed pediatric residency at Woodhull Hospital at NYU Langone School of Medicine in New York.Dr. Patel also has expertise in diagnosing developmental delays, cerebral palsy, pediatric stroke, headache disorders, tic disorders, autoimmune central nervous system (CNS) disorders, pediatric neuromuscular disease, psychological non-epileptic events, traumatic brain injury and genetic conditions affecting brain development.She has experience in diagnosing and managing dizziness, POTS, dysautonomia, headaches, somatic and functional disorders, developmental delay, concussion and neurovascular disorders. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 97 other conditions, according to our data. Her clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Dravet Syndrome, and Memory Loss. Dr. Patel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Marta Hemmingson is a Dermatologist practicing medicine in Iowa City, Iowa. Dr. Hemmingson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Head and Neck Squamous Cell Carcinoma (HNSCC), Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Melanoma.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    John Selby is a Dermatologist practicing medicine in Iowa City, Iowa. Dr. Selby is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Pityriasis Rubra Pilaris, Graham-Little-Piccardi-Lassueur Syndrome, Sunburn, and Plaque Psoriasis.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Covenant Home Medical Services

    441 E San Marnan Dr, 
    Waterloo, IA 
    Languages Spoken:
    English

    Justin Ellerbroek is a Dermatologist practicing medicine in Waterloo, Iowa. Dr. Ellerbroek is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 49 other conditions, according to our data. His clinical expertise encompasses Liver Spots, Universal Acquired Melanosis, Seborrheic Keratosis, and Warts.

    Experienced in Koolen De Vries Syndrome
    Family Medicine | Geriatrics
    Experienced in Koolen De Vries Syndrome
    Family Medicine | Geriatrics

    MercyOne Waverly Family Medicine

    217 20th St. NW, 
    Waverly, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Specializes in all areas of family medicine, including health maintenance examinations for all ages, follow-up care for ongoing medical conditions, as well as diagnosis and treatment of acute and chronic illnesses. Dr. Fagre is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Idiopathic Edema, Maturity Onset Diabetes of the Young, Memory Loss, and Thrombocytopenia. Dr. Fagre is board certified in Family Medicine, American Board Of Family Medicine. Dr. Fagre is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Medical Associates Clinic - West

    1500 Associates Drive, 
    Dubuque, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Timothy Daley is an Ophthalmologist practicing medicine in Dubuque, Iowa. Dr. Daley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Oculomotor Apraxia Cogan Type, Strabismus, Esotropia, and Cataract. Dr. Daley is board certified in Ophthalmology, American Board Of Ophthalmology. Dr. Daley is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    MercyOne Ankeny Pediatrics Care

    800 East 1st Street, Suite 2200, 
    Ankeny, IA 
    Languages Spoken:
    English

    Cheri Folden is a Pediatrics provider practicing medicine in Ankeny, Iowa. Dr. Folden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Croup, Asthma in Children, Scarlet Fever, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    MercyOne North Iowa Heart Center

    250 S. Crescent Drive, Suite M2600, 
    Mason City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Sarik was attracted to electrophysiology due to the mix of basic science, engineering and medicine. He enjoys working with pacemakers, defibrillators and implantable devices as well as troubleshooting therapy processes.Dr. Sarik likes getting to know the whole patient – their occupation, hobbies, interests, family members and more. He has a strong desire to know their whole story. Dr. Sarik is dedicated to giving each patient a safer, more comfortable life. Dr. Sarik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Paroxysmal Supraventricular Tachycardia (PSVT), His Bundle Tachycardia, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Pacemaker Implantation, and Cardiac Ablation. Dr. Sarik is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    MercyOne Genesis Bettendorf Convenient Care

    4487 53rd Ave., 
    Bettendorf, IA 
    Languages Spoken:
    English

    Robert D. Mixsell, MD- MercyOne Genesis Health Group family practice physician located in Davenport, Iowa and Moline, IL. Dr. Mixsell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 280 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D).

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    Medical Associates Clinic - West

    1500 Associates Drive, 
    Dubuque, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Kevin Mullen is a Pediatrics provider practicing medicine in Dubuque, Iowa. Dr. Mullen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Rotor Syndrome, Croup, Delayed Growth, and Respiratory Syncytial Virus (RSV) Infection. Dr. Mullen is board certified in Pediatrics Care, American Board Of Pediatrics. Dr. Mullen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neonatology
    Experienced in Koolen De Vries Syndrome
    Neonatology
    Referral may be required

    Medical Associates Clinic - E.

    1000 Langworthy St., 
    Dubuque, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Karen Scott is a Neonatologist practicing medicine in Dubuque, Iowa. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Rotor Syndrome, Delayed Growth, Stork Bite, and Vascular Birthmark. Dr. Scott is board certified in American Board Of Pediatrics. Dr. Scott is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    MercyOne Centerville Medical Clinic

    19942 Saint Joseph Drive, 
    Centerville, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Cassie Parrish specializes in Family Medicine at MercyOne Centerville Medical Clinic. Dr. Parrish is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Urea Cycle Disorders (UCD), Vitamin D Deficiency, Koolen De Vries Syndrome, and Emphysema. Dr. Parrish is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Gastroenterology
    Referral may be required

    MercyOne Des Moines Pediatrics Gastroenterology Care

    330 Laurel St., Suite 1200, 
    Des Moines, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Zaghloul joined Mercy Pediatric Subspecialty Clinic in 2016. He earned his medical degree at the University of Jordan in Amman, Jordan. He completed a pediatric residency and a fellowship in pediatric gastroenterology and hepatology at Children’s Hospital of Michigan in Detroit, Mich. Most recently, Dr. Zaghloul was an assistant professor of pediatrics at Wayne State University in Detroit, and associate director of the pediatric gastroenterology fellowship program at Children’s Hospital of Michigan. Dr. Zaghloul’s areas of specialization include: gastroesophageal reflux, constipation, feeding disorders, celiac disease, eosinophilic esophagitis, liver disease and inflammatory bowel disease. He provides the following procedural services: Upper Endoscopy, colonoscopy, EndoFlip for measurement of esophageal distensibility, Polypectomy, pH impedance monitoring, capsule endoscopy and Breath Hydrogen Testing. Dr. Zaghloul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Encopresis, Bowel Incontinence, Eosinophilic Esophagitis, and Lactose Intolerance. Dr. Zaghloul is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Medical Associates Clinic - E.

    1000 Langworthy St., 
    Dubuque, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Chadwick Nachtman is a primary care provider, practicing in Family Medicine in Dubuque, Iowa. Dr. Nachtman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and High Cholesterol. Dr. Nachtman is board certified in Family Medicine, American Board Of Family Medicine. Dr. Nachtman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Edwin Stone is an Ophthalmologist practicing medicine in Iowa City, Iowa. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Adult-Onset Vitelliform Macular Dystrophy (AVMD), Retinitis Pigmentosa, Vitrectomy, and Cataract Removal.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Office

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Carolita Sheetz is a Nurse Practitioner practicing medicine in Iowa City, Iowa. Sheetz, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Methodist Physicians Clinic (1 Edmundson Place)

    1 Edmundson Pl, 
    Council Bluffs, IA 
    Languages Spoken:
    English

    Andrew Maxwell is a Pediatrics provider practicing medicine in Council Bluffs, Iowa. Dr. Maxwell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Developmental Dysphasia Familial, Congenital Bowing of Long Bones, Mast Cell Activation Syndrome (MCAS), and Croup.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    McFarland Clinic PC

    312 E Main St, 
    Marshalltown, IA 
    Languages Spoken:
    English

    Colette Lothe is a Pediatrics provider practicing medicine in Marshalltown, Iowa. Dr. Lothe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Scarlet Fever, Croup, Wildervanck Syndrome, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    McFarland Clinic-Carroll

    1214 S Grant Rd, 
    Carroll, IA 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Slattery is a primary care provider, practicing in Family Medicine in Carroll, Iowa. Dr. Slattery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Acute Coronary Syndrome, Necrosis, Urinary Tract Infection in Children, Colonoscopy, and Hip Replacement.

    Experienced in Koolen De Vries Syndrome
    Neurosurgery
    Experienced in Koolen De Vries Syndrome
    Neurosurgery
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Saul Wilson is a Neurosurgery provider practicing medicine in Iowa City, Iowa. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Spasticity, Chiari Malformation Type 2, Syringobulbia, Awake Craniotomy, and Gastrostomy.

    Showing 1-20 of 30

    Last Updated: 06/30/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Iowa, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Iowa, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Iowa, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Iowa, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Iowa, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Iowa, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Iowa, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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