Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: t
View:

• Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer

• Live in United States, a US territory, or Canada

• Able to read and understand English

Locations
United States
Washington, D.c.
Cancer Support Community Research & Training Institute
RECRUITING
Washington D.c.
Contact Information
Primary
Erica E. Fortune, PhD
efortune@cancersupportcommunity.org
202.659.9709
Backup
Kara Doughtie, PhD
kdoughtie@cancersupportcommunity.org
Time Frame
Start Date: 2013-03
Estimated Completion Date: 2035-12
Participants
Target number of participants: 15000
Authors
Kevin Stein
Sponsors
Leads: Cancer Support Community, Research and Training Institute, Philadelphia

This content was sourced from clinicaltrials.gov