The 20 Best Koolen De Vries Syndrome Doctors Near Me in odenton, MD

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 15 doctor with experience in Koolen De Vries Syndrome near odenton, MD. Of these, 15 are Experienced.

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15 providers found
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Referral may be required

    Johns Hopkins Health Care Center - Odenton

    1106 Annapolis Road, Pavilion I, Suite 280, 
    Odenton, MD 
     (0.9 miles away)
    Languages Spoken:
    English

    Rebecca Campbell is a Physician Assistant practicing medicine in Odenton, Maryland. Campbell, PA is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, Hydranencephaly, Bilateral Perisylvian Polymicrogyria, and Orofaciodigital Syndrome 6. Campbell, PA is board certified in National Commission On Certification Of Physician Assistants.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The Pediatric Group LLP

    2772 Rutland Rd, 
    Davidsonville, MD 
     (9.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Craytonia Davis is a Pediatrics provider practicing medicine in Davidsonville, Maryland. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Obesity in Children, Croup, Viral Gastroenteritis, and Autism Spectrum Disorder. Dr. Davis is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Referral may be required

    Prince George's County

    2900 Campus Way North, 
    Lanham, MD 
     (11.5 miles away)
    Languages Spoken:
    English, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Catherine Park is a Pediatric Nephrologist practicing medicine in Lanham, Maryland. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Nephrotic Syndrome, Koolen De Vries Syndrome, CHARGE Syndrome, and Posterior Urethral Valves. Dr. Park is board certified in Pediatric Nephrology: American Board Of Pediatrics, 2024 and Pediatrics: American Board Of Pediatrics, 2016. Dr. Park is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Neurology | Psychiatry
    Experienced in Koolen De Vries Syndrome
    Neurology | Psychiatry
    Referral may be required

    NuVasive Clinical Services Monitoring

    10275 Little Patuxent Pkwy, Ste 300, 
    Columbia, MD 
     (12.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Bassel Shneker is a Neurologist and a Psychiatrist practicing medicine in Columbia, Maryland. Dr. Shneker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 49 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer. Dr. Shneker is board certified in Clinical Neurophysiology, American Board Of Psychiatry And Neurology , Epilepsy, American Board Of Psychiatry And Neurology , American Board Of Psychiatry And Neurology Neurology, American Board Of Internal Medicine - Psychiatry & Neurology, Neurology - 2027, and American Board Of Internal Medicine - Neurology - 2027. Dr. Shneker is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics | Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics | Orthopedics
    Referral may be required

    Charter Professional Center

    10700 Charter Drive, Suite 205, 
    Columbia, MD 
     (13.1 miles away)
    Languages Spoken:
    English, Hindi, Malayalam
    Accepting New Patients

    Ranjit Varghese is a Pediatric Orthopedics specialist and an Orthopedics provider practicing medicine in Columbia, Maryland. Dr. Varghese is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Slipped Capital Femoral Epiphysis, and CHARGE Syndrome. Dr. Varghese is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Referral may be required

    Medical Arts Building - Columbia

    11085 Little Patuxent Parkway, Suite 103, 
    Columbia, MD 
     (13.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Black-Iii is a Vascular Surgeon practicing medicine in Columbia, Maryland. Dr. Black-Iii is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Aortic Dissection, Carotid Artery Surgery, and Hernia Surgery. Dr. Black-Iii is board certified in American Board Of Surgery. Dr. Black-Iii is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    Oral Maxillofacial Surgery

    22 South Greene Street, Room N, 
    Baltimore, MD 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nicholas Wilken is an Oral and Maxillofacial Surgeon practicing medicine in Baltimore, Maryland. Dr. Wilken is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Osteochondroma, Prognathism, Ludwig Angina, Uvulitis, and Septoplasty. Dr. Wilken is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    University Of Maryland Dermatologists

    5890 Waterloo Rd, 
    Columbia, MD 
     (10.1 miles away)
    Languages Spoken:
    English

    Joyce Evans is a primary care provider, practicing in Family Medicine in Columbia, Maryland. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Autonomic Neuropathy, Cohen Syndrome, Keutel Syndrome, and KBG Syndrome.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Your Health Network Inc.

    7501 Greenway Center Dr Ste 600, 
    Greenbelt, MD 
     (11.1 miles away)
    Languages Spoken:
    English

    Tuyet-nhung Nguyen is a primary care provider, practicing in Internal Medicine in Greenbelt, Maryland. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Sickle Cell Disease, Osteonecrosis, Chronic Pain, and Type 2 Diabetes (T2D).

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Office

    1730 West St, 
    Annapolis, MD 
     (12.0 miles away)
    Languages Spoken:
    English

    Seema Khan is a Pediatric Gastroenterologist practicing medicine in Annapolis, Maryland. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Tracheoesophageal Fistula, Atresia of Small Intestine, Esophageal Atresia, and Esophageal Atresia Coloboma Talipes.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    University Of Maryland Pediatrics

    737 W Lombard St, 
    Baltimore, MD 
     (14.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Carol Greene is a Pediatrics provider practicing medicine in Baltimore, Maryland. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Thymidine Kinase 2 Deficiency (TK2d), Phenylketonuria (PKU), and Increased Head Circumference. Dr. Greene is board certified in The American Board Of Pediatrics - Pediatrics, The American Board Of Medical Genetics And Genomics - Clinical Cytogenetics And Genomics, American Board Of Medical Genetics And Genomics - Clinical Genetics (MD), 1984, American Board Of Pediatrics - Pediatrics, 1982, American Board Of Medical Genetics - Clinical Cytogenetics, 1984, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics. Dr. Greene is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    Oral Maxillofacial Surgery

    22 South Greene Street, Room N, 
    Baltimore, MD 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    John Caccamese is an Oral and Maxillofacial Surgeon practicing medicine in Baltimore, Maryland. Dr. Caccamese is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Osteochondroma, Prognathism, Uvulitis, Septoplasty, and Osteotomy. Dr. Caccamese is board certified in American Board Of Oral And Maxillofacial Surgery - Oral & Maxillofacial Surgery, 2006. Dr. Caccamese is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    Oral Maxillofacial Surgery

    22 South Greene Street, Room N, 
    Baltimore, MD 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Joshua Lubek is an Oral and Maxillofacial Surgeon practicing medicine in Baltimore, Maryland. Dr. Lubek is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Tongue Cancer, Oral Squamous Cell Carcinoma, Leukoplakia, Gastrostomy, and Glossectomy. Dr. Lubek is board certified in American Board Of Oral And Maxillofacial Surgery - Oral & Maxillofacial Surgery, 2010. Dr. Lubek is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    Oral Maxillofacial Surgery

    22 South Greene Street, Room N, 
    Baltimore, MD 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Donita Dyalram is an Oral and Maxillofacial Surgeon practicing medicine in Baltimore, Maryland. Dr. Dyalram is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Tongue Cancer, Leukoplakia, Osteochondroma, Gastrostomy, and Tissue Biopsy. Dr. Dyalram is board certified in American Board Of Oral And Maxillofacial Surgery - Oral & Maxillofacial Surgery, 2014. Dr. Dyalram is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Neurology Care Center

    16 South Eutaw Street, Floor 3, 
    Baltimore, MD 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Savitt is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Savitt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Movement Disorders, Progressive Supranuclear Palsy Atypical, Progressive Supranuclear Palsy, and Gastrostomy. Dr. Savitt is board certified in American Board Of Psychiatry And Neurology - Neurology, 2002. Dr. Savitt is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near odenton, MD?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near odenton, MD?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near odenton, MD?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near odenton, MD?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near odenton, MD?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near odenton, MD?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near odenton, MD?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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