The 20 Best Koolen De Vries Syndrome Doctors Near Me in fort worth, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 29 doctor with experience in Koolen De Vries Syndrome near fort worth, TX. Of these, 27 are Experienced and 2 are Advanced.

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29 providers found
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Pediatric Eye Specialists Llp

    321 South Henderson Street, 
    Fort Worth, TX 
     (1.0 miles away)
    Languages Spoken:
    English, Spanish

    Eric Packwood is an Ophthalmologist practicing medicine in Fort Worth, Texas. Dr. Packwood is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Blocked Tear Duct, and Ocular Albinism.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Pediatric Eye Specialists Llp

    321 South Henderson Street, 
    Fort Worth, TX 
     (1.0 miles away)
    Languages Spoken:
    English, Spanish

    Michael Hunt is an Ophthalmologist practicing medicine in Fort Worth, Texas. Dr. Hunt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Strabismus, Amblyopia, Esotropia, and Epicanthal Folds.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Pediatric Eye Specialists Llp

    321 South Henderson Street, 
    Fort Worth, TX 
     (1.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Alan Norman is an Ophthalmologist practicing medicine in Fort Worth, Texas. Dr. Norman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Epicanthal Folds, and Microphthalmia. Dr. Norman is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Referral may be required

    University Of Texas Southwestern Medical Center At Dallas

    600 S Main St, 
    Fort Worth, TX 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Timothy Hadden is an Interventional Cardiologist and a Cardiologist practicing medicine in Fort Worth, Texas. Dr. Hadden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Angina, Atherosclerosis, Coronary Heart Disease, Angioplasty, and Heart Bypass Surgery. Dr. Hadden is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Advanced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Esra Caylan is a Pediatric Pulmonologist practicing medicine in Fort Worth, Texas. Dr. Caylan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Cystic Fibrosis, Koolen De Vries Syndrome, and PIK3CA-Related Overgrowth Spectrum.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Referral may be required

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Scott Pilgrim is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Pilgrim is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Endocardial Cushion Defect, Partial Atrioventricular Canal, and Atrioventricular Septal Defect. Dr. Pilgrim is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Diana Carrasco is a Medical Genetics provider practicing medicine in Fort Worth, Texas. Dr. Carrasco is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Trisomy 12 Mosaicism, Trisomy 14 Mosaicism, Trisomy 2 Mosaicism, and Mosaic Trisomy 7. Dr. Carrasco is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Cook Children's Physician Network - Genetics

    Fort Worth, TX 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Mary Kukolich is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Kukolich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Micrognathia, Coffin-Lowry Syndrome, Stickler Syndrome, and 3MC Syndrome. Dr. Kukolich is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Victory Medical Center Fort Worth LP

    600 S Main St, 
    Fort Worth,, TX 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Parag Joshi is a Cardiologist practicing medicine in Fort Worth,, Texas. Dr. Joshi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Atherosclerosis, Coronary Heart Disease, Mitral Valve Regurgitation, Cardiac Ablation, and Pacemaker Implantation. Dr. Joshi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Children's Medical Center

    801 7th Ave, 
    Fort Worth, TX 
     (1.4 miles away)
    Languages Spoken:
    English

    Eron Linver is a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Linver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cerebral Hypoxia, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Pertussis, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatrix Medical Group

    801 7th Avenue, 
    Fort Worth, TX 
     (1.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Yvette Johnson is a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Gastroschisis, Wolf-Hirschhorn Syndrome, Hernia, and High Blood Pressure in Infants. Dr. Johnson is board certified in Neonatal-Perinatal Medicine- American Board Of Pediatrics/Neonatal-Perinatal Medicine, Pediatrics- American Board Of Pediatrics, and Neonatal-Perinatal Medicine- American Board Of Pediatrics. Dr. Johnson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kristen Taylor is a Physiatrist practicing medicine in Fort Worth, Texas. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Coach Syndrome, and Bilateral Perisylvian Polymicrogyria. Dr. Taylor is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Acord is a Neurologist practicing medicine in Fort Worth, Texas. Dr. Acord is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Alternating Hemiplegia of Childhood, Thyrotoxic Periodic Paralysis, Hypokalemic Periodic Paralysis, and Deep Brain Stimulation. Dr. Acord is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sherief Mansi is a Pediatric Gastroenterologist practicing medicine in Fort Worth, Texas. Dr. Mansi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Bowel Incontinence, Fecal Impaction, Encopresis, Gastroparesis, and Sacral Nerve Stimulation. Dr. Mansi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Dave Shahani is a Neurologist practicing medicine in Fort Worth, Texas. Dr. Shahani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Seizures, Memory Loss, and Benign Rolandic Epilepsy. Dr. Shahani is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Children's ENT Clinic

    1500 Cooper St, 6th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michelle Marcincuk is an Otolaryngologist practicing medicine in Fort Worth, Texas. Dr. Marcincuk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Hearing Loss, Enlarged Adenoids, Otitis, and Laryngomalacia. Dr. Marcincuk is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Referral may be required

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kelly Vallance is a Hematologist and an Oncologist practicing medicine in Fort Worth, Texas. Dr. Vallance is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Wilms Tumor, Reticulohistiocytoma, Histiocytosis, Bone Marrow Aspiration, and Nephrectomy. Dr. Vallance is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Referral may be required

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients

    Corey Mandel is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Mandel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Mixed Gonadal Dysgenesis, and Turner Syndrome. Dr. Mandel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Palliative Medicine
    Experienced in Koolen De Vries Syndrome
    Palliative Medicine
    Referral may be required

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jason Reynolds is a Palliative Medicine provider practicing medicine in Fort Worth, Texas. Dr. Reynolds is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Koolen De Vries Syndrome. Dr. Reynolds is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cook Children's ENT Clinic

    1500 Cooper St, 6th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Purcell is an Otolaryngologist practicing medicine in Fort Worth, Texas. Dr. Purcell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Infant Hearing Loss, Hearing Loss, Laryngomalacia, Endoscopy, and Adenoidectomy. Dr. Purcell is currently accepting new patients.

    Showing 1-20 of 29

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near fort worth, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near fort worth, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near fort worth, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near fort worth, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near fort worth, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near fort worth, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near fort worth, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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