The 20 Best Koolen De Vries Syndrome Doctors Near Me in Kansas, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/19/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 24 doctor with experience in Koolen De Vries Syndrome near Kansas, US. Of these, 24 are Experienced.

Location
LocationClose
24 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    KMC Dermatology-Topeka

    2921 SW Wanamaker Dr, 
    Topeka, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Gadzia is a Dermatologist practicing medicine in Topeka, Kansas. Dr. Gadzia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Bowen's Disease, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Psoriasis. Dr. Gadzia is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Richard And Annette Bloch Cancer Care Pavilion

    2650 Shawnee Mission Parkway, 
    Westwood, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gary Doolittle is an Oncologist practicing medicine in Westwood, Kansas. Dr. Doolittle is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Melanoma, Merkel Cell Carcinoma, Rhabdomyosarcoma Embryonal, and Bone Tumor. Dr. Doolittle is board certified in American Board Of Internal Medicine, Internal Medicine - 1987. Dr. Doolittle is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    St. Rose Medical Pavilion - Family Medicine

    3515 Broadway Avenue, 
    Great Bend, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Vannorden is a primary care provider, practicing in Family Medicine in Great Bend, Kansas. Dr. Vannorden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Chronic Cough, Osteoporosis, Postmenopausal Osteoporosis, Hip Replacement, and Bone Graft. Dr. Vannorden is board certified in American Board Of Family Medicine, Family Medicine - 2005. Dr. Vannorden is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Referral may be required

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hamblin is a Pulmonary Medicine provider practicing medicine in Kansas City, Kansas. Dr. Hamblin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, Sarcoidosis, and Bone Marrow Aspiration. Dr. Hamblin is board certified in American Board Of Internal Medicine, Pulmonary Disease - 2011 and American Board Of Internal Medicine, Critical Care Medicine - 2012 . Dr. Hamblin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Village Office Center

    7301 Mission Road, Suite 350, 
    Prairie Village, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Goertz is a Pediatric Cardiologist practicing medicine in Prairie Village, Kansas. Dr. Goertz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Koolen De Vries Syndrome, Oculofaciocardiodental Syndrome, Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, and Polysyndactyly Cardiac Malformation. Dr. Goertz is board certified in American Board Of Pediatrics, Pediatric Cardiology - 1983 and American Board Of Pediatrics, Pediatrics - 1979. Dr. Goertz is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    824 W Frontier Ln, 
    Olathe, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Voelker is a Pediatrics provider practicing medicine in Olathe, Kansas. Dr. Voelker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Croup, Childhood Disintegrative Disorder, Roseola, and Obesity in Children. Dr. Voelker is board certified in American Board Of Pediatrics, Pediatrics - 1998. Dr. Voelker is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Emily Broxterman is an Ophthalmologist practicing medicine in Kansas City, Kansas. Dr. Broxterman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Astigmatism, and Nearsightedness. Dr. Broxterman is board certified in American Board Of Ophthalmology, Ophthalmology - 2016. Dr. Broxterman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Podiatric Medicine
    Experienced in Koolen De Vries Syndrome
    Podiatric Medicine
    Referral may be required

    Central Kansas Orthopedic Group

    1514 State Road 96, 
    Great Bend, KS 
    Experience:
    17+ years
    Languages Spoken:
    English, Korean
    Accepting New Patients

    Joshua Boone is a Podiatric Medicine provider practicing medicine in Great Bend, Kansas. He has been practicing medicine for over 17 years. Dr. Boone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Bunions, Flat Feet, Hammer Toe, and Tendinitis. Dr. Boone is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Heartland Dermatology And Skin Cancer Center PA

    828 Elmhurst Blvd, 
    Salina, KS 
    Languages Spoken:
    English

    Matthew Shaffer is a Dermatologist practicing medicine in Salina, Kansas. Dr. Shaffer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Sunburn, Basal Cell Skin Cancer, and Warts.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Beltran-Carranza is a Pediatrics provider practicing medicine in Overland Park, Kansas. Dr. Beltran-Carranza is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Pompe Disease, Congenital Athymia, and Activated PI3K Delta Syndrome (APDS). Dr. Beltran-Carranza is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Referral may be required

    Midwest Perinatal Associates - Overland Park

    12200 W 106th St Ste 125, 
    Overland Park, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jessica Parrott is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Parrott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Polyhydramnios, Gestational Diabetes, Preeclampsia, Fetal Enterovirus Syndrome, and Salpingo-Oophorectomy. Dr. Parrott is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Wesley Pediatrics

    620 N Carriage Pkwy, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Siddharthan Sivamurthy is a Pediatrics provider practicing medicine in Wichita, Kansas. Dr. Sivamurthy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Phenylketonuria (PKU), Delayed Growth, DiGeorge Syndrome, and Williams Syndrome. Dr. Sivamurthy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    5808 W 110th St, 
    Leawood, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Micah Sinclair is a Hand Surgeon practicing medicine in Leawood, Kansas. Dr. Sinclair is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Hypoplasia of the Tibia with Polydactyly, Polydactyly, Syndactyly, Osteotomy, and Nerve Decompression. Dr. Sinclair is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology
    Referral may be required

    Heartland Cardiology

    9000 W Central Ave, 
    Wichita, KS 
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Wassim Shaheen is an Interventional Cardiologist practicing medicine in Wichita, Kansas. Dr. Shaheen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 74 other conditions, according to our data. His clinical expertise encompasses Angina, Coronary Heart Disease, Atherosclerosis, Pacemaker Implantation, and Angioplasty. Dr. Shaheen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Ascension Via Christi Rehabilitation Hospital

    1151 N Rock Rd, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Marilyn Jacobs is a primary care provider, practicing in Internal Medicine in Wichita, Kansas. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Stroke, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Jacobs is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Referral may be required

    Midwest Perinatal Associates - Ballentine

    8787 Ballentine St Ste 1200, 
    Overland Park, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Edwards is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Gestational Diabetes, Polyhydramnios, Premature Infant, and Fetal Enterovirus Syndrome. Dr. Edwards is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Referral may be required

    Mid-Kansas Ear Nose And Throat Associates

    310 S Hillside St, 
    Wichita, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Benjamin Hawley is an Otolaryngologist practicing medicine in Wichita, Kansas. Dr. Hawley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Sinusitis, Empyema, Allergic Rhinitis, Grass Allergy, and Septoplasty. Dr. Hawley is board certified in The American Board Of Otolaryngology Head And Neck Surgery - Otolaryngology. Dr. Hawley is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Laboratory Corporation Of America Holdings

    7800 W 110th St, 
    Overland Park,, KS 
    Languages Spoken:
    English

    Pamela Sylvestre is a Pediatrics provider practicing medicine in Overland Park,, Kansas. Dr. Sylvestre is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Esophagitis, Viral Gastroenteritis, Familial Adenomatous Polyposis, and Diarrhea.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    KU Wichita Internal Medicine

    1001 N Minneapolis St, 
    Wichita, KS 
    Languages Spoken:
    English, Hindi, Kannada
    Accepting New Patients

    Apeksha Sathyaprasad is a Pediatrics provider practicing medicine in Wichita, Kansas. Dr. Sathyaprasad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Asthma in Children, DiGeorge Syndrome, Secondary Immunodeficiency (SID), and Hypochondroplasia. Dr. Sathyaprasad is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Pulmonology. Dr. Sathyaprasad is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Labette Health Family Practice Clinic

    1902 S US Highway 59 Bldg E, 
    Parsons, KS 
    Languages Spoken:
    English
    Accepting New Patients

    Gretchen Garland is a Pediatrics provider practicing medicine in Parsons, Kansas. Dr. Garland is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Oppositional Defiant Disorder (ODD), Developmental Dysphasia Familial, Delayed Growth, and HNRNPH2-Related Disorder. Dr. Garland is currently accepting new patients.

    Showing 1-20 of 24

    Last Updated: 09/19/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Kansas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Kansas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Kansas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Kansas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Kansas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Kansas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Kansas, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    More Koolen De Vries Syndrome Doctors by city