The 20 Best Koolen De Vries Syndrome Doctors Near Me in clive, IA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 7 doctor with experience in Koolen De Vries Syndrome near clive, IA. Of these, 6 are Experienced and 1 are Advanced.

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7 providers found
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology
    Referral may be required

    MercyOne Des Moines Pediatrics Neurology Care

    330 Laurel St., Suite 1200, 
    Des Moines, IA 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rifali Patel is a Pediatric Neurologist and a Neurologist practicing medicine in Des Moines, Iowa. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 99 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Dravet Syndrome, and Memory Loss. Dr. Patel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Gastroenterology
    Referral may be required

    MercyOne Des Moines Pediatrics Gastroenterology Care

    330 Laurel St., Suite 1200, 
    Des Moines, IA 
     (7.8 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Hazim Zaghloul is a Pediatric Gastroenterologist and a Gastroenterologist practicing medicine in Des Moines, Iowa. Dr. Zaghloul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Encopresis, Bowel Incontinence, Eosinophilic Esophagitis, and Morning Sickness. Dr. Zaghloul is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Broadlawns Medical Center

    1801 Hickman Rd, 
    Des Moines, IA 
     (6.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Galioto is a primary care provider, practicing in Family Medicine in Des Moines, Iowa. Dr. Galioto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Concussion, Mal De Debarquement Syndrome, Delirium, and Hepatitis D. Dr. Galioto is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Office

    1111 6th Ave Ste A100, 
    Des Moines, IA 
     (7.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Anne Lewis is a Nurse Practitioner practicing medicine in Des Moines, Iowa. Lewis, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), HNRNPH2-Related Disorder, Hereditary Ataxia, and Muscle Spasms. Lewis, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Mercy Family Medicine Center

    250 Laurel St, 
    Des Moines, IA 
     (7.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kristin Bolinger is a primary care provider, practicing in Family Medicine in Des Moines, Iowa. She has been practicing medicine for over 17 years. Dr. Bolinger is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Hypothyroidism, and Williams Syndrome. Dr. Bolinger is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    MercyOne Ankeny Pediatrics Care

    800 East 1st Street, Suite 2200, 
    Ankeny, IA 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Cheri Folden is a Pediatrics provider practicing medicine in Ankeny, Iowa. Dr. Folden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Croup, Asthma in Children, Scarlet Fever, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP). Dr. Folden is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    UnityPoint Clinic Pediatrics Ankeny

    909 SW Oralabor Rd, 
    Ankeny, IA 
     (10.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rhonda Dodge-Syata is a Pediatrics provider practicing medicine in Ankeny, Iowa. Dr. Dodge-Syata is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses CHARGE Syndrome, Early Infantile Epileptic Encephalopathy, Microcephaly Deafness Syndrome, and Koolen De Vries Syndrome. Dr. Dodge-Syata is currently accepting new patients.

    Showing 1-7 of 7

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near clive, IA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near clive, IA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near clive, IA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near clive, IA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near clive, IA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near clive, IA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near clive, IA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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