The 20 Best Pantothenate Kinase-Associated Neurodegeneration Doctors in The United States

Find the Top Pantothenate Kinase-Associated Neurodegeneration Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 95 doctor with experience in Pantothenate Kinase-Associated Neurodegeneration near The United States. Of these, 68 are Experienced, 24 are Advanced, 2 are Elite and 1 are Distinguished.

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95 providers found
    Elite in Pantothenate Kinase-Associated Neurodegeneration
    Elite in Pantothenate Kinase-Associated Neurodegeneration

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English

    Penelope Hogarth is a Neurologist practicing medicine in Portland, Oregon. Dr. Hogarth is rated as an Elite provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Pantothenate Kinase-Associated Neurodegeneration, Hallervorden-Spatz Disease, Beta-Propeller Protein-Associated Neurodegeneration, Movement Disorders, and Deep Brain Stimulation.

    Elite in Pantothenate Kinase-Associated Neurodegeneration
    Elite in Pantothenate Kinase-Associated Neurodegeneration

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Aleksandar Videnovic is a Sleep Medicine provider practicing medicine in Boston, Massachusetts. Dr. Videnovic is rated as an Elite provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Pantothenate Kinase-Associated Neurodegeneration, Movement Disorders, and Excessive Daytime Sleepiness.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Advanced in Pantothenate Kinase-Associated Neurodegeneration

    Emory Brain Health Center

    12 Executive Park Drive Northeast, 
    Atlanta, GA 
    Experience:
    33+ years
    Languages Spoken:
    English
    Offers Telehealth

    Hyder Jinnah is a Neurologist practicing medicine in Atlanta, Georgia. He has been practicing medicine for over 33 years. Dr. Jinnah is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Benign Essential Blepharospasm, Drug Induced Dyskinesia, Focal Dystonia, Torticollis, and Deep Brain Stimulation. Dr. Jinnah is board certified in American Board Of Psychiatry And Neurology, 1999.

    Learn about our expert tiers
    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology | Neuromusculoskeletal Medicine | Reflexology
    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology | Neuromusculoskeletal Medicine | Reflexology

    Endeavor Health Medical Group

    2180 Pfingsten Rd., Suite 2000, 
    Glenview, IL 
    Languages Spoken:
    English

    Lawrence Zeidman, MD, a neurologist at Endeavor Health, specializes in neuromuscular and autonomic disorders with a focus on peripheral neuropathies. He serves as Director of the Neuromuscular and Autonomic Section at Endeavor Health NorthShore Hospitals and is board-certified in neurology, neurophysiology, electrodiagnostic medicine and autonomic disorders. Dr. Zeidman performs EMG, autonomic and skin biopsy procedures, and is actively involved in clinical research, multidisciplinary care and medical education. Dr. Zeidman is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Gerstmann-Straussler-Scheinker Syndrome, Peripheral Neuropathy, Myasthenia Gravis, and Chronic Demyelinizing Neuropathy with IgM Monoclonal. Dr. Zeidman is board certified in American Board Of Psychiatry & Neurology.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Advanced in Pantothenate Kinase-Associated Neurodegeneration

    Neurology Alliance, SC

    2424 S 90th St, 
    West Allis, WI 
    Languages Spoken:
    English, Hindi, Urdu
    Offers Telehealth

    Arshad Ahmed is a Neurologist practicing medicine in West Allis, Wisconsin. Dr. Ahmed is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Autosomal Dominant Partial Epilepsy with Auditory Features, Memory Loss, Chronic Inflammatory Demyelinating Polyneuropathy, and Dravet Syndrome. Dr. Ahmed is board certified in American Board Of Psychiatry & Neurology, Clinical Neurophysiology.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Advanced in Pantothenate Kinase-Associated Neurodegeneration

    Middleburg Heights Family Health Center

    17840 Bagley Road, 
    Middlebrg Hts, OH 
    Experience:
    37+ years
    Languages Spoken:
    English

    Barbara Merriman is a Neurologist practicing medicine in Middlebrg Hts, Ohio. She has been practicing medicine for over 37 years. Dr. Merriman is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Migraine, Neuralgia, Peripheral Neuropathy, and Memory Loss. Dr. Merriman is board certified in American Board Of Psychiatry And Neurology, 2019.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology | Pediatrics
    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology | Pediatrics

    Arizona Pediatric Neurology & Neurogenetics Associates, PLLC

    3330 N 2nd St, Ste 402, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vinodh Narayanan is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Phoenix, Arizona. Dr. Narayanan is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Hypotonia. Dr. Narayanan is board certified in Pediatrics and Psychiatry & Neurology (Neurology). Dr. Narayanan is currently accepting new patients.

    Distinguished in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Distinguished in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
    Languages Spoken:
    English

    Michael Kruer is a Pediatric Neurologist practicing medicine in Phoenix, Arizona. Dr. Kruer is rated as a Distinguished provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spasticity, Drug Induced Dyskinesia, Hypotonia, and Deep Brain Stimulation.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Experienced in Pantothenate Kinase-Associated Neurodegeneration

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi

    Prakash Kotagal is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Kotagal is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, West Syndrome, and Photosensitive Epilepsy. Dr. Kotagal is board certified in American Board Of Psychiatry And Neurology, 2016.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Experienced in Pantothenate Kinase-Associated Neurodegeneration

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    25+ years
    Languages Spoken:
    English

    Andrew Mower is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 25 years. Dr. Mower is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Seizures, Absence Seizure, Generalized Tonic-Clonic Seizure, and West Syndrome. Dr. Mower is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Deroos is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2005. Dr. Deroos is currently accepting new patients.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology

    Mount Sinai

    1468 Madison Ave, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Susan Shin is a Neurologist practicing medicine in New York, New York. Dr. Shin is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Guillain-Barre Syndrome, Infantile Axonal Neuropathy, and Congenital Insensitivity to Pain with Anhidrosis.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Experienced in Pantothenate Kinase-Associated Neurodegeneration

    Eriver Neurology Of Poughkeepsie NY

    21 Fox St Ste 102, 
    Poughkeepsie, NY 
    Languages Spoken:
    English

    Samuel Koszer is a Neurologist practicing medicine in Poughkeepsie, New York. Dr. Koszer is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 59 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Dravet Syndrome.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Neurology

    Sentara Neurology Specialists

    2006 Health Campus Dr, 
    Rockingham, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Zsofia Hole is a Neurologist practicing medicine in Rockingham, Virginia. Dr. Hole is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Seizures, Restless Legs Syndrome, and Migraine.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology

    HMH - Pediatric Endocrinology And Diabetes - Hackensack

    650 From Road, Suite 430A, 
    Paramus, NJ 
    Languages Spoken:
    English

    Naomi Lubarr is a Pediatric Neurologist practicing medicine in Paramus, New Jersey. Dr. Lubarr is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Fragile XE Syndrome, Drug Induced Dyskinesia, Movement Disorders, and Deep Brain Stimulation. Dr. Lubarr is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology

    Kennedy Krieger Institute

    Baltimore, MD 
    Languages Spoken:
    English

    Heather Riordan is a Pediatric Neurologist practicing medicine in Baltimore, Maryland. Dr. Riordan is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Focal Dystonia, Transient Tic Disorder, Spastic Diplegia Infantile Type, and Rhizotomy. Dr. Riordan is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    Experienced in Pantothenate Kinase-Associated Neurodegeneration
    Pediatric Neurology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Terence Sanger is a Pediatric Neurologist practicing medicine in Orange, California. Dr. Sanger is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Cerebral Palsy, and Deep Brain Stimulation. Dr. Sanger is currently accepting new patients.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Advanced in Pantothenate Kinase-Associated Neurodegeneration

    Uf Health Neuromedicine-Fixel Institute

    3009 SW Williston Rd, 
    Gainesville, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Nikolaus Mcfarland is a Neurologist practicing medicine in Gainesville, Florida. Dr. Mcfarland is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Progressive Supranuclear Palsy Atypical, Progressive Supranuclear Palsy, Movement Disorders, Parkinson's Disease, and Deep Brain Stimulation.

    Advanced in Pantothenate Kinase-Associated Neurodegeneration
    Advanced in Pantothenate Kinase-Associated Neurodegeneration

    UC San Diego Health Neurological Institute

    4510 Executive Dr Ste 325, 
    San Diego, CA 
    Languages Spoken:
    English

    Irene Litvan is a Neurologist practicing medicine in San Diego, California. Dr. Litvan is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Progressive Supranuclear Palsy, Progressive Supranuclear Palsy Atypical, Supranuclear Ophthalmoplegia, Movement Disorders, and Deep Brain Stimulation.

    Showing 1-20 of 95

    Last Updated: 04/28/2026

    What is the definition of Pantothenate Kinase-Associated Neurodegeneration?

    Pantothenate kinase-associated neurodegeneration (formerly called Hallervorden-Spatz syndrome) is a disorder of the nervous system. This condition is characterized by progressive difficulty with movement, typically beginning in childhood. Movement abnormalities include involuntary muscle spasms, rigidity, and trouble with walking that worsens over time. Many people with this condition also develop problems with speech (dysarthria), and some develop vision loss. Additionally, affected individuals may experience a loss of intellectual function (dementia) and psychiatric symptoms such as behavioral problems, personality changes, and depression.

    When should I see a Pantothenate Kinase-Associated Neurodegeneration doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Pantothenate Kinase-Associated Neurodegeneration doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Pantothenate Kinase-Associated Neurodegeneration doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Pantothenate Kinase-Associated Neurodegeneration doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Pantothenate Kinase-Associated Neurodegeneration doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. 

    Why is it important to get a second opinion from a different Pantothenate Kinase-Associated Neurodegeneration doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Pantothenate Kinase-Associated Neurodegeneration doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Pantothenate Kinase-Associated Neurodegeneration doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Pantothenate Kinase-Associated Neurodegeneration doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Pantothenate Kinase-Associated Neurodegeneration doctors in The United States?

    Look for the filter feature on the left side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Pantothenate Kinase-Associated Neurodegeneration doctor that offers video calls?

    Look for the filter feature on the left-side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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