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    Last Updated: 10/30/2025

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    MediFind found 303 doctor with experience in Nemaline Myopathy near The United States. Of these, 220 are Experienced, 76 are Advanced, 5 are Distinguished and 2 are Elite.

    Location
    LocationClose
    303 providers found
      Margherita Milone
      Elite in Nemaline Myopathy
      Elite in Nemaline Myopathy

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Elite provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), and Tubular Aggregate Myopathy.

      Elite in Nemaline Myopathy
      Neurology
      Elite in Nemaline Myopathy
      Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Elie Naddaf is a Neurologist in Rochester, Minnesota. Dr. Naddaf has been practicing medicine for over 16 years and is rated as an Elite provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Inclusion Body Myositis, Cytoplasmic Body Myopathy, Nemaline Myopathy, and Myositis. Dr. Naddaf is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      David P. Randall
      Experienced in Nemaline Myopathy
      Experienced in Nemaline Myopathy

      Advocate Medical Group Neurology

      1875 Dempster St, Ste 625/660, 
      Park Ridge, IL 
      Languages Spoken:
      English

      David Randall is a Neurologist in Park Ridge, Illinois. Dr. Randall is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Myasthenia Gravis.

      Learn about our expert tiers
      Experienced in Nemaline Myopathy
      Family Medicine
      Experienced in Nemaline Myopathy
      Family Medicine
      25568 Elliott Rd, 
      Defiance, OH 
      Languages Spoken:
      English

      Shelly Mills is a primary care provider, practicing in Family Medicine in Defiance, Ohio. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Congenital Muscular Dystrophy Type 1A, Central Core Disease, Benign Autosomal Dominant Myopathy, and Rigid Spine Syndrome.

      Experienced in Nemaline Myopathy
      Experienced in Nemaline Myopathy

      Baystate Medical Practices Inc

      280 Chestnut St, Suite 2, 
      Springfield, MA 
      Languages Spoken:
      English, Amharic, Arabic, Bengali
      Accepting New Patients
      Offers Telehealth

      Anant Shenoy is a Neurologist in Springfield, Massachusetts. Dr. Shenoy is rated as an Experienced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Generalized Tonic-Clonic Seizure, and Limb-Girdle Muscular Dystrophy Type 1B. Dr. Shenoy is currently accepting new patients.

      Distinguished in Nemaline Myopathy
      Distinguished in Nemaline Myopathy

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome. Dr. Chahin is currently accepting new patients.

      Distinguished in Nemaline Myopathy
      Pediatric Neurology | Pediatrics
      Distinguished in Nemaline Myopathy
      Pediatric Neurology | Pediatrics
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Neurology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Carsten Bonnemann is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Bonnemann is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Hypotonia, and Gastrostomy.

      Distinguished in Nemaline Myopathy
      Internal Medicine
      Distinguished in Nemaline Myopathy
      Internal Medicine

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Lieberman is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, Rigid Spine Syndrome, X-Linked Myotubular Myopathy, and Nemaline Myopathy. Dr. Lieberman is currently accepting new patients.

      Distinguished in Nemaline Myopathy
      Distinguished in Nemaline Myopathy

      Penn Neuroscience Center - Neurology

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      James Dowling is a Neurologist in Philadelphia, Pennsylvania. Dr. Dowling is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Horizontal Gaze Palsy with Progressive Scoliosis. Dr. Dowling is currently accepting new patients.

      Distinguished in Nemaline Myopathy
      Pediatric Neurology | Neurology
      Distinguished in Nemaline Myopathy
      Pediatric Neurology | Neurology
      536 S Trimble Rd, 
      Mansfield, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Stefan Nicolau is a Pediatric Neurologist and a Neurologist in Mansfield, Ohio. Dr. Nicolau is rated as a Distinguished provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Becker Muscular Dystrophy. Dr. Nicolau is currently accepting new patients.

      Advanced in Nemaline Myopathy
      Family Medicine
      Advanced in Nemaline Myopathy
      Family Medicine

      Pendleton Community Care, Inc.

      82 Pine Street, 
      Franklin, WV 
      Languages Spoken:
      English
      Accepting New Patients

      Carmen Rexrode is a primary care provider, practicing in Family Medicine in Franklin, West Virginia. Dr. Rexrode is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Rexrode is currently accepting new patients.

      Vern C. Juel
      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Duke Electromyography Laboratory - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Experience:
      36+ years
      Languages Spoken:
      English
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel has been practicing medicine for over 36 years and is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Anthony A. Amato
      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Annette Fornos
      Advanced in Nemaline Myopathy
      Internal Medicine
      Advanced in Nemaline Myopathy
      Internal Medicine
      8746 Sw 24 St, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Annette Fornos is a primary care provider, practicing in Internal Medicine in Miami, Florida. Dr. Fornos is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Central Core Disease, Rigid Spine Syndrome, Collagen VI-Related Myopathy, and Tubular Aggregate Myopathy. Dr. Fornos is currently accepting new patients.

      Advanced in Nemaline Myopathy
      Neurology | Neuroradiology
      Advanced in Nemaline Myopathy
      Neurology | Neuroradiology

      Osf Multi-Specialty Group

      8600 State Route 91, Suite 130, 
      Peoria, IL 
      Languages Spoken:
      English

      Sankar Bandyopadhyay is a Neurologist and a Neuroradiologist in Peoria, Illinois. Dr. Bandyopadhyay is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myasthenia Gravis, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and Rigid Spine Syndrome.

      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Providence Health And Services Oregon

      9135 Sw Barnes Rd, Suite 461, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Wilkinson is a Neurologist in Portland, Oregon. Dr. Wilkinson is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Central Core Disease, Centronuclear Myopathy, Congenital Fiber-Type Disproportion, and Benign Autosomal Dominant Myopathy. Dr. Wilkinson is currently accepting new patients.

      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Oculopharyngeal Muscular Dystrophy. Dr. Gettings is currently accepting new patients.

      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      State Of Mississippi - University Of Mississippi Medical Center

      2550 Flowood Dr, Suite 200, 
      Flowood, MS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amanda Witt is a Physiatrist in Flowood, Mississippi. Dr. Witt is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Opisthotonos, Muscle Spasms, Congenital Fiber-Type Disproportion, and Central Core Disease. Dr. Witt is currently accepting new patients.

      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Hospital For Special Care

      2150 Corbin Ave, 
      New Britain, CT 
      Languages Spoken:
      English

      Kevin Felice is a Neurologist in New Britain, Connecticut. Dr. Felice is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Limb-Girdle Muscular Dystrophy Type 1A, and Spinal Muscular Atrophy (SMA).

      Advanced in Nemaline Myopathy
      Advanced in Nemaline Myopathy

      Regents Of The Univ Of Ca

      4860 Y St, 
      Sacramento, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Nanette Joyce is a Physiatrist in Sacramento, California. Dr. Joyce is rated as an Advanced provider by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

      Showing 1-20 of 303

      Last Updated: 10/30/2025

      What is the definition of Nemaline Myopathy?

      Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

      When should I see a Nemaline Myopathy doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Nemaline Myopathy doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Nemaline Myopathy doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Nemaline Myopathy doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Nemaline Myopathy doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Nemaline Myopathy doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Nemaline Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Nemaline Myopathy doctors in The United States?

      Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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