MediFind found 70 doctor with experience in Koolen De Vries Syndrome near North Carolina, US. Of these, 63 are Experienced, 6 are Advanced and 1 are Distinguished.
University Of North Carolina At Chapel Hill
Alessandro Iannaccone is an Ophthalmologist in Chapel Hill, North Carolina. Dr. Iannaccone is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), and Usher Syndrome Type 2A. Dr. Iannaccone is currently accepting new patients.
Atrium Health Levine Children's Nephrology
Donald Weaver is a Pediatric Nephrologist in Charlotte, North Carolina. Dr. Weaver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Posterior Urethral Valves, Togaviridae Disease, Feingold Syndrome, and Congenital Nephrotic Syndrome. Dr. Weaver is currently accepting new patients.
Atrium Health Levine Children's Pulmonology
Ashley Chadha is a Pediatrics provider in Charlotte, North Carolina. Dr. Chadha is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and CHARGE Syndrome. Dr. Chadha is currently accepting new patients.
Atrium Health Levine Children's Gastroenterology
Jason Dranove is a Pediatric Gastroenterologist and a Hepatologist in Charlotte, North Carolina. Dr. Dranove is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hirschsprung Disease, Neurogenic Bowel, Total Intestinal Aganglionosis, and Bowel Incontinence. Dr. Dranove is currently accepting new patients.
Atrium Health Levine Children's HEARTest Yard Congenital Heart Center
Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Defective Apolipoprotein B-100, Familial Hypertriglyceridemia, and Pacemaker Implantation. Dr. Hartz is currently accepting new patients.
John Frino is an Orthopedics provider in Winston Salem, North Carolina. Dr. Frino is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Knock Knees, Clubfoot, Caudal Regression Syndrome, and Hip Replacement. Dr. Frino is currently accepting new patients.
Wake Forest University Health Sciences
James Browne is a Plastic Surgeon and an Otolaryngologist in Winston Salem, North Carolina. Dr. Browne has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngeal Cancer, Adenoid Cystic Carcinoma, Tongue Cancer, Glossectomy, and Gastrostomy. Dr. Browne is currently accepting new patients.
Atrium Health Levine Children's HEARTest Yard Congenital Heart Center
Matthew Lisi is a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Lisi has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Microcephaly Deafness Syndrome, CHARGE Syndrome, and Koolen De Vries Syndrome. Dr. Lisi is currently accepting new patients.
Charlotte Eye, Ear, Nose & Throat Associates, P.A. - Huntersville
Erin Schotthoefer is a Pediatrics specialist and an Ophthalmologist in Huntersville, North Carolina. Dr. Schotthoefer has been practicing medicine for over 23 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Strabismus, Astigmatism, Nearsightedness, and Esotropia. Dr. Schotthoefer is currently accepting new patients.
Duke Eye Center
My clinical focus is on inherited retinal degenerations, including conditions like retinitis pigmentosa, Stargardt disease, macular pattern dystrophies, syndromic retinal degenerations, and mimickers like autoimmune and iatrogenic retinopathies. Patients have access to advanced diagnostic modalities, including electrophysiology testing, various types of perimetry testing, specialized retinal imaging, as well as genetic testing. Dr. Alekseev is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Interstitial Keratitis, Koolen De Vries Syndrome, Retinopathy Pigmentary Mental Retardation, and Wildervanck Syndrome.
Blue Ridge Pediatric And Adolescent Medicine, Inc
Clinton Zimmerman is a Pediatrics provider in Linville, North Carolina. Dr. Zimmerman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Obesity in Children, Asthma in Children, and Developmental Dysphasia Familial. Dr. Zimmerman is currently accepting new patients.
Blue Ridge Pediatric And Adolescent Medicine, Inc
John Lonas is a Pediatrics provider in West Jefferson, North Carolina. Dr. Lonas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Obesity in Children, Croup, Fetal Alcohol Syndrome (FAS), and Autism Spectrum Disorder. Dr. Lonas is currently accepting new patients.
Ronnie Beamon is a primary care provider, practicing in Family Medicine in Davidson, North Carolina. Dr. Beamon is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Urinary Tract Infection in Children, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Beamon is currently accepting new patients.
Vidant Medical Group LLC
Jeffrey Severa is a primary care provider, practicing in Geriatrics and Internal Medicine in Kenansville, North Carolina. Dr. Severa is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Necrosis, Pneumonia, Alzheimer's Disease, and HNRNPH2-Related Disorder. Dr. Severa is currently accepting new patients.
University Of North Carolina At Chapel Hill
Andrea Corse is a Neurologist in Chapel Hill, North Carolina. Dr. Corse is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Myasthenia Gravis, Cytoplasmic Body Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Myositis. Dr. Corse is currently accepting new patients.
Wake Forest University Health Sciences
James Crowe is a Pediatric Radiologist and a Radiologist in Winston Salem, North Carolina. Dr. Crowe is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Short Stature (Growth Disorders), Gas Bloat Syndrome, and Bronchogenic Cyst.
Duke Fertility Center
My goal in caring for my patients is to provide a personalized experience that addresses all aspects of an individual's life that may affect fertility. As director of the Duke Fertility Preservation Program and liaison for the Duke Prematurity Prevention clinic, I strive to provide fertility options to women who face complex medical and reproductive conditions. I am honored to provide hope to patients who are struggling to build their families now and those who are proactively planning for the future. My focus on evidence-based medicine, in conjunction with using the most-up-to date methods, allows me to provide highly individualized care for each of my patients. In addition to general infertility, my clinical interests include polycystic ovary syndrome, fertility preservation, egg freezing, recurrent pregnancy loss and history of preterm delivery, and providing LGBTQ+ inclusive care. I also enjoy caring for adolescents with reproductive disorders. Dr. Acharya is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Infertility, Koolen De Vries Syndrome, Polycystic Ovary Syndrome, and Ovarian Cysts.
Duke Electromyography Laboratory - Clinic 1L
Lisa Hobson is a Neurologist in Durham, North Carolina. Dr. Hobson has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Andersen-Tawil Syndrome.
Duke Lupus Clinic - Clinic 1J
As a rheumatologic, I care for people living with a range of autoimmune conditions. As Director of the Duke Lupus Clinic and Duke Lupus Registry, I specialize in systemic lupus erythematosus (SLE) and lupus related conditions. I was drawn to the field of rheumatology because of the complex, multi-system nature of autoimmune diseases and the many exciting advances in immune therapies. Rheumatology is a field where the most important part of my visit is listening and understanding my patients' journey. I work alongside an exceptional group of physicians, nurses, pharmacists, students, researchers, and staff. Together, our goal is to provide compassionate, comprehensive and state-of-the-art care for people living with lupus. Outside of clinic, I enjoy biking, running, and spending time with my family. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cutaneous Lupus Erythematosus (CLE), Systemic Lupus Erythematosus (SLE), Lupus Nephritis, and Discoid Lupus Erythematosus (DLE).
Novant Health Primary Care Poplar Tent
Michelle Festa is a primary care provider, practicing in Family Medicine in Concord, North Carolina. Dr. Festa has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Williams Syndrome, High Cholesterol, Migraine, and Glucocorticoid-Remediable Aldosteronism.
Last Updated: 10/30/2025









