The 20 Best Koolen De Vries Syndrome Doctors Near Me in Nevada, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors in Nevada, US

Last Updated: 02/22/2026

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MediFind found 17 doctor with experience in Koolen De Vries Syndrome near Nevada, US. Of these, 16 are Experienced and 1 are Advanced.

Location
LocationClose
17 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Neuromonitoring Associates

    9811 W Charleston Blvd, # 2641, 
    Las Vegas, NV 
    Languages Spoken:
    English

    . Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Seizures, Cervical Myelopathy, Memory Loss, and Generalized Tonic-Clonic Seizure.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology

    University Medical Center

    1800 W Charleston Blvd, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Wael Abdel is a Pediatric Radiologist in Las Vegas, Nevada. Dr. Abdel is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).

    Wolfram Samlowski
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Comprehensive Cancer Centers Of Nevada

    9280 W Sunset Rd, Ste 100, 
    Las Vegas, NV 
    Languages Spoken:
    English
    Accepting New Patients

    Telehealth visits are available Wolfram Samlowski, MD, FACP is a medical oncologist at Comprehensive Cancer Centers of Nevada (CCCN) specializing in melanoma and renal cancer. He is board certified in internal medicine and medical oncology. Dr. Samlowski performs cancer immunotherapy and other oncology procedures at Southern Hills Hospital in Las Vegas. His mission is to provide access to both the best standard options and new drugs for difficult to treat diseases.My goal is to provide access to both the best standard options and new drugs in development for challenging diseases. Dr. Samlowski is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Melanoma, Adult Soft Tissue Sarcoma, Renal Cell Carcinoma (RCC), Mesenchymoma, and Vitrectomy.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Office

    8352 W Warm Springs Rd, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Asheesh Dewan is a Pediatric Endocrinologist in Las Vegas, Nevada. Dr. Dewan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Type 1 Diabetes (T1D), Acanthosis Nigricans, Type A Insulin Resistance Syndrome, and Short Stature (Growth Disorders).

    David G. Stewart
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics

    Dr. Stewart Office

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English, Polish, Russian, Spanish, Ukrainian

    David Stewart is a Pediatric Orthopedics specialist and an Orthopedics provider in Las Vegas, Nevada. Dr. Stewart is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Shaken Baby Syndrome, Beukes Familial Hip Dysplasia, Collins Pope Syndrome, and Trochlear Dysplasia.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology

    Regents Of The University Of California

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Waseem Alhushki is a Hematologist and an Oncologist in Las Vegas, Nevada. Dr. Alhushki is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Sickle Cell Disease, Hereditary Spherocytosis, and Thalassemia.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Vincent Gassen O D PC

    1505 Wigwam Pkwy Ste 100, 
    Henderson, NV 
    Experience:
    17+ years
    Languages Spoken:
    English

    Naomie Warner is an Ophthalmologist in Henderson, Nevada. Dr. Warner has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Isolated Duane Retraction Syndrome, Strabismus, Shaken Baby Syndrome, and Amblyopia.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Neurology Specialists

    3196 S Maryland Pkwy Ste 400, 
    Las Vegas, NV 
    Languages Spoken:
    English
    Accepting New Patients

    Devraj Chavda is a Pediatric Neurologist in Las Vegas, Nevada. Dr. Chavda is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Epilepsy, GAPO Syndrome, and Endovascular Embolization. Dr. Chavda is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Halthore Johns Pediatric Neurology Associates LTD

    2020 E Desert Inn Rd, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Alfreda Maller is a Pediatric Neurologist in Las Vegas, Nevada. Dr. Maller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly with Spastic Quadriplegia, Microcephaly, Zika Virus Disease, and Schizencephaly.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics

    Nevada Orthopedic & Spine Center

    7455 W Washington Ave, Ste 160, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Michael Thomas is a Pediatric Orthopedics specialist and an Orthopedics provider in Las Vegas, Nevada. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Macrodactyly of the Foot, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, and Beukes Familial Hip Dysplasia.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics

    Alliance For Childhood Diseases

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Mark Nunes is a Medical Genetics specialist and a Pediatrics provider in Las Vegas, Nevada. Dr. Nunes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypophosphatasia (HPP), Frontometaphyseal Dysplasia, Pyle Disease, and Chromosome 8p Deletion.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology

    Regents Of The University Of California

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Aimee Foord is a Hematologist and an Oncologist in Las Vegas, Nevada. Dr. Foord is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Sickle Cell Disease, Febrile Neutropenia, Thalassemia, and Hemophilia A.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology

    Regents Of The University Of California

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English

    Joseph Lasky is a Hematologist and an Oncologist in Las Vegas, Nevada. Dr. Lasky is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Sickle Cell Disease, Febrile Neutropenia, and Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Nevada Health Centers

    3325 Research Way, 
    Carson City, NV 
    Languages Spoken:
    English
    Accepting New Patients

    Steve Lore is a primary care provider, practicing in Family Medicine in Carson City, Nevada. Dr. Lore is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Opisthotonos, Muscle Spasms, Type 2 Diabetes (T2D), and Kyphosis. Dr. Lore is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Office

    1475 Medical Pkwy, 
    Carson City, NV 
    Languages Spoken:
    English

    Brian Hall is a Pediatrics provider in Carson City, Nevada. Dr. Hall is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Croup, Fetal Alcohol Syndrome (FAS), Viral Gastroenteritis, and Herpangina.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Las Vegas Medical Group LLC

    6850 N Durango Dr Ste 208, 
    Las Vegas, NV 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sean Liyanage is a primary care provider, practicing in Family Medicine in Las Vegas, Nevada. Dr. Liyanage is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are High Cholesterol, Rotor Syndrome, Dubin-Johnson Syndrome, and Obesity. Dr. Liyanage is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Alliance For Childhood Diseases

    1 Breakthrough Way, 
    Las Vegas, NV 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jessica Casey is a Nurse Practitioner in Las Vegas, Nevada. Ms. Casey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Febrile Neutropenia, Pediatric Low-Grade Glioma (pLGG), Nodular Lymphocyte-Predominant Hodgkin Lymphoma (NLPHL), and Koolen De Vries Syndrome. Ms. Casey is currently accepting new patients.

    Showing 1-17 of 17

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Nevada, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Nevada, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Nevada, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Nevada, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Nevada, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Nevada, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Nevada, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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