MediFind found 44 doctor with experience in Koolen De Vries Syndrome near Oregon, US. Of these, 39 are Experienced and 5 are Advanced.
Gary Gingrich is an Urologist in The Dalles, Oregon. Dr. Gingrich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Familial Prostate Cancer, Urinary Incontinence, Perirenal Abscess, Boils, and Ureteroscopy. Dr. Gingrich is currently accepting new patients.
Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.
Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Cardiomyopathy Hypogonadism Metabolic Anomalies, Nijmegen Breakage Syndrome, and Bosma Arhinia Microphthalmia Syndrome.
University Professional Services
Paul Yang is an Ophthalmologist in Portland, Oregon. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are X-Linked Retinitis Pigmentosa (XLRP), Retinitis Pigmentosa, Cone-Rod Dystrophy, and Usher Syndrome Type 2A. Dr. Yang is currently accepting new patients.
University Professional Services
Mark Pennesi is an Ophthalmologist in Beaverton, Oregon. Dr. Pennesi is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Usher Syndrome, Late-Onset Retinal Degeneration, and Vitrectomy. Dr. Pennesi is currently accepting new patients.
University Professional Services
Andrew Phelps is a Radiologist and a Pediatric Radiologist in Portland, Oregon. Dr. Phelps is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Osteopoikilosis, Kyphomelic Dysplasia, and Cartilage-Hair Hypoplasia.
Michelle Welborn is an Orthopedics provider in Portland, Oregon. Dr. Welborn is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Kyphosis, Collins Pope Syndrome, Osteotomy, and Spinal Fusion. Dr. Welborn is currently accepting new patients.
University Professional Services
Eric Orwoll is an Endocrinologist in Portland, Oregon. Dr. Orwoll is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Osteoporosis, Osteogenesis Imperfecta, Postmenopausal Osteoporosis, Fractured Spine, and Hormone Replacement Therapy (HRT).
University Professional Services
Craig Broberg is a Cardiologist in Springfield, Oregon. Dr. Broberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Eisenmenger Syndrome, Heart Transplant, and Heart Valve Repair. Dr. Broberg is currently accepting new patients.
Legacy Good Samaritan Hospital And Medical Center
George Anadiotis is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Anadiotis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Autism Spectrum Disorder, and Chromosome 2 Uniparental Disomy. Dr. Anadiotis is currently accepting new patients.
Robert Bernstein is an Orthopedics provider in Portland, Oregon. Dr. Bernstein is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Singleton-Merten Syndrome, Greenberg Dysplasia, Myhre Syndrome, and Multicentric Carpotarsal Osteolysis Syndrome. Dr. Bernstein is currently accepting new patients.
Brooke Su-Velez is a Pediatric Otolaryngologist and a Pediatrics provider in Portland, Oregon. Dr. Su-Velez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pierre Robin Sequence, Deafness Craniofacial Syndrome, Multiple Epiphyseal Dysplasia, Thyroidectomy, and Parathyroidectomy.
Heather Kong is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Kong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Clubfoot, Beukes Familial Hip Dysplasia, Knock Knees, and Meningococcemia. Dr. Kong is currently accepting new patients.
Legacy Emanuel Hospital And Health Center
Christopher Zarella is a Plastic Surgeon in Portland, Oregon. Dr. Zarella is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Metopic Ridge, Craniosynostosis, Orofaciodigital Syndrome 1, and Goldenhar Disease.
Legacy Good Samaritan Hospital And Medical Center
Dana Simpson is a Medical Genetics provider in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.
Daniel Bouton is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Bouton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Kyphosis, and Spinal Fusion. Dr. Bouton is currently accepting new patients.
Ellen Raney is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Raney is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Clubfoot, Osteogenesis Imperfecta, and Osteotomy. Dr. Raney is currently accepting new patients.
Ahmad Bayomy is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Bayomy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Knock Knees, Osgood-Schlatter Disease, Osteochondritis Dissecans, and Beukes Familial Hip Dysplasia. Dr. Bayomy is currently accepting new patients.
Rebecca Clinton is an Orthopedics provider in Portland, Oregon. Dr. Clinton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Clubfoot, Claw Foot, Beukes Familial Hip Dysplasia, and Macrodactyly of the Foot. Dr. Clinton is currently accepting new patients.
Minna Wieck is a Pediatric Surgeon and a General Surgeon in Portland, Oregon. Dr. Wieck is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Total Intestinal Aganglionosis, Hirschsprung Disease, Pectus Carinatum, Ileostomy, and Appendectomy.
Last Updated: 10/30/2025