The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Rochester, NY

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 50 doctor with experience in Neurofibromatosis Type 1 (NF1) near Rochester, NY. Of these, 5 are Experienced.

Location
LocationClose
50 providers found
    Radiology
    Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Akm Rahman is a Radiologist practicing medicine in Rochester, New York. Dr. Rahman is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Stroke, CAPOS Syndrome, Relapsing Multiple Sclerosis (RMS), and Cerebral Arteriovenous Malformation.

    Radiology
    Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Mary Croake is a Radiologist practicing medicine in Rochester, New York. Dr. Croake is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Undifferentiated Pleomorphic Sarcoma, Mesenchymoma, Lymphofollicular Hyperplasia, and Pleurisy.

    Neuroradiology
    Neuroradiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Anthony Portanova is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Portanova is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Stroke, Subarachnoid Hemorrhage, and Neurofibromatosis Type 1 (NF1).

    Learn about our expert tiers
    Neuroradiology
    Neuroradiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Ali Hussain is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Hussain is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Subarachnoid Hemorrhage, CAPOS Syndrome, Headache, and Cerebellum Agenesis Hydrocephaly.

    University Of Rochester

    601 Elmwood Ave, 
    Rochester,, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Imran Chaudhary is a Cardiologist practicing medicine in Rochester,, New York. Dr. Chaudhary is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Inappropriate Sinus Tachycardia (IST), Familial Ventricular Tachycardia, Atrial Fibrillation, and Arrhythmias.

    Pediatric Radiology
    Pediatric Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Apeksha Chaturvedi is a Pediatric Radiologist practicing medicine in Rochester, New York. Dr. Chaturvedi is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Legg-Calve-Perthes Disease (LCPD), Hepatic Hemangioma, SVC Obstruction, and Polyhydramnios.

    Neuroradiology
    Neuroradiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Henry Wang is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Wang is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), Stroke, Subependymoma, Subarachnoid Hemorrhage, and Rhizotomy.

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Abhishek Chaturvedi is a Radiologist practicing medicine in Rochester, New York. Dr. Chaturvedi is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Pleural Effusion, Pleurisy, ALK-Positive Non-Small Cell Lung Cancer, Percutaneous Coronary Intervention (PCI), and Angioplasty.

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Robert Ambrosini is a Radiologist practicing medicine in Rochester, New York. Dr. Ambrosini is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Pleural Effusion, Pleurisy, Emphysema, and ALK-Positive Non-Small Cell Lung Cancer.

    Radiology
    Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    John Strang is a Radiologist practicing medicine in Rochester, New York. Dr. Strang is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ascites, Lung Nodules, Visceromegaly, and ALK-Positive Non-Small Cell Lung Cancer.

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nadia Sultan is a Radiologist practicing medicine in Rochester, New York. Dr. Sultan is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Pediatric Radiology
    Pediatric Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Mitchell Chess is a Pediatric Radiologist practicing medicine in Rochester, New York. Dr. Chess is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Scoliosis, Intussusception in Children, Pentalogy of Cantrell, and Pleural Effusion.

    Neuroradiology
    Neuroradiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Jeevak Almast is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Almast is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Stroke, Subarachnoid Hemorrhage, Vertebral Artery Dissection, and Cerebral Arteriovenous Malformation.

    Neuroradiology
    Neuroradiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Michael Potchen is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Potchen is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Primary Amebic Meningoencephalitis, CACH Syndrome, Headache, and Brain Herniation.

    Pediatric Radiology
    Pediatric Radiology

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
     (2.5 miles away)
    Languages Spoken:
    English

    Nina Klionsky is a Pediatric Radiologist practicing medicine in Rochester, New York. Dr. Klionsky is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Hepatic Hemangioma, Fibrous Dysplasia, and Neurofibromatosis Type 1 (NF1).

    Neuroradiology
    Neuroradiology

    University Medical Imaging PC

    4901 Lac De Ville Blvd Ste 140, 
    Rochester, NY 
     (3.0 miles away)
    Languages Spoken:
    English

    Steven Meyers is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Meyers is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Progressive Multifocal Leukoencephalopathy, Invertebral Disc Disease, and Arachnoid Cysts.

    Neuroradiology
    Neuroradiology

    University Medical Imaging PC

    4901 Lac De Ville Blvd Ste 140, 
    Rochester, NY 
     (3.0 miles away)
    Languages Spoken:
    English

    David Shrier is a Neuroradiologist practicing medicine in Rochester, New York. Dr. Shrier is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Radiation Induced Meningioma, Relapsing Multiple Sclerosis (RMS), Meningioma, and Cerebellar Multiple System Atrophy.

    University Medical Imaging PC

    4901 Lac De Ville Blvd Ste 140, 
    Rochester, NY 
     (3.0 miles away)
    Languages Spoken:
    English

    Eric Weinberg is a Radiologist practicing medicine in Rochester, New York. Dr. Weinberg is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Carbuncle, Folliculitis, Boils, and Visceromegaly.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    Office

    2101 Lac De Ville Blvd Ste 1, 
    Rochester, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    Allen Pettee is a Neurologist practicing medicine in Rochester, New York. Dr. Pettee is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Peripheral Neuropathy.

    Clinton Medical Associates

    2400 S Clinton Ave Bldg G, 
    Rochester,, NY 
     (4.0 miles away)
    Languages Spoken:
    English

    James Eichelberger is a Cardiologist practicing medicine in Rochester,, New York. Dr. Eichelberger is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Coronary Heart Disease, Angina, Familial Ventricular Tachycardia, and Cardiomyopathy.

    Showing 1-20 of 50

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Rochester, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Rochester, NY?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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