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    Last Updated: 10/30/2025

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    MediFind found 19 doctor with experience in Koolen De Vries Syndrome near Nevada, US. Of these, 18 are Experienced and 1 are Advanced.

    Location
    LocationClose
    19 providers found
      Advanced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Radiology | Radiology

      Universal Radiology Partners Of Nevada LLC

      620 Shadow Ln, 
      Las Vegas, NV 
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Wael Abdalla is a Pediatric Radiologist and a Radiologist in Las Vegas, Nevada. Dr. Abdalla is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS). Dr. Abdalla is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Hematology | Oncology
      Experienced in Koolen De Vries Syndrome
      Hematology | Oncology

      Allison Curtis Kingsley Meoz Michael And Sanchez PC

      9280 W Sunset Rd, Suite 100, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Wolfram Samlowski is a Hematologist and an Oncologist in Las Vegas, Nevada. Dr. Samlowski is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Melanoma, Adult Soft Tissue Sarcoma, Mesenchymoma, Undifferentiated Pleomorphic Sarcoma, and Vitrectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      4425 S Pecos Rd Ste 6, 
      Las Vegas, NV 
      Languages Spoken:
      English, Filipino, German, Polish, Russian, Spanish, Ukrainian
      Accepting New Patients

      David Stewart is an Orthopedics provider in Las Vegas, Nevada. Dr. Stewart is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Shaken Baby Syndrome, Beukes Familial Hip Dysplasia, Collins Pope Syndrome, and Trochlear Dysplasia. Dr. Stewart is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology
      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology

      Alliance For Childhood Diseases

      1 Breakthrough Way, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Waseem Alhushki is a Pediatric Hematologist Oncology provider in Las Vegas, Nevada. Dr. Alhushki is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Sickle Cell Disease, Hereditary Spherocytosis, and Thalassemia.

      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology | Pediatrics
      1155 Mill St, Msm14, 
      Reno, NV 
      Languages Spoken:
      English, German, Serbian, Serbo Croatian

      Olivera Couloures is a Pediatric Nephrologist and a Pediatrics provider in Reno, Nevada. Dr. Couloures is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, Nephrotic Syndrome, and Williams Syndrome.

      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      Experienced in Koolen De Vries Syndrome
      Ophthalmology

      Shepherd Eye Center Ltd

      6850 N Durango Dr, Suite 404, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Naomie Warner is an Ophthalmologist in Las Vegas, Nevada. Dr. Warner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Isolated Duane Retraction Syndrome, Strabismus, Shaken Baby Syndrome, and Amblyopia.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      6330 W Flamingo Rd, 
      Las Vegas, NV 
      Languages Spoken:
      English
      Accepting New Patients

      Devraj Chavda is a Pediatric Neurologist and a Neurologist in Las Vegas, Nevada. Dr. Chavda is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Epilepsy, GAPO Syndrome, and Endovascular Embolization. Dr. Chavda is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      2020 E Desert Inn Rd, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Alfreda Maller is a Pediatric Neurologist and a Neurologist in Las Vegas, Nevada. Dr. Maller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly, Microcephaly with Spastic Quadriplegia, Zika Virus Disease, and Porencephaly.

      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Orthopedics
      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Orthopedics
      7455 W Washington Ave, #160, 
      Las Vegas, NV 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michael Thomas is a Pediatric Orthopedics specialist and an Orthopedics provider in Las Vegas, Nevada. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Macrodactyly of the Foot, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Beukes Familial Hip Dysplasia. Dr. Thomas is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Alliance For Childhood Diseases

      1 Breakthrough Way, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Mark Nunes is a Medical Genetics specialist and a Pediatrics provider in Las Vegas, Nevada. Dr. Nunes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypophosphatasia (HPP), Pyle Disease, Frontometaphyseal Dysplasia, and Chromosome 6q Duplication.

      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology

      Doctor's Health Network Inc

      8352 W Warm Springs Rd, Fl 3, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Asheesh Dewan is a Pediatric Endocrinologist in Las Vegas, Nevada. Dr. Dewan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Polycystic Ovary Syndrome, and Hashimoto Thyroiditis.

      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology
      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology

      Alliance For Childhood Diseases

      1 Breakthrough Way, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Aimee Foord is a Pediatric Hematologist Oncology provider in Las Vegas, Nevada. Dr. Foord is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Sickle Cell Disease, Febrile Neutropenia, Thalassemia, and Hemophilia A.

      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology
      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology

      Alliance For Childhood Diseases

      1 Breakthrough Way, 
      Las Vegas, NV 
      Languages Spoken:
      English

      Joseph Lasky is a Pediatric Hematologist Oncology provider in Las Vegas, Nevada. Dr. Lasky is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Sickle Cell Disease, Febrile Neutropenia, and Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine

      Nevada Health Centers Inc

      762 14th St, 
      Elko, NV 
      Languages Spoken:
      English, Japanese, Spanish
      Accepting New Patients

      Steve Lore is a primary care provider, practicing in Family Medicine in Elko, Nevada. Dr. Lore is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Opisthotonos, Muscle Spasms, Type 2 Diabetes (T2D), and Kyphosis. Dr. Lore is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      1475 Medical Pkwy, 
      Carson City, NV 
      Languages Spoken:
      English
      Accepting New Patients

      Brian Hall is a Pediatrics provider in Carson City, Nevada. Dr. Hall is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Croup, Fetal Alcohol Syndrome (FAS), Viral Gastroenteritis, and Herpangina. Dr. Hall is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Jason A Ahee MD PC

      1301 Bertha Howe Ave, Suite 11, 
      Mesquite, NV 
      Languages Spoken:
      English, Russian
      Accepting New Patients

      Joshua Schliesser is an Ophthalmologist in Mesquite, Nevada. Dr. Schliesser is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Schliesser is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine

      Las Vegas Medical Group LLC

      653 N Town Ctr Dr, Suite 306, 
      Las Vegas, NV 
      Languages Spoken:
      English
      Accepting New Patients

      Sean Liyanage is a primary care provider, practicing in Family Medicine in Las Vegas, Nevada. Dr. Liyanage is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are High Cholesterol, Dubin-Johnson Syndrome, Rotor Syndrome, and Obesity. Dr. Liyanage is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Neurosurgery
      Experienced in Koolen De Vries Syndrome
      Neurosurgery
      2650 N Tenaya Way Ste 301, 
      Las Vegas, NV 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Taryn Bragg is a Neurosurgery provider in Las Vegas, Nevada. Dr. Bragg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Syringomyelia, Chiari Malformation Type 2, Syringobulbia, Hydrocephalus, and Craniectomy. Dr. Bragg is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      Alliance For Childhood Diseases

      1 Breakthrough Way, 
      Las Vegas, NV 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Jessica Casey is a Nurse Practitioner in Las Vegas, Nevada. Ms. Casey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Febrile Neutropenia, Pediatric Low-Grade Glioma (pLGG), Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), and Koolen De Vries Syndrome. Ms. Casey is currently accepting new patients.

      Showing 1-19 of 19

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor in Nevada, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor in Nevada, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors in Nevada, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors in Nevada, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor in Nevada, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Nevada, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Nevada, US?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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