The 20 Best Koolen De Vries Syndrome Doctors Near Me in Oregon, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors in Oregon, US

Last Updated: 02/22/2026

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MediFind found 44 doctor with experience in Koolen De Vries Syndrome near Oregon, US. Of these, 38 are Experienced and 6 are Advanced.

Location
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44 providers found
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Andrew Phelps is a Pediatric Radiologist in Portland, Oregon. Dr. Phelps is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Myhre Syndrome, Osteopathia Striata Cranial Sclerosis, and Kyphomelic Dysplasia.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland,, OR 
    Languages Spoken:
    English

    Craig Broberg is a Cardiologist in Portland,, Oregon. Dr. Broberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Eisenmenger Syndrome, Heart Transplant, and Heart Valve Repair.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Heather Kong is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Kong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Clubfoot, Beukes Familial Hip Dysplasia, Knock Knees, and Meningococcemia. Dr. Kong is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    1805 East 19th Street, 
    The Dalles, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gary Gingrich is a Urologist in The Dalles, Oregon. Dr. Gingrich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Familial Prostate Cancer, Urinary Incontinence, Perirenal Abscess, Urinary Tract Infection in Children, and Ureteroscopy. Dr. Gingrich is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatric Orthopedics
    9135 Southwest Barnes Road, Suite 763, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients

    Ahmad Bayomy is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Bayomy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Knock Knees, Osgood-Schlatter Disease, Osteochondritis Dissecans, and Beukes Familial Hip Dysplasia. Dr. Bayomy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Margie Tucker is a Pediatric Cardiologist in Portland, Oregon. Dr. Tucker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Patent Foramen Ovale Repair.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Alisha Floyd is a Pediatric Cardiologist in Portland, Oregon. Dr. Floyd has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Bicuspid Aortic Valve, and Cor Triatriatum.

    Experienced in Koolen De Vries Syndrome
    Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology
    9205 Southwest Barnes Road, 
    Portland, OR 
    Languages Spoken:
    English

    Lee Ball is a Radiologist in Portland, Oregon. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Thyroid Nodule.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Center Of Oregon PC

    300 N Graham St Ste 250, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Lindsay Urbinelli is a Pediatric Cardiologist in Portland, Oregon. Dr. Urbinelli is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Patent Foramen Ovale Repair.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine

    Bend Memorial Clinic LLP

    1501 NE Medical Center Dr, 
    Bend, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Louis D'avignon is a Pulmonary Medicine provider in Bend, Oregon. Dr. D'avignon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Atypical Pneumonia, Hospital-Acquired Pneumonia, Eosinophilic Asthma, Gastrostomy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Asante

    2825 E Barnett Rd, 
    Medford, OR 
    Experience:
    10+ years
    Languages Spoken:
    English

    Michael Brydone is a Radiologist in Medford, Oregon. Dr. Brydone has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Galactocoele, Breast Lump, Breast Infection, and Visceromegaly.

    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatrics
    9427 Southwest Barnes Road, Suite 598, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Intensive Care Medicine
    Experienced in Koolen De Vries Syndrome
    Intensive Care Medicine

    Overland Ordal & Thorson Pulmonary Consultants PC

    555 Black Oak Dr Ste 300, 
    Medford, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Diya Mohammad is an Intensive Care Medicine provider in Medford, Oregon. Dr. Mohammad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lung Metastases, Acute Interstitial Pneumonia, Interstitial Lung Disease, Chronic Obstructive Pulmonary Disease (COPD), and Gastrostomy.

    Experienced in Koolen De Vries Syndrome
    Undersea and Hyperbaric Medicine
    Experienced in Koolen De Vries Syndrome
    Undersea and Hyperbaric Medicine

    Legacy Emanuel Hospital

    3001 N Gantenbein Ave, 
    Portland, OR 
    Languages Spoken:
    English

    Enoch Huang is an Undersea and Hyperbaric Medicine provider in Portland, Oregon. Dr. Huang is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top area of expertise is Koolen De Vries Syndrome.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    2801 N Gantenbein Ave Ste 2225, 
    Portland, OR 
    Languages Spoken:
    English

    Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Atelosteogenesis Type 1, WAGR Syndrome, Polysyndactyly Cardiac Malformation, and Cockayne Syndrome Type 2.

    Advanced in Koolen De Vries Syndrome
    Pediatrics
    Advanced in Koolen De Vries Syndrome
    Pediatrics

    Randall Children's Development And Rehabilitation-A Department Of Legacy Emanuel Medical Center

    2801 N Gantenbein Ave Ste 2223, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Carrie Jones is a Pediatrics provider in Portland, Oregon. Dr. Jones is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Moebius Syndrome, Cerebral Palsy, CHARGE Syndrome, and Koolen De Vries Syndrome.

    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology

    Office

    545 SW Campus Dr, 
    Portland, OR 
    Languages Spoken:
    English

    Paul Yang is an Ophthalmologist in Portland, Oregon. Dr. Yang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinitis Pigmentosa, X-Linked Retinitis Pigmentosa (XLRP), Cone Rod Dystrophy Amelogenesis Imperfecta, and Doyne Honeycomb Retinal Dystrophy.

    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology

    Casey Eye Physicians And Surgeons LLC

    3375 SW Terwilliger Blvd, 
    Portland, OR 
    Languages Spoken:
    English

    Mark Pennesi is an Ophthalmologist in Portland, Oregon. Dr. Pennesi is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Usher Syndrome, Late-Onset Retinal Degeneration, and Vitrectomy.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Shriners Hospitals For Children-Portland

    3101 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Michelle Welborn is a Pediatric Orthopedics provider in Portland, Oregon. Dr. Welborn is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Kyphosis, Collins Pope Syndrome, Osteotomy, and Spinal Fusion.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Offers Telehealth

    Eric Orwoll is an Endocrinologist in Portland, Oregon. Dr. Orwoll is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Osteoporosis, Osteogenesis Imperfecta, Postmenopausal Osteoporosis, Fractured Spine, and Hormone Replacement Therapy (HRT).

    Showing 1-20 of 44

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Oregon, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Oregon, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Oregon, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Oregon, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Oregon, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Oregon, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Oregon, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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