The 20 Best Koolen De Vries Syndrome Doctors Near Me in Iowa, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors in Iowa, US

Last Updated: 02/22/2026

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MediFind found 30 doctor with experience in Koolen De Vries Syndrome near Iowa, US. Of these, 29 are Experienced and 1 are Advanced.

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30 providers found
    Rifali Patel
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Mercy Clinics Inc.

    330 Laurel St Ste 1200, 
    Des Moines, IA 
    Languages Spoken:
    English

    Rifali Patel is a Neurologist in Des Moines, Iowa. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Dravet Syndrome, and Memory Loss.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Marta Hemmingson is a Dermatologist in Iowa City, Iowa. Dr. Hemmingson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Head and Neck Squamous Cell Carcinoma (HNSCC), Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Melanoma.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    John Selby is a Dermatologist in Iowa City, Iowa. Dr. Selby is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pityriasis Rubra Pilaris, Graham-Little-Piccardi-Lassueur Syndrome, Sunburn, and Plaque Psoriasis.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Covenant Home Medical Services

    441 E San Marnan Dr, 
    Waterloo, IA 
    Languages Spoken:
    English

    Justin Ellerbroek is a Dermatologist in Waterloo, Iowa. Dr. Ellerbroek is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Universal Acquired Melanosis, Liver Spots, Seborrheic Keratosis, and Warts.

    Cheri Folden
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Office

    800 E 1st St Ste 1200, 
    Ankeny, IA 
    Languages Spoken:
    English

    Cheri Folden is a Pediatrics provider in Ankeny, Iowa. Dr. Folden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Croup, Asthma in Children, Scarlet Fever, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

    Michael Sarik
    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Mercyone North Iowa Medical Center

    1000 4th St SW, 
    Mason City, IA 
    Languages Spoken:
    English

    Michael Sarik is an Internal Medicine provider in Mason City, Iowa. Dr. Sarik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Paroxysmal Supraventricular Tachycardia (PSVT), His Bundle Tachycardia, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Pacemaker Implantation, and Cardiac Ablation.

    Hazim Zaghloul
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Mercy Clinics Inc.

    330 Laurel St Ste 1200, 
    Des Moines, IA 
    Languages Spoken:
    English

    Hazim Zaghloul is a Pediatric Gastroenterologist in Des Moines, Iowa. Dr. Zaghloul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Encopresis, Bowel Incontinence, Eosinophilic Esophagitis, and Lactose Intolerance.

    Cassie Parrish
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Office

    19942 Saint Joseph Dr, 
    Centerville, IA 
    Languages Spoken:
    English

    Cassie Parrish is a Nurse Practitioner in Centerville, Iowa. Ms. Parrish is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Urea Cycle Disorders (UCD), Vitamin D Deficiency, Koolen De Vries Syndrome, and Emphysema.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Edwin Stone is an Ophthalmologist in Iowa City, Iowa. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Late-Onset Retinal Degeneration, Adult-Onset Vitelliform Macular Dystrophy (AVMD), Retinitis Pigmentosa, Vitrectomy, and Cataract Removal.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Mercyone Waverly Family Medicine

    217 20th St NW, 
    Waverly, IA 
    Languages Spoken:
    English

    Lee Fagre is a primary care provider, practicing in Family Medicine in Waverly, Iowa. Dr. Fagre is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Idiopathic Edema, Maturity Onset Diabetes of the Young, Memory Loss, and Thrombocytopenia.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Office

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Carolita Sheetz is a Nurse Practitioner in Iowa City, Iowa. Ms. Sheetz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top area of expertise is Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Tri-State Surgery Center LLC

    1500 Associates Dr, 
    Dubuque, IA 
    Languages Spoken:
    English

    Timothy Daley is a Pediatrics provider in Dubuque, Iowa. Dr. Daley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Strabismus, Esotropia, and Cataract.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    McFarland Clinic PC

    312 E Main St, 
    Marshalltown, IA 
    Languages Spoken:
    English

    Colette Lothe is a Pediatrics provider in Marshalltown, Iowa. Dr. Lothe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scarlet Fever, Croup, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Methodist Physicians Clinic (1 Edmundson Place)

    1 Edmundson Pl, 
    Council Bluffs, IA 
    Languages Spoken:
    English

    Andrew Maxwell is a Pediatrics provider in Council Bluffs, Iowa. Dr. Maxwell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Developmental Dysphasia Familial, Congenital Bowing of Long Bones, Croup, and Delayed Growth.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    McFarland Clinic-Carroll

    1214 S Grant Rd, 
    Carroll, IA 
    Languages Spoken:
    English

    Michael Slattery is a primary care provider, practicing in Family Medicine in Carroll, Iowa. Dr. Slattery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Coronary Syndrome, Necrosis, Urinary Tract Infection in Children, Colonoscopy, and Hip Replacement.

    Experienced in Koolen De Vries Syndrome
    Neurosurgery
    Experienced in Koolen De Vries Syndrome
    Neurosurgery

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Saul Wilson is a Neurosurgery provider in Iowa City, Iowa. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spasticity, Chiari Malformation Type 2, Syringobulbia, Awake Craniotomy, and Gastrostomy.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Office

    1111 6th Ave Ste A100, 
    Des Moines, IA 
    Languages Spoken:
    English

    Anne Lewis is a Nurse Practitioner in Des Moines, Iowa. Ms. Lewis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Relapsing Multiple Sclerosis (RMS), HNRNPH2-Related Disorder, Hereditary Ataxia, and Muscle Spasms.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Office

    1610 W Townline St Ste 200, 
    Creston, IA 
    Experience:
    17+ years
    Languages Spoken:
    English

    Kristin Bolinger is a primary care provider, practicing in Family Medicine in Creston, Iowa. Dr. Bolinger has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Hypothyroidism, and Williams Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Hy-Vee Drugstore Clinic Pharmacy (7007)

    1215 Duff Ave, 
    Ames, IA 
    Languages Spoken:
    English

    Taylor Drake is a Pediatrics provider in Ames, Iowa. Dr. Drake is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Croup, Developmental Dysphasia Familial, Herpangina, and Lowe Syndrome.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Keith Carter is an Ophthalmologist in Iowa City, Iowa. Dr. Carter is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Entropion, Graves Disease, Blocked Tear Duct, and Benign Essential Blepharospasm.

    Showing 1-20 of 30

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Iowa, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Iowa, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Iowa, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Iowa, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Iowa, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Iowa, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Iowa, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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