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    Last Updated: 10/30/2025

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    MediFind found 35 doctor with experience in Koolen De Vries Syndrome near Iowa, US. Of these, 33 are Experienced and 2 are Advanced.

    Location
    LocationClose
    35 providers found
      Rifali Patel
      Advanced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Advanced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology

      MercyOne Des Moines Pediatrics Neurology Care

      330 Laurel St., Suite 1200, 
      Des Moines, IA 
      Languages Spoken:
      English

      Rifali Patel is a Neurologist and a Pediatric Neurologist in Des Moines, Iowa. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Dravet Syndrome, and Memory Loss.

      Advanced in Koolen De Vries Syndrome
      Ophthalmology
      Advanced in Koolen De Vries Syndrome
      Ophthalmology
      200 Hawkins Dr, 
      Iowa City, IA 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Ferhat Evliyaoglu is an Ophthalmologist in Iowa City, Iowa. Dr. Evliyaoglu has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Amblyopia, Astigmatism, and Epicanthal Folds. Dr. Evliyaoglu is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Cheri Folden
      Experienced in Koolen De Vries Syndrome
      Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatrics

      MercyOne Ankeny Pediatrics Care

      800 East 1st Street, Suite 2200, 
      Ankeny, IA 
      Languages Spoken:
      English

      Cheri Folden is a Pediatrics provider in Ankeny, Iowa. Dr. Folden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Croup, Asthma in Children, Scarlet Fever, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

      Learn about our expert tiers
      Michael Sarik
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      MercyOne North Iowa Heart Center

      250 S Crescent Drive, Suite 200, 
      Mason City, IA 
      Languages Spoken:
      English

      Michael Sarik is a Cardiologist in Mason City, Iowa. Dr. Sarik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Paroxysmal Supraventricular Tachycardia (PSVT), His Bundle Tachycardia, Pacemaker Implantation, and Cardiac Ablation.

      Cassie Parrish
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner | Family Medicine
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner | Family Medicine

      MercyOne Centerville Medical Clinic

      19942 St. Joseph's Drive, 
      Centerville, IA 
      Languages Spoken:
      English

      Cassie Parrish is a Nurse Practitioner specialist and a Family Medicine provider in Centerville, Iowa. Ms. Parrish is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Urea Cycle Disorders (UCD), Vitamin D Deficiency, Koolen De Vries Syndrome, and Emphysema.

      Hazim Zaghloul
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology

      MercyOne Des Moines Pediatrics Specialty Care

      330 Laurel Street, Suite 1200, 
      Des Moines, IA 
      Languages Spoken:
      English

      Hazim Zaghloul is a Pediatric Gastroenterologist in Des Moines, Iowa. Dr. Zaghloul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Encopresis, Bowel Incontinence, Eosinophilic Esophagitis, and Lactose Intolerance.

      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      Experienced in Koolen De Vries Syndrome
      Ophthalmology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Edwin Stone is an Ophthalmologist in Iowa City, Iowa. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Late-Onset Retinal Degeneration, Adult-Onset Vitelliform Macular Dystrophy (AVMD), Retinitis Pigmentosa, Vitrectomy, and Cataract Removal. Dr. Stone is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Marta Hemmingson-Vanbeek is a Dermatologist in Iowa City, Iowa. Dr. Hemmingson-Vanbeek is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Head and Neck Squamous Cell Carcinoma (HNSCC), Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Melanoma. Dr. Hemmingson-Vanbeek is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatrics | Child and Adolescent Psychiatry
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Child and Adolescent Psychiatry
      411 Laurel St, Suite 3310, 
      Des Moines, IA 
      Languages Spoken:
      English

      Mohammed Aldosari is a Pediatrics specialist and a Child and Adolescent Psychiatrist in Des Moines, Iowa. Dr. Aldosari is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Coach Syndrome, and Hydranencephaly.

      Experienced in Koolen De Vries Syndrome
      Family Medicine | Geriatrics
      Experienced in Koolen De Vries Syndrome
      Family Medicine | Geriatrics

      Covenant Medical Center Inc

      217 20th St Nw, Mercyone Waverly Family Me, 
      Waverly, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Lee Fagre is a primary care provider, practicing in Family Medicine and Geriatrics in Waverly, Iowa. Dr. Fagre is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Idiopathic Edema, Maturity Onset Diabetes of the Young, Memory Loss, and Thrombocytopenia. Dr. Fagre is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English

      Carolita Sheetz is a Nurse Practitioner in Iowa City, Iowa. Ms. Sheetz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top area of expertise is Koolen De Vries Syndrome.

      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      Experienced in Koolen De Vries Syndrome
      Ophthalmology

      Medical Associates Clinic P C

      1500 Associates Dr, 
      Dubuque, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Daley is an Ophthalmologist in Dubuque, Iowa. Dr. Daley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Strabismus, Esotropia, and Cataract. Dr. Daley is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Physicians Clinic Inc

      1 Edmundson Pl, 310 Methodist Physicians C, 
      Council Bluffs, IA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Andrew Maxwell is a Pediatrics provider in Council Bluffs, Iowa. Dr. Maxwell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Developmental Dysphasia Familial, Congenital Bowing of Long Bones, Croup, and Delayed Growth. Dr. Maxwell is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      1438 44th St, 
      Des Moines, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Colette Lothe is a Pediatrics provider in Des Moines, Iowa. Dr. Lothe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scarlet Fever, Croup, Microcephaly Deafness Syndrome, and Wildervanck Syndrome. Dr. Lothe is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine

      Mcfarland Clinic PC

      1214 S Grant Rd, 
      Carroll, IA 
      Languages Spoken:
      English, American Sign Language, Sign Language
      Accepting New Patients

      Michael Slattery is a primary care provider, practicing in Family Medicine in Carroll, Iowa. Dr. Slattery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Coronary Syndrome, Necrosis, Urinary Tract Infection in Children, Colonoscopy, and Hip Replacement. Dr. Slattery is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery
      Experienced in Koolen De Vries Syndrome
      Neurosurgery

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Saul Wilson is a Neurosurgery provider in Iowa City, Iowa. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spasticity, Chiari Malformation Type 2, Syringobulbia, Awake Craniotomy, and Gastrostomy. Dr. Wilson is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Dermatology
      Experienced in Koolen De Vries Syndrome
      Dermatology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      John Selby is a Dermatologist in Iowa City, Iowa. Dr. Selby is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pityriasis Rubra Pilaris, Graham-Little-Piccardi-Lassueur Syndrome, Sunburn, and Plaque Psoriasis. Dr. Selby is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      1111 6th Ave Ste A100, 
      Des Moines, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Anne Lewis is a Nurse Practitioner in Des Moines, Iowa. Ms. Lewis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Relapsing Multiple Sclerosis (RMS), HNRNPH2-Related Disorder, Hereditary Ataxia, and Muscle Spasms. Ms. Lewis is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine

      Primary Health Care Inc

      2353 Se 14th St, 
      Des Moines, IA 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kristin Bolinger is a primary care provider, practicing in Family Medicine in Des Moines, Iowa. Dr. Bolinger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Hypothyroidism, and Williams Syndrome. Dr. Bolinger is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      1212 Pleasant St, Suite 204, 
      Des Moines, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Joi Lucas is a Pediatric Pulmonologist and a Pediatrics provider in Des Moines, Iowa. Dr. Lucas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Laryngomalacia, Empyema, Bronchogenic Cyst, and Grass Allergy. Dr. Lucas is currently accepting new patients.

      Showing 1-20 of 35

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor in Iowa, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor in Iowa, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors in Iowa, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors in Iowa, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor in Iowa, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Iowa, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Iowa, US?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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