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    Last Updated: 10/30/2025

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    MediFind found 46 doctor with experience in Neurofibromatosis Type 1 (NF1) near Rochester, NY. Of these, 6 are Experienced.

    Location
    LocationClose
    46 providers found
      Jane Liesveld
      Hematology | Oncology | Transplant Surgery
      Hematology | Oncology | Transplant Surgery

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jane Liesveld is a Hematologist and an Oncologist in Rochester, New York. Her top areas of expertise are Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Leukemia, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Hematology | Oncology
      Hematology | Oncology

      University Of Rochester

      601 Elmwood Ave, Box 684, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Adrienne Victor is a Hematologist and an Oncologist in Rochester, New York. Her top areas of expertise are Melanoma, Adult Soft Tissue Sarcoma, Undifferentiated Pleomorphic Sarcoma, and Rhabdomyosarcoma Embryonal.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Nurse Practitioner
      Nurse Practitioner

      U Of R Neurology Department

      1000 S Ave, 
      Rochester, NY 
       (1.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jacqueline Behr is a Nurse Practitioner in Rochester, New York. Ms. Behr is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), ALK-Positive Non-Small Cell Lung Cancer, and Neurofibromatosis Type 1 (NF1).

      Learn about our expert tiers
      Physician Assistant
      Physician Assistant

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
       (2.1 miles away)
      Languages Spoken:
      English

      Julia Burke is a Physician Assistant in Rochester, New York. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Neurosurgery

      University Of Rochester Neurosurgery Group

      601 Elmwood Ave Box, 
      Rochester, NY 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jonathan Stone is a Neurosurgery provider in Rochester, New York. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Common Peroneal Nerve Dysfunction, Cervical Myelopathy, Schwannoma, Laminectomy, and Rhizotomy.

      Ophthalmology
      Ophthalmology

      University Of Rochester Pediatric Ophthalmology Services

      601 Elmwood Ave Box, 
      Rochester, NY 
       (2.4 miles away)
      Languages Spoken:
      English

      Matthew Gearinger is an Ophthalmologist in Rochester, New York. Dr. Gearinger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Esotropia, Amblyopia, Brown Syndrome, and Cataract Removal.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Nimish Mohile is a Neurologist in Rochester, New York. Dr. Mohile is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jamie Capal is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Capal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Autism Spectrum Disorder.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Nurse Practitioner
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Nurse Practitioner

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Alexander Paciorkowski is a Pediatric Neurologist and a Pediatrics provider in Rochester, New York. Mr. Paciorkowski is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Spinocerebellar Ataxia Type 11, Spinocerebellar Ataxia Type 1, Spinocerebellar Ataxia Type 31, and Spinocerebellar Ataxia Type 17.

      Neuroradiology | Radiology
      Neuroradiology | Radiology

      Radiologists Of Univ Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Akm Rahman is a Neuroradiologist and a Radiologist in Rochester, New York. Dr. Rahman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Stroke, CAPOS Syndrome, Relapsing Multiple Sclerosis (RMS), and Cerebral Arteriovenous Malformation.

      Neurosurgery
      Neurosurgery

      University Of Rochester Neurosurgery Group

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kevin Walter is a Neurosurgery provider in Rochester, New York. Dr. Walter is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Meningioma, Congenital Cardiovascular Shunt, Normal Pressure Hydrocephalus, Awake Craniotomy, and Laminectomy.

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology
      601 Elmwood Ave, Box 635, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      David Korones is a Pediatric Hematologist Oncology provider in Rochester, New York. Dr. Korones is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Stem Cancer, Glioma, Hereditary Neuroblastoma, and Medulloblastoma.

      Cardiology Clinical Group

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      James Eichelberger is a Cardiologist in Rochester, New York. Dr. Eichelberger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Coronary Heart Disease, Angina, Familial Ventricular Tachycardia, and Cardiomyopathy.

      Ophthalmology
      Ophthalmology

      University Of Rochester Neuro-Ophthalmology Services

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Zoe Williams is an Ophthalmologist in Rochester, New York. Dr. Williams is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Optic Neuritis, Strabismus, Relapsing Multiple Sclerosis (RMS), and Esotropia.

      Neurology | Pediatric Neurology | Physician Assistant
      Neurology | Pediatric Neurology | Physician Assistant

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lauryn Hemminger is a Neurologist and a Pediatric Neurologist in Rochester, New York. Ms. Hemminger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Metastatic Brain Tumor, Ependymoma, Embryonal Tumor with Multilayered Rosettes, and Glioblastoma.

      601 Elmwood Ave, Box 604, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Christopher Allphin is an Anesthesiologist in Rochester, New York. Dr. Allphin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Radiology
      Radiology

      Radiologists Of Univ Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Savita Puri is a Radiologist in Rochester, New York. Dr. Puri is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Lung Nodules, Neuroendocrine Tumor, Smoldering Multiple Myeloma, and Insulinoma.

      Pediatric Neurology | Neurology
      Pediatric Neurology | Neurology

      U Of R Neurology Department

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Marina Connolly is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Connolly has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Migraine, Tension Headache, Migraine with Brainstem Aura, and Neurofibromatosis Type 1 (NF1).

      Nurse Practitioner
      Nurse Practitioner
      601 Elmwood Ave, Box 631, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Carolyn Dickinson is a Nurse Practitioner in Rochester, New York. Ms. Dickinson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Ophthalmology
      Ophthalmology

      University Of Rochester Pediatric Ophthalmology Services

      601 Elmwood Ave, 
      Rochester, NY 
       (2.5 miles away)
      Languages Spoken:
      English

      Benjamin Hammond is an Ophthalmologist in Rochester, New York. Dr. Hammond is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Strabismus, Amblyopia, Legius Syndrome, and Esotropia.

      Showing 1-20 of 46

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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