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    Last Updated: 10/30/2025

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    MediFind found 6 doctor with experience in Pantothenate Kinase-Associated Neurodegeneration near Boston, MA. Of these, 4 are Experienced, 1 are Advanced and 1 are Elite.

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    6 providers found
      Elite in Pantothenate Kinase-Associated Neurodegeneration
      Neurology | Sleep Medicine
      Elite in Pantothenate Kinase-Associated Neurodegeneration
      Neurology | Sleep Medicine

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Aleksandar Videnovic is a Neurologist and a Sleep Medicine provider in Boston, Massachusetts. Dr. Videnovic is rated as an Elite provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. His top areas of expertise are Parkinson's Disease, Movement Disorders, Pantothenate Kinase-Associated Neurodegeneration, and Excessive Daytime Sleepiness. Dr. Videnovic is currently accepting new patients.

      Advanced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Neurology
      Advanced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Darius Ebrahimi-Fakhari is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ebrahimi-Fakhari is rated as an Advanced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. His top areas of expertise are Vici Syndrome, Chorea, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, and Spastic Paraplegia Type 2. Dr. Ebrahimi-Fakhari is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Pediatrics | Neurology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kerri Larovere is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Larovere is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Infant Epilepsy with Migrant Focal Crisis, Epilepsy in Children, and Epilepsy with Myoclonic-Atonic Seizures. Dr. Larovere is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Neurology | Sleep Medicine
      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Pediatric Neurology | Neurology | Sleep Medicine

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Kiran Maski is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Maski is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. Her top areas of expertise are Drowsiness, Narcolepsy, Excessive Daytime Sleepiness, and Idiopathic Hypersomnia.

      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Medical Genetics | Pediatric Neurology | Pediatrics
      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Medical Genetics | Pediatric Neurology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.

      Experienced in Pantothenate Kinase-Associated Neurodegeneration
      Experienced in Pantothenate Kinase-Associated Neurodegeneration

      Lahey Clinic Inc

      41 Mall Rd, 
      Burlington, MA 
       (11.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julie Leegwater-Kim is a Neurologist in Burlington, Massachusetts. Dr. Leegwater-Kim is rated as an Experienced provider by MediFind in the treatment of Pantothenate Kinase-Associated Neurodegeneration. Her top areas of expertise are Movement Disorders, Parkinson's Disease, Secondary Parkinsonism, and Drug Induced Dyskinesia. Dr. Leegwater-Kim is currently accepting new patients.

      Showing 1-6 of 6

      Last Updated: 10/30/2025

      What is the definition of Pantothenate Kinase-Associated Neurodegeneration?

      Pantothenate kinase-associated neurodegeneration (formerly called Hallervorden-Spatz syndrome) is a disorder of the nervous system. This condition is characterized by progressive difficulty with movement, typically beginning in childhood. Movement abnormalities include involuntary muscle spasms, rigidity, and trouble with walking that worsens over time. Many people with this condition also develop problems with speech (dysarthria), and some develop vision loss. Additionally, affected individuals may experience a loss of intellectual function (dementia) and psychiatric symptoms such as behavioral problems, personality changes, and depression.

      When should I see a Pantothenate Kinase-Associated Neurodegeneration doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Pantothenate Kinase-Associated Neurodegeneration doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Pantothenate Kinase-Associated Neurodegeneration doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Pantothenate Kinase-Associated Neurodegeneration doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Pantothenate Kinase-Associated Neurodegeneration doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. 

      Why is it important to get a second opinion from a different Pantothenate Kinase-Associated Neurodegeneration doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Pantothenate Kinase-Associated Neurodegeneration doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Pantothenate Kinase-Associated Neurodegeneration doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Pantothenate Kinase-Associated Neurodegeneration doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Pantothenate Kinase-Associated Neurodegeneration doctors near Boston, MA?

      Look for the filter feature on the left side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Pantothenate Kinase-Associated Neurodegeneration doctor that offers video calls?

      Look for the filter feature on the left-side of the Pantothenate Kinase-Associated Neurodegeneration doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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