The 20 Best Koolen De Vries Syndrome Doctors Near Me in The Woodlands, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 9 doctor with experience in Koolen De Vries Syndrome near The Woodlands, TX. Of these, 8 are Experienced and 1 are Advanced.

Location
LocationClose
9 providers found
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology

    Shaun S. Varghese M.D. PLLC

    920 Medical Plaza Dr Ste 120, 
    Shenandoah, TX 
     (0.8 miles away)
    Languages Spoken:
    English

    Shaun Varghese is a Pediatric Neurologist practicing medicine in Shenandoah, Texas. Dr. Varghese is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Autism Spectrum Disorder, and Transient Tic Disorder.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Texas Children's Hospital The Woodlands Outpatient Serivces

    The Woodlands, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Erin Henkel is a Pediatrics provider practicing medicine in The Woodlands, Texas. Dr. Henkel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Diarrhea, CHARGE Syndrome, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Sleep Medicine
    Experienced in Koolen De Vries Syndrome
    Sleep Medicine

    Texas Children's Hospital The Woodlands Cardiology

    Conroe, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Cruz Munoz is a Sleep Medicine provider practicing medicine in Conroe, Texas. Dr. Munoz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Sleepwalking (Somnambulism), Wildervanck Syndrome, Early Infantile Epileptic Encephalopathy, and Koolen De Vries Syndrome.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Office

    Conroe, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Andrew Chu is a Pediatric Gastroenterologist practicing medicine in Conroe, Texas. Dr. Chu is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Gastroparesis, Lactose Intolerance, Koolen De Vries Syndrome, and Gastroesophageal Reflux Disease (GERD).

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Texas Children's Hospital The Woodlands Outpatient Serivces

    Conroe, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Irene Tung is an Ophthalmologist practicing medicine in Conroe, Texas. Dr. Tung is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Astigmatism, and Esotropia.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Texas Children's Hospital The Woodlands Outpatient Serivces

    Conroe, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Keisha Barton is a Pediatric Gastroenterologist practicing medicine in Conroe, Texas. Dr. Barton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Delayed Growth, Malnutrition, Encopresis, and Bowel Incontinence.

    Experienced in Koolen De Vries Syndrome
    Sleep Medicine
    Experienced in Koolen De Vries Syndrome
    Sleep Medicine

    Texas Children's Hospital The Woodlands Outpatient Serivces

    The Woodlands, TX 
     (5.1 miles away)
    Languages Spoken:
    English

    Marlene Typaldos is a Sleep Medicine provider practicing medicine in The Woodlands, Texas. Dr. Typaldos is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Periodic Limb Movement Disorder, Asthma, CHARGE Syndrome, and Wildervanck Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    TCP FM 2920 Pediatrics

    6334 FM 2920 Rd Ste 300, 
    Spring, TX 
     (7.3 miles away)
    Languages Spoken:
    English

    Brittany Chan is a Pediatrics provider practicing medicine in Spring, Texas. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Obesity in Children, Delayed Growth, Autism Spectrum Disorder, and Early Infantile Epileptic Encephalopathy.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Office

    5627 FM 1960 Rd W Ste 100, 
    Houston, TX 
     (12.9 miles away)
    Languages Spoken:
    English

    Janie Doan is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Doan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Developmental Dysphasia Familial, Herpangina, and Delayed Growth.

    Showing 1-9 of 9

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near The Woodlands, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near The Woodlands, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near The Woodlands, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near The Woodlands, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near The Woodlands, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near The Woodlands, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near The Woodlands, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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