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    Last Updated: 10/30/2025

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    MediFind found 22 doctor with experience in Koolen De Vries Syndrome near Kansas, US. Of these, 22 are Experienced.

    Location
    LocationClose
    22 providers found
      Experienced in Koolen De Vries Syndrome
      Hematology | Oncology
      Experienced in Koolen De Vries Syndrome
      Hematology | Oncology

      University Of Kansas Hospital Authority

      2650 Shawnee Mission Pkwy, 
      Westwood, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Gary Doolittle is a Hematologist and an Oncologist in Westwood, Kansas. Dr. Doolittle is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Melanoma, Merkel Cell Carcinoma, Rhabdomyosarcoma Embryonal, and Bone Tumor.

      Experienced in Koolen De Vries Syndrome
      Podiatric Medicine
      Experienced in Koolen De Vries Syndrome
      Podiatric Medicine

      Ukhs Great Bend LLC

      514 Cleveland St, 
      Great Bend, KS 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joshua Boone is a Podiatric Medicine provider in Great Bend, Kansas. Dr. Boone has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bunions, Flat Feet, Hammer Toe, and Tendinitis. Dr. Boone is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Heartland Dermatology And Skin Cancer Center, PA

      828 Elmhurst Blvd, 
      Salina, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Shaffer is a Dermatologist in Salina, Kansas. Dr. Shaffer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Actinic Keratosis, Sunburn, Basal Cell Skin Cancer, and Warts. Dr. Shaffer is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Family Medicine | Emergency Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine | Emergency Medicine

      Ukhs Great Bend LLC

      3515 Broadway Ave, 
      Great Bend, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Vannorden is an Emergency Medicine provider in Great Bend, Kansas. Dr. Vannorden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Koolen De Vries Syndrome, Heart Failure with Preserved Ejection Fraction (HFpEF), Plantar Fasciitis, Hip Replacement, and Vertebroplasty. Dr. Vannorden is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Wesley Physicians Medical Specialties LLC

      3243 E Murdock St, 
      Wichita, KS 
      Languages Spoken:
      English

      Elizabeth Beltran is a Medical Genetics specialist and a Pediatrics provider in Wichita, Kansas. Dr. Beltran is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Biotinidase Deficiency, Chromosome 13q Deletion, and MELAS Syndrome.

      Experienced in Koolen De Vries Syndrome
      Neonatology | Obstetrics and Gynecology
      Experienced in Koolen De Vries Syndrome
      Neonatology | Obstetrics and Gynecology

      Centerpoint Womens Services LLC

      1620 Charles Pl, 
      Manhattan, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Jessica Parrott is a Neonatologist and an Obstetrics and Gynecologist in Manhattan, Kansas. Dr. Parrott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Preeclampsia, Polyhydramnios, Gestational Diabetes, Fetal Enterovirus Syndrome, and Salpingo-Oophorectomy. Dr. Parrott is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      620 N Carriage Pkwy, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Siddharthan Sivamurthy is a Pediatrics provider in Wichita, Kansas. Dr. Sivamurthy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Phenylketonuria (PKU), Delayed Growth, DiGeorge Syndrome, and Williams Syndrome. Dr. Sivamurthy is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Kansas Medical Clinic PA

      2921 Swwanamaker Dr, 
      Topeka, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Gadzia is a Dermatologist in Topeka, Kansas. Dr. Gadzia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bowen's Disease, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Psoriasis. Dr. Gadzia is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      University Of Kansas Hospital Authority

      2330 Shawnee Mission Pkwy, 
      Westwood, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kristen Burkett is a Nurse Practitioner in Westwood, Kansas. Ms. Burkett is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome and Legius Syndrome. Ms. Burkett is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Cardiology | Interventional Cardiology
      Experienced in Koolen De Vries Syndrome
      Cardiology | Interventional Cardiology

      Heartland Cardiology, LLC

      3535 N Webb Rd, 
      Wichita, KS 
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Wassim Shaheen is a Cardiologist and an Interventional Cardiologist in Wichita, Kansas. Dr. Shaheen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Angina, Coronary Heart Disease, Atherosclerosis, Pacemaker Implantation, and Heart Bypass Surgery. Dr. Shaheen is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics
      5520 College Blvd Ste 365, 
      Overland Park, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Miller is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Overland Park, Kansas. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Autism Spectrum Disorder, Wildervanck Syndrome, Microcephaly Deafness Syndrome, and CHARGE Syndrome. Dr. Miller is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Internal Medicine
      Experienced in Koolen De Vries Syndrome
      Internal Medicine

      Inpatient Consultants Of Kansas PA

      3601 N Webb Rd, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Marilyn Jacobs is a primary care provider, practicing in Internal Medicine in Wichita, Kansas. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Stroke, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Jacobs is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Otolaryngology
      Experienced in Koolen De Vries Syndrome
      Otolaryngology

      Wichita Surgical Specialists PA

      818 N Emporia St, Suite 200, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Hawley is an Otolaryngologist in Wichita, Kansas. Dr. Hawley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Sinusitis, Empyema, Allergic Rhinitis, Grass Allergy, and Septoplasty. Dr. Hawley is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pulmonary Medicine

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Hamblin is a Pulmonary Medicine provider in Kansas City, Kansas. Dr. Hamblin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, Sarcoidosis, and Bone Marrow Aspiration. Dr. Hamblin is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Adolescent Medicine
      Experienced in Koolen De Vries Syndrome
      Adolescent Medicine
      824 W Frontier Ln, 
      Olathe, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Amy Voelker is an Adolescent Medicine provider in Olathe, Kansas. Dr. Voelker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Roseola, Zoon Vulvitis, Scarlet Fever, and Koolen De Vries Syndrome. Dr. Voelker is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      3901 Rainbow Blvd, 2026 Miller Mail Stop 4004, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Kenneth Goertz is a Pediatrics provider in Kansas City, Kansas. Dr. Goertz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Wildervanck Syndrome, Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Goertz is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics
      3243 E Murdock St Ste 402, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Apeksha Sathyaprasad is a Pediatric Pulmonologist and a Pediatrics provider in Wichita, Kansas. Dr. Sathyaprasad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Asthma, Asthma in Children, Cystic Fibrosis, and DiGeorge Syndrome. Dr. Sathyaprasad is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      2101 N Waldron St, 
      Hutchinson, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ellen Losew is a Pediatrics provider in Hutchinson, Kansas. Dr. Losew is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Asthma in Children, Obesity in Children, Croup, and Delayed Growth. Dr. Losew is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      1902 S Hwy 59 Ste 101, 
      Parsons, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Gretchen Garland is a Pediatrics provider in Parsons, Kansas. Dr. Garland is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Oppositional Defiant Disorder (ODD), Developmental Dysphasia Familial, Delayed Growth, and HNRNPH2-Related Disorder. Dr. Garland is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine
      1408 E St, 
      Iola, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Frank Porter is a primary care provider, practicing in Family Medicine in Iola, Kansas. Dr. Porter is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cirrhosis, Dehydration, Maturity Onset Diabetes of the Young, and Chronic Cough. Dr. Porter is currently accepting new patients.

      Showing 1-20 of 22

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Kansas, US?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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