The 20 Best Koolen De Vries Syndrome Doctors Near Me in New Orleans, LA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 60 doctor with experience in Koolen De Vries Syndrome near New Orleans, LA. Of these, 56 are Experienced and 4 are Advanced.

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60 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery
    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery
    Referral may be required

    Pediatric Surgical Associates

    2508 Bert Kouns Industrial Loop Ste 310, 
    Shreveport, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Kevin Boykin is a Pediatric Surgeon practicing medicine in Shreveport, Louisiana. Dr. Boykin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Infantile Pyloric Stenosis, Umbilical Hernia, Pectus Carinatum, and Gastroschisis. Dr. Boykin is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Willis Knighton Hematology/Oncology North

    2600 Kings Hwy # 300, 
    Shreveport, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Joyce Feagin is an Oncologist practicing medicine in Shreveport, Louisiana. Dr. Feagin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Inflammatory Breast Cancer, Colorectal Cancer, Familial Colorectal Cancer, and Paget Disease of the Breast. Dr. Feagin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    Willis Knighton Oral & Maxillofacial Surgery Specialists

    2508 Bert Kouns Industrial Loop, 
    Shreveport, LA 
    Languages Spoken:
    English, Arabic, Filipino, German, Spanish
    Accepting New Patients

    Ghali Ghali is an Oral and Maxillofacial Surgeon practicing medicine in Shreveport, Louisiana. Dr. Ghali is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Osteochondroma, Mouth Sores, Mouth Ulcers, Tongue Cancer, and Gastrostomy. Dr. Ghali is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Baton Rouge Clinic A Medical Corp.

    7373 Perkins Rd, 
    Baton Rouge, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Lara Falcon is a primary care provider, practicing in Internal Medicine in Baton Rouge, Louisiana. Dr. Falcon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Hypothyroidism, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Falcon is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Ochsner Specialty Health Center - Business Park

    1341 Ochsner Blvd, 
    Covington, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Thomassie is a Dermatologist practicing medicine in Covington, Louisiana. Dr. Thomassie is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Warts, Basal Cell Skin Cancer, and Pustular Psoriasis. Dr. Thomassie is board certified in American Board Of Dermatology - Dermatology. Dr. Thomassie is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Thibodaux Medical Clinic

    931 N Canal Blvd, 
    Thibodaux, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Gayathri Talluri is a primary care provider, practicing in Internal Medicine in Thibodaux, Louisiana. Dr. Talluri is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, Gastrostomy, and Hip Replacement. Dr. Talluri is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Labcorp

    500 Hall St, 
    Monroe, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Aristoteles Angel-Pena is a Pediatric Neurologist practicing medicine in Monroe, Louisiana. Dr. Angel-Pena is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Microcephaly, Epilepsy in Children, Seizures, and Corpus Callosum Agenesis. Dr. Angel-Pena is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral may be required

    Children's Multi-Specialty Group LLC

    4704 Ambassador Caffery Pkwy, 
    Lafayette, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Janna Flint-Wilson is a Pediatric Endocrinologist practicing medicine in Lafayette, Louisiana. Dr. Flint-Wilson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Septo-Optic Dysplasia, Idiopathic Short Stature (ISS), and Familial Short Stature (FSS). Dr. Flint-Wilson is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Our Lady Of The Lake Physician Group LLC

    8415 Goodwood Blvd, Suite 202b, 
    Baton Rouge, LA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Duane Superneau is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Baton Rouge, Louisiana. Dr. Superneau is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 110 other conditions, according to our data. His clinical expertise encompasses Smith-Magenis Syndrome, Miller-Dieker Syndrome, EEC Syndrome, and Zlotogora-Ogur Syndrome. Dr. Superneau is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Our Lady Of The Lake Children's Health Sleep Medicine

    8200 Constantin Blvd Fl 3, 
    Baton Rouge, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Buck is a Pediatric Otolaryngologist practicing medicine in Baton Rouge, Louisiana. Dr. Buck is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Swallowing Difficulty, Laryngomalacia, Stridor, Tongue Tie, and Mastoidectomy. Dr. Buck is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Shriners Hospitals For Children-Shreveport

    3100 Samford Ave, 
    Shreveport, LA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Powell is an Orthopedics provider practicing medicine in Shreveport, Louisiana. Dr. Powell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Blount Disease, Osgood-Schlatter Disease, Clubfoot, and Knock Knees. Dr. Powell is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Acadiana Health & Aesthetics

    202 Rue Promenade, 
    Lafayette, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Kayla Kenney is a Nurse Practitioner practicing medicine in Lafayette, Louisiana. Kenney, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Processing Deficient Progeroid Laminopathies (PDPL), 15q11.2 Microdeletion, Jacobsen Syndrome, and Distal 18q Deletion Syndrome. Kenney, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics | Pediatric Hematology Oncology
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    Louisiana State University School Of Medicine In New Orleans Faculty G

    2000 Canal St, 
    New Orleans, LA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sun Kim is a Medical Genetics specialist and a Pediatrics provider practicing medicine in New Orleans, Louisiana. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Chromosome 13q Deletion, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Cat Eye Syndrome. Dr. Kim is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    St. Francis Pediatric Neurology Clinic

    500 Hall St, 
    Monroe, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Marcia Riser-Parker is a Nurse Practitioner practicing medicine in Monroe, Louisiana. Riser-Parker, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Lissencephaly 1, Hydranencephaly, Lissencephaly 2, and Bilateral Perisylvian Polymicrogyria. Riser-Parker, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Shriners Hospitals For Children-Shreveport

    3100 Samford Ave, 
    Shreveport, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Cary Mielke is a Pediatric Orthopedics provider practicing medicine in Shreveport, Louisiana. Dr. Mielke is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Congenital Contractures, Arthrogryposis Multiplex Congenita, Clubfoot, and Knock Knees. Dr. Mielke is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    1512 W Kirby Pl, 
    Shreveport, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Kurt Grozinger is a Radiologist practicing medicine in Shreveport, Louisiana. Dr. Grozinger is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, and Knock Knees. Dr. Grozinger is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    St Charles Specialty Hospital

    3700 Saint Charles Ave, 
    New Orleans, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Maria Reinoso is an Ophthalmologist practicing medicine in New Orleans, Louisiana. Dr. Reinoso is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Diabetic Retinopathy, Kallikrein Hypertension, Late-Onset Retinal Degeneration, and Age-Related Macular Degeneration (ARMD). Dr. Reinoso is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Office

    8200 Constantin Blvd Ste 300, 
    Baton Rouge, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Andres Carrion is a Pediatric Pulmonologist practicing medicine in Baton Rouge, Louisiana. Dr. Carrion is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Stridor, Asthma, and Ciliary Dyskinesia-Bronchiectasis. Dr. Carrion is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The Center For Pediatric And Adolescent Medicine LLC

    604 N Acadia Rd Ste 200, 
    Thibodaux, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Henry Peltier is a Pediatrics provider practicing medicine in Thibodaux, Louisiana. Dr. Peltier is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Croup, Delayed Growth, Autism Spectrum Disorder, and Diarrhea. Dr. Peltier is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The Center For Pediatric And Adolescent Medicine LLC

    604 N Acadia Rd Ste 200, 
    Thibodaux, LA 
    Languages Spoken:
    English
    Accepting New Patients

    Kenneth Cruse is a Pediatrics provider practicing medicine in Thibodaux, Louisiana. Dr. Cruse is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Croup, Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Viral Gastroenteritis, and Autism Spectrum Disorder. Dr. Cruse is currently accepting new patients.

    Showing 1-20 of 60

    Last Updated: 09/19/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near New Orleans, LA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near New Orleans, LA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near New Orleans, LA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near New Orleans, LA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near New Orleans, LA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near New Orleans, LA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near New Orleans, LA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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