The 20 Best Koolen De Vries Syndrome Doctors Near Me in plano, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 34 doctor with experience in Koolen De Vries Syndrome near plano, TX. Of these, 30 are Experienced and 4 are Advanced.

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34 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    UTSW Simmons Richardson Infusion Pharmac

    3030 Waterview Pkwy, 
    Richardson, TX 
     (3.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Arthur Westover is a Psychiatrist practicing medicine in Richardson, Texas. Dr. Westover is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Seasonal Affective Disorder (SAD), Major Depression, Autism Spectrum Disorder, and Asperger's Syndrome. Dr. Westover is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Medical City Plano

    3901 W 15th St, 
    Plano, TX 
     (4.0 miles away)
    Languages Spoken:
    English, Bengali, Burmese, Hindi, Malayalam, Spanish, Tamil
    Accepting New Patients
    Offers Telehealth

    Shyam Kishan is a Pediatric Orthopedics provider practicing medicine in Plano, Texas. Dr. Kishan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Knock Knees, Clubfoot, Sprengel Deformity, Osteotomy, and Nerve Decompression. Dr. Kishan is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Referral may be required

    Children's Health Pediatric Neurology Plano

    7609 Preston Rd Ste P1100, 
    Plano, TX 
     (7.1 miles away)
    Languages Spoken:
    English

    Halima Janjua is a Pediatric Nephrologist practicing medicine in Plano, Texas. Dr. Janjua is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Nephrotic Syndrome, Nephrogenic Diabetes Insipidus, Posterior Urethral Valves, and Glomerulonephritis.

    Learn about our expert tiers
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Pediatric Ophthalmology At UTSW Pediatric Group At Plano

    7609 Preston Rd, 2nd Fl Ste P2200, 
    Plano, TX 
     (7.1 miles away)
    Languages Spoken:
    English, Mandarin
    Accepting New Patients

    Serena Wang is an Ophthalmologist practicing medicine in Plano, Texas. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 49 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Congenital Cataract, Esotropia, and Cataract Removal. Dr. Wang is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Advanced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Children's Health Specialty Center 1 Plano

    7609 Preston Rd, 
    Plano, TX 
     (7.1 miles away)
    Languages Spoken:
    English

    Rachel St John is a Pediatric Otolaryngologist practicing medicine in Plano, Texas. Dr. St John is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Microtia, Beta-Mannosidosis, Fucosidosis, Alpha Mannosidosis, and Myringotomy.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Hospital Medicine Associates - Plano

    6200 W Parker Rd, 
    Plano, TX 
     (8.2 miles away)
    Languages Spoken:
    English, Hindi, Telugu

    Madhavi Karanam is a primary care provider, practicing in Internal Medicine in Plano, Texas. Dr. Karanam is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Leukemoid Reaction, Sepsis, Diabetic Ketoacidosis, Colonoscopy, and Bone Marrow Aspiration.

    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology | Pediatrics
    Referral may be required

    Texas Scottish Rite Hospital For Children

    3800 Gaylord Pkwy, Ste 850, 
    Frisco, TX 
     (9.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Mouin Seikaly is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Frisco, Texas. Dr. Seikaly is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Early Infantile Epileptic Encephalopathy, CHARGE Syndrome, Wildervanck Syndrome, and Kidney Transplant. Dr. Seikaly is board certified in Pediatric Nephrology- American Board Of Pediatrics/Pediatric Nephrology and Pediatric Nephrology- American Board Of Pediatrics. Dr. Seikaly is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    University Of Texas Southwestern Medical Center At Dallas

    7609 Preston Rd, 
    Plano, TX 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Irina Stanasel is a Pediatrics provider practicing medicine in Plano, Texas. Dr. Stanasel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Hypospadias, Undescended Testicle, Nutcracker Syndrome (NCS), Orchiectomy, and Ureteral Reconstruction. Dr. Stanasel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required
    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Angela Martinkus is a Nurse Practitioner practicing medicine in Plano, Texas. Martinkus, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome, VLDLR-Associated Cerebellar Hypoplasia, Coach Syndrome, and Hydranencephaly.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Mary Yang is a Pediatric Radiologist practicing medicine in Plano, Texas. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses End-Stage Renal Disease (ESRD), Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Jeanne Joglar is a Pediatric Radiologist practicing medicine in Plano, Texas. Dr. Joglar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Sheehan Syndrome.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English, Mandarin, Spanish, Thai
    Accepting New Patients

    Catherine Chen is an Ophthalmologist practicing medicine in Plano, Texas. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Entropion, Vernal Keratoconjunctivitis, Strabismus, and Esotropia. Dr. Chen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Cardiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Cardiology | Radiology
    Referral may be required

    University Of Texas Southwestern Medical Center At Dallas

    7601 Preston Rd, P3600, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Mohammad Hussain is a Pediatric Cardiologist and a Cardiologist practicing medicine in Plano, Texas. Dr. Hussain is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Pulmonary Atresia with Ventricular Septal Defect, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Double Outlet Right Ventricle.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Jonathan Wickiser is a Hematologist and an Oncologist practicing medicine in Plano, Texas. Dr. Wickiser is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Wilms Tumor, Hepatoblastoma, Hemi 3 Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Nephrectomy.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required
    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English

    Robin Landgraf is a Nurse Practitioner practicing medicine in Plano, Texas. Landgraf, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Vitamin D Deficiency, Koolen De Vries Syndrome, PIK3CA-Related Overgrowth Spectrum, and Non-Alcoholic Fatty Liver Disease.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sumit Singh is a Neuroradiologist practicing medicine in Plano, Texas. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Hydranencephaly, Orofaciodigital Syndrome 6, Lissencephaly 1, Agyria Pachygyria Polymicrogyria, and Tissue Biopsy. Dr. Singh is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Children's Medical Center Plano

    7601 Preston Rd, 
    Plano, TX 
     (7.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jerry George is a Pediatrics provider practicing medicine in Plano, Texas. Dr. George is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Croup, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Cerebral Hypoxia, and Pertussis. Dr. George is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    12655 N Central Expy Ste 300, 
    Dallas, TX 
     (7.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Aasma Khandekar is a Pediatrics provider practicing medicine in Dallas, Texas. Dr. Khandekar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Tetra-Amelia Syndrome, Mosaic Trisomy 8, and Mosaic Trisomy 9. Dr. Khandekar is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Dallas Pediatrics & Childrens Healthcare PA

    12606 Greenville Ave Ste 120, 
    Dallas, TX 
     (7.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Celia Genio-Harding is a Pediatrics provider practicing medicine in Dallas, Texas. Dr. Genio-Harding is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Viral Gastroenteritis, Autism Spectrum Disorder, and Multisystem Inflammatory Syndrome in Children (MIS-C). Dr. Genio-Harding is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery
    Referral may be required

    Pediatric Neurosurgical Specialists

    7777 Forest Ln Ste B-445, 
    Dallas, TX 
     (8.7 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    David Sacco is a General Surgeon practicing medicine in Dallas, Texas. Dr. Sacco is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Baller-Gerold Syndrome, Gorlin-Chaudhry-Moss Syndrome, Lhermitte-Duclos Disease, Sunken Fontanelles, and Awake Craniotomy. Dr. Sacco is currently accepting new patients.

    Showing 1-20 of 34

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near plano, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near plano, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near plano, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near plano, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near plano, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near plano, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near plano, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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