The 20 Best Koolen De Vries Syndrome Doctors Near Me in Kansas, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 22 doctor with experience in Koolen De Vries Syndrome near Kansas, US. Of these, 22 are Experienced.

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22 providers found
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine

    College Square Medical Pavilion

    12000 West 110th Street, 
    Overland Park, KS 
    Experience:
    23+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hamblin is a Pulmonary Medicine provider practicing medicine in Overland Park, Kansas. He has been practicing medicine for over 23 years. Dr. Hamblin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, Sarcoidosis, and Bone Marrow Aspiration. Dr. Hamblin is board certified in American Board Of Internal Medicine, Critical Care Medicine - 2012 and American Board Of Internal Medicine, Pulmonary Disease - 2011. Dr. Hamblin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Village Office Center

    7301 Mission Road, Suite 350, 
    Prairie Village, KS 
    Experience:
    51+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Goertz is a Pediatric Cardiologist practicing medicine in Prairie Village, Kansas. He has been practicing medicine for over 51 years. Dr. Goertz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Microcephaly Deafness Syndrome, Wildervanck Syndrome, and CHARGE Syndrome. Dr. Goertz is board certified in American Board Of Pediatrics, Pediatric Cardiology - 1983 and American Board Of Pediatrics, Pediatrics - 1979. Dr. Goertz is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    2921 Sw Wanamaker Dr, 
    Topeka, KS 
    Languages Spoken:
    English

    Joseph Gadzia is a Dermatologist practicing medicine in Topeka, Kansas. Dr. Gadzia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Bowen's Disease, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Psoriasis.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology

    Midwest Perinatal Associates - Overland Park

    12200 W 106th St Ste 125, 
    Overland Park, KS 
    Languages Spoken:
    English

    Sarah Edwards is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Gestational Diabetes, Polyhydramnios, Premature Infant, and Fetal Enterovirus Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gary Doolittle is an Oncologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 42 years. Dr. Doolittle is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Melanoma, Merkel Cell Carcinoma, Rhabdomyosarcoma Embryonal, and Bone Tumor. Dr. Doolittle is board certified in American Board Of Internal Medicine, Internal Medicine - 1987. Dr. Doolittle is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    St. Rose Medical Pavilion - Family Medicine

    3515 Broadway Avenue, 
    Great Bend, KS 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Mark Vannorden is a Family Medicine provider practicing medicine in Great Bend, Kansas. He has been practicing medicine for over 24 years. Dr. Vannorden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Koolen De Vries Syndrome, Heart Failure with Preserved Ejection Fraction (HFpEF), Plantar Fasciitis, Hip Replacement, and Vertebroplasty. Dr. Vannorden is board certified in American Board Of Family Medicine, Family Medicine - 2005. Dr. Vannorden is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    824 W Frontier Ln, 
    Olathe, KS 
    Languages Spoken:
    English

    Amy Voelker is a Pediatrics provider practicing medicine in Olathe, Kansas. Dr. Voelker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Roseola, Zoon Vulvitis, Scarlet Fever, and Koolen De Vries Syndrome. Dr. Voelker is board certified in American Board Of Pediatrics, Pediatrics - 1998.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Eye Center

    7400 State Line Road, Suite 100, 
    Prairie Village, KS 
    Experience:
    15+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Emily Broxterman is an Ophthalmologist practicing medicine in Prairie Village, Kansas. She has been practicing medicine for over 15 years. Dr. Broxterman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Astigmatism, and Nearsightedness. Dr. Broxterman is board certified in American Board Of Ophthalmology, Ophthalmology - 2016. Dr. Broxterman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Podiatric Medicine
    Experienced in Koolen De Vries Syndrome
    Podiatric Medicine

    Central Kansas Orthopedic Group

    1514 State Road 96, 
    Great Bend, KS 
    Experience:
    17+ years
    Languages Spoken:
    English, Korean
    Accepting New Patients

    Joshua Boone is a Podiatric Medicine provider practicing medicine in Great Bend, Kansas. He has been practicing medicine for over 17 years. Dr. Boone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Bunions, Flat Feet, Hammer Toe, and Tendinitis. Dr. Boone is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    1861 N Rock Rd # 205, 
    Wichita, KS 
    Languages Spoken:
    English

    Matthew Shaffer is a Dermatologist practicing medicine in Wichita, Kansas. Dr. Shaffer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Sunburn, Basal Cell Skin Cancer, and Warts.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
    Languages Spoken:
    English

    Elizabeth Beltran is a Pediatrics provider practicing medicine in Overland Park, Kansas. Dr. Beltran is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Biotinidase Deficiency, Chromosome 13q Deletion, and MELAS Syndrome.

    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology

    Midwest Perinatal Associates - Overland Park

    12200 W 106th St Ste 125, 
    Overland Park, KS 
    Languages Spoken:
    English

    Jessica Parrott is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Parrott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Polyhydramnios, Gestational Diabetes, Preeclampsia, Fetal Enterovirus Syndrome, and Salpingo-Oophorectomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Wesley Pediatrics

    620 N Carriage Pkwy, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Siddharthan Sivamurthy is a Pediatrics provider practicing medicine in Wichita, Kansas. Dr. Sivamurthy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Phenylketonuria (PKU), Delayed Growth, DiGeorge Syndrome, and Williams Syndrome. Dr. Sivamurthy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology

    Heartland Cardiology

    9000 W Central Ave, 
    Wichita, KS 
    Languages Spoken:
    English

    Wassim Shaheen is an Interventional Cardiologist practicing medicine in Wichita, Kansas. Dr. Shaheen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 97 other conditions, according to our data. His clinical expertise encompasses Angina, Coronary Heart Disease, Atherosclerosis, Pacemaker Implantation, and Heart Bypass Surgery.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Ascension Via Christi Rehabilitation Hospital

    1151 N Rock Rd, 
    Wichita, KS 
    Languages Spoken:
    English

    Marilyn Jacobs is a primary care provider, practicing in Internal Medicine in Wichita, Kansas. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Stroke, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology

    Mid Kansas Ear Nose & Throat Associates East

    10090 E Shannon Woods Cir, 
    Wichita, KS 
    Languages Spoken:
    English

    Benjamin Hawley is an Otolaryngologist practicing medicine in Wichita, Kansas. Dr. Hawley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Sinusitis, Empyema, Allergic Rhinitis, Grass Allergy, and Septoplasty.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Apeksha Sathyaprasad is a Pediatric Pulmonologist practicing medicine in Wichita, Kansas. Dr. Sathyaprasad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Asthma, Asthma in Children, Cystic Fibrosis, and DiGeorge Syndrome. Dr. Sathyaprasad is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Labette Health Family Practice Clinic

    1902 S US Highway 59 Bldg E, 
    Parsons, KS 
    Languages Spoken:
    English

    Gretchen Garland is a Pediatrics provider practicing medicine in Parsons, Kansas. Dr. Garland is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Oppositional Defiant Disorder (ODD), Developmental Dysphasia Familial, Delayed Growth, and HNRNPH2-Related Disorder.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Hutchinson Clinic P.A. Inc.

    8110 E 32nd St N Ste 180, 
    Wichita, KS 
    Languages Spoken:
    English

    Ellen Losew is a Pediatrics provider practicing medicine in Wichita, Kansas. Dr. Losew is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Asthma in Children, Obesity in Children, Croup, and Delayed Growth.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Iola Pharmacy Clinic

    1408 East St, 
    Iola, KS 
    Languages Spoken:
    English

    Frank Porter is a primary care provider, practicing in Family Medicine in Iola, Kansas. Dr. Porter is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Dehydration, Maturity Onset Diabetes of the Young, and Chronic Cough.

    Showing 1-20 of 22

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Kansas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Kansas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Kansas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Kansas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Kansas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Kansas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Kansas, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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