MediFind found 429 doctor with experience in Koolen De Vries Syndrome near Massachusetts, US. Of these, 390 are Experienced and 39 are Advanced.
Ted Lee is an Urologist in Boston, Massachusetts. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Exstrophy of the Bladder, Exstrophy-Epispadias Complex, Epispadias, and Cloacal Exstrophy. Dr. Lee is currently accepting new patients.
Childrens Hospital Ophthalmology Foundation Inc
Anne Fulton is an Ophthalmologist in Boston, Massachusetts. Dr. Fulton is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Retinopathy of Prematurity, X-Linked Congenital Stationary Night Blindness, Retinopathy Pigmentary Mental Retardation, and X-Linked Juvenile Retinoschisis. Dr. Fulton is currently accepting new patients.
Boston Childrens Heart Foundation Inc
Kristin Bonello is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Retinopathy Pigmentary Mental Retardation. Dr. Bonello is currently accepting new patients.
Baystate Medical Practices Inc
Michael Singh is a Cardiologist and a Pediatrics provider in Springfield, Massachusetts. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Marfan Syndrome, Congenital Heart Disease (CHD), Bicuspid Aortic Valve, and Truncus Arteriosus. Dr. Singh is currently accepting new patients.
Margaret Kenna is an Otolaryngologist in Boston, Massachusetts. Dr. Kenna is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Infant Hearing Loss, Hearing Loss, Familial Deafness, Adenoidectomy, and Myringotomy. Dr. Kenna is currently accepting new patients.
Children's Hospital Pediatric Associates, Inc
Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.
Kenan Haver is a Pediatric Pulmonologist and a Pediatrics provider in Boston, Massachusetts. Dr. Haver is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Early Infantile Epileptic Encephalopathy, and Wildervanck Syndrome. Dr. Haver is currently accepting new patients.
Children's Orthopaedic Surgery Foundation Inc
David Fogelman is a Physiatrist and an Orthopedics provider in Boston, Massachusetts. Dr. Fogelman has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Spasticity, and Moebius Syndrome. Dr. Fogelman is currently accepting new patients.
Chmc Otolaryngologic Foundation, Inc
Roger Nuss is an Otolaryngologist in Boston, Massachusetts. Dr. Nuss is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spasmodic Dysphonia, Laryngomalacia, Velopharyngeal Insufficiency, Myringotomy, and Adenoidectomy. Dr. Nuss is currently accepting new patients.
The General Hospital Corporation
Othon Iliopoulos is an Oncologist in Boston, Massachusetts. Dr. Iliopoulos is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hemangioblastoma, Hypothalamic Hamartomas, Renal Cell Carcinoma (RCC), and Koolen De Vries Syndrome. Dr. Iliopoulos is currently accepting new patients.
Chmc Surgical Foundation Inc
Belinda Hsi Dickie is a Pediatric Surgeon and a General Surgeon in Boston, Massachusetts. Dr. Hsi Dickie is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hirschsprung Disease, Imperforate Anus, VACTERL Association, Omphalocele, and Myringotomy. Dr. Hsi Dickie is currently accepting new patients.
Ryan Gise is an Ophthalmologist in Boston, Massachusetts. Dr. Gise is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Papilledema, Increased Intracranial Pressure, Strabismus, and Amblyopia.
Reza Rahbar is an Otolaryngologist in Boston, Massachusetts. Dr. Rahbar is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngomalacia, Laryngeal Cleft, Larynx Atresia, Myringotomy, and Adenoidectomy. Dr. Rahbar is currently accepting new patients.
Children's Orthopaedic Surgery Foundation Inc
Benjamin Shore is an Orthopedics provider in Boston, Massachusetts. Dr. Shore is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Legg-Calve-Perthes Disease (LCPD), Toxic Synovitis, Osteotomy, and Rhizotomy. Dr. Shore is currently accepting new patients.
Massachusetts Eye And Ear Associates, Inc
Eric Pierce is an Ophthalmologist in Boston, Massachusetts. Dr. Pierce is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Doyne Honeycomb Retinal Dystrophy, and Late-Onset Retinal Degeneration. Dr. Pierce is currently accepting new patients.
Massachusetts Eye And Ear Associates, Inc
Rachel Huckfeldt is an Ophthalmologist in Boston, Massachusetts. Dr. Huckfeldt has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Retinitis Pigmentosa, Usher Syndrome, Late-Onset Retinal Degeneration, and Retinopathy Pigmentary Mental Retardation. Dr. Huckfeldt is currently accepting new patients.
Siddharth Srivastava is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Srivastava is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ruvalcaba Syndrome, Autism Spectrum Disorder, Cerebral Palsy, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, and Deep Brain Stimulation. Dr. Srivastava is currently accepting new patients.
Children's Hospital Pediatric Associates, Inc
Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.
Massachusetts Eye And Ear Associates, Inc
Pablo Altschwager-Kreft is an Ophthalmologist in Boston, Massachusetts. Dr. Altschwager-Kreft is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Anton Syndrome, Isolated Duane Retraction Syndrome, Amblyopia, Albinism, and Myringotomy. Dr. Altschwager-Kreft is currently accepting new patients.
Children's Urological Foundation
Richard Lee is an Urologist and a Pediatrics provider in Boston, Massachusetts. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Exstrophy of the Bladder, UPJ Obstruction, Urinary Tract Infection (UTI), Orchiectomy, and Reconstructive Urology Surgery. Dr. Lee is currently accepting new patients.
Last Updated: 10/30/2025