The 20 Best Koolen De Vries Syndrome Doctors Near Me in lexington, KY

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 18 doctor with experience in Koolen De Vries Syndrome near lexington, KY. Of these, 18 are Experienced.

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18 providers found
    Experienced in Koolen De Vries Syndrome
    Hand Surgery
    Experienced in Koolen De Vries Syndrome
    Hand Surgery
    Referral may be required

    Shriners Hospitals For Children

    110 Conn Ter, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Scott Riley is a Hand Surgeon practicing medicine in Lexington, Kentucky. Dr. Riley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Ulnar-Mammary Syndrome, Proximal Symphalangism, Syndactyly Type 1, and Syndactyly. Dr. Riley is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Steven Kraus is a Pediatric Radiologist practicing medicine in Lexington, Kentucky. Dr. Kraus is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Simpson-Golabi-Behmel Syndrome, Perlman Syndrome, and Hemi 3 Syndrome. Dr. Kraus is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Janet Walker is an Orthopedics provider practicing medicine in Lexington, Kentucky. Dr. Walker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Clubfoot, Blount Disease, Osgood-Schlatter Disease, Tenotomy, and Osteotomy. Dr. Walker is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English

    Amy Gewirtz is a Hematologist practicing medicine in Lexington, Kentucky. Dr. Gewirtz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Gastroesophageal Junction Cancer, Chronic B-Cell Leukemia (CBCL), Richter Syndrome, and Chronic Lymphocytic Leukemia (CLL).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Strup is a Urologist practicing medicine in Lexington, Kentucky. Dr. Strup is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Reconstructive Urology Surgery.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Kentucky Children's Hospital

    800 Rose St, 
    Lexington,, KY 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    David Cooper is a Pediatric Cardiologist practicing medicine in Lexington,, Kentucky. Dr. Cooper is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Trisomy 13, Coarctation of the Aorta, Ventricular Septal Defects, and Gastrostomy. Dr. Cooper is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    University Of Kentucky Chandler Medical Center

    740 Rose St, 
    Lexington, KY 
     (0.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Vishwas Talwalkar is an Orthopedics provider practicing medicine in Lexington, Kentucky. Dr. Talwalkar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Scoliosis, Legg-Calve-Perthes Disease (LCPD), Tenotomy, and Spinal Fusion. Dr. Talwalkar is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Referral may be required

    UK Department Of Pediatric Pulmonary

    Lexington, KY 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kimberly Lilly is a Physician Assistant practicing medicine in Lexington, Kentucky. Lilly, PA is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Ulnar-Mammary Syndrome, Absence of Tibia, Congenital Femoral Deficiency, and Hemi 3 Syndrome. Lilly, PA is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Referral may be required

    UK Healthcare

    110 Conn Ter Fl 4, 
    Lexington, KY 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Snyder is a Physician Assistant practicing medicine in Lexington, Kentucky. Snyder, PA is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Ulnar-Mammary Syndrome, Hemi 3 Syndrome, Perlman Syndrome, and Cantu Syndrome. Snyder, PA is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Advanced Dermatology

    1401 Harrodsburg Rd Ste C415, 
    Lexington, KY 
     (1.6 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jessica Smith is a Nurse Practitioner practicing medicine in Lexington, Kentucky. She has been practicing medicine for over 10 years. Smith, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome. Smith, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Barnstable Brown Diabetes Center (Adult)

    2195 Harrodsburg Rd Ste 125, 
    Lexington, KY 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Mary Sheppard is a primary care provider, practicing in Family Medicine in Lexington, Kentucky. Dr. Sheppard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Arachnodactyly, Congenital Contractural Arachnodactyly, and Ehlers-Danlos Syndrome (EDS).

    Experienced in Koolen De Vries Syndrome
    Psychiatry | Addiction Medicine
    Experienced in Koolen De Vries Syndrome
    Psychiatry | Addiction Medicine
    Referral may be required

    Kentucky Medical Services Foundation, Inc

    2400 Greatstone Pt, 
    Lexington, KY 
     (2.3 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Lon Hays is a Psychiatrist and an Addiction Medicine provider practicing medicine in Lexington, Kentucky. He has been practicing medicine for over 44 years. Dr. Hays is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Koolen De Vries Syndrome, Bipolar Disorder (BPD), Autism Spectrum Disorder, and Major Depression.

    Experienced in Koolen De Vries Syndrome
    Oncology
    Experienced in Koolen De Vries Syndrome
    Oncology
    Referral may be required

    Baptist Health Medical Group-Palliative Medicine

    1700 Nicholasville Rd Ste 1100, 
    Lexington, KY 
     (2.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lee Hicks is an Oncologist practicing medicine in Lexington, Kentucky. Dr. Hicks is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Lung Adenocarcinoma, Small Cell Lung Cancer (SCLC), Familial Colorectal Cancer, and Large-Cell Immunoblastic Lymphoma. Dr. Hicks is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Bldg E

    1720 Nicholasville Rd Ste 701, 
    Lexington, KY 
     (2.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sara Eckert is a Nurse Practitioner practicing medicine in Lexington, Kentucky. Eckert, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses ALK-Positive Non-Small Cell Lung Cancer, Smoldering Multiple Myeloma, Malabsorption, and Small Lymphocytic Lymphoma (SLL). Eckert, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Referral may be required

    Lexington Oncology Associates PSC

    1720 Nicholasville Rd Ste 701, 
    Lexington, KY 
     (2.5 miles away)
    Languages Spoken:
    English

    John Gohmann is a Hematologist and an Oncologist practicing medicine in Lexington, Kentucky. Dr. Gohmann is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Breast Cancer, Follicular Lymphoma, Paget Disease of the Breast, and Polycythemia Vera.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    740 Rose St Ste K401, 
    Lexington, KY 
     (4.0 miles away)
    Languages Spoken:
    English

    Vincent Prusick is an Orthopedics provider practicing medicine in Lexington, Kentucky. Dr. Prusick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Clubfoot, Legg-Calve-Perthes Disease (LCPD), Spondylocarpotarsal Synostosis Syndrome, and Spinal Fusion.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    UK Healthcare Women's Health

    740 Rose St Ste B101, 
    Lexington, KY 
     (4.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Robert Jensen is a Neurologist practicing medicine in Lexington, Kentucky. Dr. Jensen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Progressive Multifocal Leukoencephalopathy, Seizures, and Guillain-Barre Syndrome. Dr. Jensen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    UK LPP Group

    245 Fountain Ct, 
    Lexington, KY 
     (4.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Teresa Gevedon is a Psychiatrist practicing medicine in Lexington, Kentucky. Dr. Gevedon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, Generalized Anxiety Disorder (GAD), Major Depression, and Bipolar Disorder (BPD).

    Showing 1-18 of 18

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near lexington, KY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near lexington, KY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near lexington, KY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near lexington, KY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near lexington, KY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near lexington, KY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near lexington, KY?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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