The 20 Best Koolen De Vries Syndrome Doctors Near Me in pasadena, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 148 doctor with experience in Koolen De Vries Syndrome near pasadena, TX. Of these, 144 are Experienced and 4 are Advanced.

Location
LocationClose
148 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Harris Health Pediatric And Adolescent Health Center-Pasadena

    3925 Fairmont Pkwy, 
    Pasadena, TX 
     (3.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kavitha Marri is a Pediatric Neurologist practicing medicine in Pasadena, Texas. Dr. Marri is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Aphantasia, Seizures, Autism Spectrum Disorder, and Generalized Tonic-Clonic Seizure. Dr. Marri is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    TCH. Pediatric Associates Inc.

    740 Gulfgate Center Mall, 
    Houston, TX 
     (5.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jamil Joyner is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Joyner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Autism Spectrum Disorder, Obesity in Children, Herpangina, and Wildervanck Syndrome. Dr. Joyner is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    TCH. Pediatric Associates Inc.

    740 Gulfgate Center Mall, 
    Houston, TX 
     (5.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Susan Khandelwal is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Khandelwal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Autism Spectrum Disorder, Triple X Syndrome, and Delayed Growth. Dr. Khandelwal is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Central Care Integrated Health Services

    8610 Martin Luther King Blvd, 
    Houston, TX 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Erinn Miller is a Nurse Practitioner practicing medicine in Houston, Texas. Miller, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Absence of Tibia, Lissencephaly 1, and Bilateral Perisylvian Polymicrogyria. Miller, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery
    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery
    Referral may be required

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
     (12.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Paul Minifee is a Pediatric Surgeon practicing medicine in Houston, Texas. Dr. Minifee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Pectus Excavatum, Koolen De Vries Syndrome, CHARGE Syndrome, and Endoscopy. Dr. Minifee is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Harris Health Smith Clinic

    2525 Holly Hall St # A, 
    Houston, TX 
     (12.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Meredith Ventura is a Rheumatologist practicing medicine in Houston, Texas. Dr. Ventura is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Zellweger Syndrome, Reactive Arthritis, Raynaud Phenomenon, and Fibromyalgia. Dr. Ventura is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    5516 Lockwood Dr, 
    Houston, TX 
     (10.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Emma Omoruyi is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Omoruyi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses May Thurner Syndrome, Undescended Testicle, Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Omoruyi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Baylor College Of Medicine - Ophthalmology

    1977 Butler Blvd, Ste E3.100 MS BCM 633, 
    Houston, TX 
     (11.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    John Stout is an Ophthalmologist practicing medicine in Houston, Texas. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, X-Linked Retinitis Pigmentosa (XLRP), Usher Syndrome Type 2A, and Vitrectomy. Dr. Stout is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    1 Baylor Plz, Bcm 320, 
    Houston, TX 
     (11.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Houston, Texas. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 94 other conditions, according to our data. Her clinical expertise encompasses 2q37 Deletion Syndrome, WAGR Syndrome, Culler Jones Syndrome, and Polysyndactyly Cardiac Malformation. Dr. Petersen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    6400 Fannin St, Ste 1800, 
    Houston, TX 
     (11.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Layla Ghergherehchi is an Ophthalmologist practicing medicine in Houston, Texas. Dr. Ghergherehchi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Epicanthal Folds, Amblyopia, Strabismus, and Esotropia. Dr. Ghergherehchi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    6410 Fannin St, Ste 824, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    David Rodriguez is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Von Gierke Disease, Early Infantile Epileptic Encephalopathy, Turner Syndrome, Adenoidectomy, and Myringotomy. Dr. Rodriguez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Medical Genetics
    Referral may be required
    6410 Fannin St, Ste 500, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Laura Farach is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Farach is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cortical Dysplasia, Epilepsy in Children, Mosaicism, and Chondrodystrophy. Dr. Farach is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    6410 Fannin St, Ste 500, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ebony Beaudoin is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Beaudoin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Maternally Inherited Leigh Syndrome, Leigh Syndrome, Thymidine Kinase 2 Deficiency (TK2d), and Delayed Growth. Dr. Beaudoin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Referral may be required
    6410 Fannin St, Ste 600, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Rosa Estrada-Martin is a Pulmonary Medicine provider practicing medicine in Houston, Texas. Dr. Estrada-Martin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Pleural Effusion, Lymphangioleiomyomatosis, Acute Interstitial Pneumonia, Interstitial Lung Disease, and Endoscopy. Dr. Estrada-Martin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    6410 Fannin St, Ste 500, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Hope Northrup is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Houston, Texas. Dr. Northrup is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Cortical Dysplasia, Epilepsy in Children, and Phenylketonuria (PKU). Dr. Northrup is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral may be required
    6410 Fannin St, Ste 470, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Maria Caldas-Vasquez is a Pediatric Endocrinologist practicing medicine in Houston, Texas. Dr. Caldas-Vasquez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, CHARGE Syndrome, Cardiofaciocutaneous Syndrome, and Noonan Syndrome. Dr. Caldas-Vasquez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required
    6410 Fannin St, Ste 500, 
    Houston, TX 
     (11.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Wilson is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Autism Spectrum Disorder, Generalized Tonic-Clonic Seizure, Seizures, and Tuberous Sclerosis Complex. Dr. Wilson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required
    6410 Fannin St, Ste 500, 
    Houston, TX 
     (11.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Nivedita Thakur is a Pediatric Neurologist practicing medicine in Houston, Texas. She has been practicing medicine for over 18 years. Dr. Thakur is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Hallervorden-Spatz Disease, Transient Tic Disorder, Aphantasia, Seizures, and Rhizotomy. Dr. Thakur is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Office

    1102 Bates Ave Ste 830, 
    Houston, TX 
     (12.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    James Versalovic is a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Versalovic is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 100 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Hereditary Neuroblastoma, Primary Ciliary Dyskinesia (PCD), and KBG Syndrome. Dr. Versalovic is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Office

    6701 Fannin St Ste 1730, 
    Houston, TX 
     (12.1 miles away)
    Languages Spoken:
    English

    Charu Sehgal is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Sehgal is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Koolen De Vries Syndrome, CHARGE Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Showing 1-20 of 148

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near pasadena, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near pasadena, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near pasadena, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near pasadena, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near pasadena, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near pasadena, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near pasadena, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.