The 20 Best Koolen De Vries Syndrome Doctors Near Me in shawnee, KS

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 16 doctor with experience in Koolen De Vries Syndrome near shawnee, KS. Of these, 15 are Experienced and 1 are Advanced.

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16 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Pediatrics
    Referral may be required
    2401 Gillham Rd, 
    Kansas City, MO 
     (8.5 miles away)
    Languages Spoken:
    English

    Brian Aalbers is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Aalbers is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Periventricular Heterotopia, Focal or Multifocal Malformations in Neuronal Migration, Cortical Dysplasia, and Seizures.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
     (4.2 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gary Doolittle is an Oncologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 42 years. Dr. Doolittle is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Melanoma, Merkel Cell Carcinoma, Rhabdomyosarcoma Embryonal, and Bone Tumor. Dr. Doolittle is board certified in American Board Of Internal Medicine, Internal Medicine - 1987. Dr. Doolittle is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Village Office Center

    7301 Mission Road, Suite 350, 
    Prairie Village, KS 
     (4.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Goertz is a Pediatric Cardiologist practicing medicine in Prairie Village, Kansas. Dr. Goertz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Oculofaciocardiodental Syndrome, Koolen De Vries Syndrome, Polysyndactyly Cardiac Malformation, and CHARGE Syndrome. Dr. Goertz is board certified in American Board Of Pediatrics, Pediatric Cardiology - 1983 and American Board Of Pediatrics, Pediatrics - 1979. Dr. Goertz is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Referral may be required

    Midwest Perinatal Associates - Ballentine

    8787 Ballentine St Ste 1200, 
    Overland Park, KS 
     (3.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Edwards is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Gestational Diabetes, Polyhydramnios, Premature Infant, and Fetal Enterovirus Syndrome. Dr. Edwards is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
     (4.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Beltran-Carranza is a Pediatrics provider practicing medicine in Overland Park, Kansas. Dr. Beltran-Carranza is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Pompe Disease, Congenital Athymia, and Activated PI3K Delta Syndrome (APDS). Dr. Beltran-Carranza is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Neonatology | Obstetrics and Gynecology
    Referral may be required

    Midwest Perinatal Associates - Overland Park

    12200 W 106th St Ste 125, 
    Overland Park, KS 
     (4.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jessica Parrott is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Overland Park, Kansas. Dr. Parrott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Polyhydramnios, Gestational Diabetes, Preeclampsia, Fetal Enterovirus Syndrome, and Salpingo-Oophorectomy. Dr. Parrott is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Referral may be required

    Medical Pavilion

    2000 Olathe Boulevard, 
    Kansas City, KS 
     (6.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hamblin is a Pulmonary Medicine provider practicing medicine in Kansas City, Kansas. Dr. Hamblin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, Sarcoidosis, and Bone Marrow Aspiration. Dr. Hamblin is board certified in American Board Of Internal Medicine, Pulmonary Disease - 2011 and American Board Of Internal Medicine, Critical Care Medicine - 2012 . Dr. Hamblin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The University Of Kansas Hospital

    4000 Cambridge Street, 
    Kansas City, KS 
     (6.2 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Emily Broxterman is an Ophthalmologist practicing medicine in Kansas City, Kansas. Dr. Broxterman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Astigmatism, and Nearsightedness. Dr. Broxterman is board certified in American Board Of Ophthalmology, Ophthalmology - 2016. Dr. Broxterman is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatrics
    Advanced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
     (7.5 miles away)
    Languages Spoken:
    English, Spanish, Turkish
    Accepting New Patients

    Basak Can is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Can is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Marcus Gunn Phenomenon, Gomez Lopez Hernandez Syndrome, Wildervanck Syndrome, and CHARGE Syndrome. Dr. Can is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    University Of Kansas Medical Center Internal Medicine Medical Oncology Division

    2330 Shawnee Mission Pkwy, Ste 210, 
    Westwood, KS 
     (5.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Kristen Burkett is a Nurse Practitioner practicing medicine in Westwood, Kansas. Burkett, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, Squamous Cell Carcinoma of the Anal Canal (SCAC), Legius Syndrome, and Metastatic Uveal Melanoma.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Laboratory Corporation Of America Holdings

    7800 W 110th St, 
    Overland Park,, KS 
     (6.8 miles away)
    Languages Spoken:
    English

    Pamela Sylvestre is a Pediatrics provider practicing medicine in Overland Park,, Kansas. Dr. Sylvestre is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Esophagitis, Viral Gastroenteritis, Familial Adenomatous Polyposis, and Diarrhea.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    5808 W 110th St, 
    Leawood, KS 
     (7.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Micah Sinclair is a Hand Surgeon practicing medicine in Leawood, Kansas. Dr. Sinclair is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Polydactyly, Hypoplasia of the Tibia with Polydactyly, Proximal Symphalangism, Osteotomy, and Nerve Decompression. Dr. Sinclair is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology
    Referral may be required

    Midwest Heart And Vascular Specialists - Overland Park

    5100 W 110th St Fl 2, 
    Overland Park, KS 
     (8.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ujjaval Patel is an Interventional Cardiologist practicing medicine in Overland Park, Kansas. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Pediatric Myocarditis, Heart Attack, Aortic Regurgitation, Balloon Sinuplasty, and Angioplasty. Dr. Patel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Referral may be required

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (8.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Donna Claes is a Pediatric Nephrologist practicing medicine in Kansas City, Missouri. Dr. Claes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Nephrotic Syndrome, Posterior Urethral Valves, Lowe Syndrome, Glomerulonephritis, and Kidney Transplant. Dr. Claes is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (8.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Miller is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Autism Spectrum Disorder, Wildervanck Syndrome, Early Infantile Epileptic Encephalopathy, and Koolen De Vries Syndrome. Dr. Miller is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    824 W Frontier Ln, 
    Olathe, KS 
     (12.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Amy Voelker is a Pediatrics provider practicing medicine in Olathe, Kansas. Dr. Voelker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Croup, Childhood Disintegrative Disorder, Roseola, and Obesity in Children. Dr. Voelker is board certified in American Board Of Pediatrics, Pediatrics - 1998. Dr. Voelker is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near shawnee, KS?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near shawnee, KS?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near shawnee, KS?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near shawnee, KS?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near shawnee, KS?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near shawnee, KS?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near shawnee, KS?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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